Aspergus

naheed73ahmed
naheed73ahmed Online Community Member Posts: 2 Listener
in Autism and neurodiversity
Hi
my daughter was diagnosed with Aspergus and ADHD. But we have not had any further support on how to help her. She struggles to concentrate for exams and express her feeling. Can anyone help please

Comments

  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Hello @naheed73ahmed

    Welcome to the community :) 

    If it is ok to ask, just so we can see how we can help further, Is she under anyone at the GP? or under Camhs? 
  • Adrian_Scope
    Adrian_Scope Posts: 11,750 Online Community Programme Lead
    edited January 2023
    Hello @naheed73ahmed. You mentioned that your daughter was struggling with exams and I wondered if she's still in school? If so, have you been in contact with the SENCO at her school? They should be able to work with you to put adjustments in place to help your daughter. 
  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 13,778 Championing
    Hi I was told that they weren't diagnosing Asperger's that it all comes under the umbrella of autism now. 
  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 13,778 Championing
    Ada said:
    Well I have Asperger and was told recently that what had changed is naming it Asperger Syndrome 
    Oh that's strange 
  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 13,778 Championing
    Because I was told that they weren't diagnoseing Asperger's 
  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 13,778 Championing
    Ada said:
    sorry my words are getting all mixed perhaps signals bad
    No problem I have bad signal so I understand 
  • chiarieds
    chiarieds Online Community Member Posts: 16,760 Championing
    edited January 2023
    Hi @durhamjaide2001 & @Ada - Confusion may have arisen as Asperger syndrome was named after an Austrian Dr who it's now thought 'may' have collaborated with the Nazis; he was involved in referring children, many being disabled, to a clinic in Vienna, where 789 were murdered under the Nazi's euthanasia programme.
    This didn't come to light until comparatively recently, & many no longer want their disorder associated with the name of Hans Asperger. So now, the National Autistic Society recognises tho some will want to keep the name they were previously diagnosed with, it's now just diagnosed as Autistic Spectrum Disorder.
  • naheed73ahmed
    naheed73ahmed Online Community Member Posts: 2 Listener
    What are the difficulties of life as Asperger if you don’t mind sharing.  It will help me understand my daughter who is 19 at the moment
  • anisty
    anisty Online Community Member Posts: 807 Trailblazing
    You're right @durhamjaide2001 - when the DSMV was published back in around 2014 i think it was, Asperger's was not included as a diagnosis at all.

    I haven't heard the reason that @chiarieds mentions in her post. What I heard was that the perception amongst the general public is that those diagnosed with Asperger's are always extremely intelligent and it was almost seen as a 'more desirable' diagnosis, especially by parents of autistic children.


    So they very much wanted to bring those previously labelled with Aspergers onto the higher functioning spectrum of autism.


    Though there is still a school of thought that Aspergers is an applicable label fitting for those having special characteristics of autism.
  • chiarieds
    chiarieds Online Community Member Posts: 16,760 Championing
    edited February 2023
    Hi @anisty - You can see about this here under 'The problematic history of Hans Asperger': https://www.autism.org.uk/advice-and-guidance/what-is-autism/asperger-syndrome
    I think defining 'high functioning' can also be problematic: https://www.verywellmind.com/what-is-high-functioning-autism-5198358
    I think you are also correct that the general public tend to identify some of those with Asperger's Syndrome even as 'savants.' Indeed Hans Asperger followed one of his patients into adulthood, who 'became a professor of astronomy and solved an error in Newton’s work he originally noticed as a child.' https://autismuk.com/home-page/history-of-autism/hans-asperger-definition/
    I think as a Mum with a son on the Autistic Spectrum you will know way more than I, & like with any disorder, altho characteristics may be shared, each person is an individual, with their own strengths & difficulties. I just have a small glimpse of this as a neuropsychologist said he wouldn't diagnose my son some 15-16 years ago, but that he was 'next door' to Asperger's Syndrome, so I hope I haven't spoken out of turn.
  • anisty
    anisty Online Community Member Posts: 807 Trailblazing
    All very interesting @chiarieds, thank you. No, you haven't spoken out of turn at all.

    My son hasn't got Aspergers; he has language and cognitive deficits but I do know a local young man here and he would definitely fit the DSM1V Asperger's diagnosis. 

    The label did seem appropriate for a distinct group within the autistic community.

    I was doing some studying in 2014, just when DSMV was published, which is when I came across the change.


    Here's some more info about it

    https://livingautism.com/dsm-5-proposed-changes-means-lives-affected-autism-aspergers-syndrome/

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