Hi, my name is SusiA! I'm finding out ways to help my friend with CP

SusiA
SusiA Online Community Member Posts: 2 Listener
edited November 2022 in Cerebral Palsy Network
I'm here to find out more about ways of working with IT for my friend living with CP + progressive restrictions from age and injury. He's writing a book, with support from various friends including me; and I'll be searching around for ideas like text/audio software and such. Now to scoot around your site - but good to say hello, first!
Best to everyone
Susi

Comments

  • Tori_Scope
    Tori_Scope Scope Posts: 12,464 Championing
    Welcome to the community @susia :) It's great to have you on board, and it's lovely to hear that you're helping your friend out. 

    You're very welcome to take a look around the site, and get stuck in! Here are some categories that may be of interest:
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    Welcome @SusiA and hello from me too! All the best for your research into any aids or adaptions which would help your friend with his writing, if there's anything we can do, please ask.

    Can we ask what the book is about, or is it classified at the moment? :)
  • SusiA
    SusiA Online Community Member Posts: 2 Listener
    Thanks - the book's about Dave's life, almost all from his point of view (though there's input from one of his brothers, and a particularly significant 'ex'). We know each other through friends - he was at Cambridge with a guy I shacked up with in the 90s (still together:), but hey! we're all in our 60s now.

    In fact I was in touch with SCOPE a year or so ago chasing a report he worked on back in the '80s, as a freelancer with RADAR (do they still exist?) when you were still 'The Spastics Society'. In the end the National Archive at Kew had a copy, but it didn't turn out to be useful for the memoir.
    Never mind.

    Had planned to contact SCOPE again in any case, once its nearer the time to look for a publisher & have ideas about launches +/or reaching readerships, but for now it's a question of IT.
    Dave's nearing his 66th and after quite an active life is now almost totally immobile. Even over the last couple of years pain levels and exhaustion are getting less and less manageable.
    We need to work out how he's going to listen to, and at the same time make organised retrievable COMMENTS, on the first draft! Typing is an ordeal for him most days now.

    I'm on a Mac, he's on some sort of laptop with some Windows apps but possibly not a legit copy of the whole MS365 bundle. Have been wondering about buying that for him, but need to tread carefully - and would want any decisions to be better informed:)
    So none of this is urgent just yet, but any ideas would be so welcome!

  • Globster
    Globster Community Volunteer Host, CP Network, Scope Member Posts: 2,911 Championing
     @susia I would firstly like to also welcome to Scope online community
    I have used Dragon Speech dictation software for Mac in the past and I found really useful because I struggle type cerebral palsy affects fingers. If that may help your friend with writing his book. :)  
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Welcome @SusiA

    That sounds amazing, writing a book! 

    I just wanted to let you know I've popped your post over into our Cerebral Palsy section of the forum, hopefully you'll get a few more answers and advice. 

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