Hi, my name is marty600! Help with Meniere's Disease

marty600
marty600 Online Community Member Posts: 13 Listener
edited March 2023 in Rare, invisible, and undiagnosed conditions
Hello Marty here I’ve had me nieces for about six years had a break from it past two years but has come back with a vengeance been rough for three weeks now unsteady and headaches trying betahistine dihydrochloride again can someone tell me there experience with this I couldn’t get on with it before be glad for any info thanks

Comments

  • marty600
    marty600 Online Community Member Posts: 13 Listener
    Lol that should read Meneires decease
  • marty600
    marty600 Online Community Member Posts: 13 Listener
    Can someone tell me how they get on taking betahistine dihydrochloride tablets 
  • marty600
    marty600 Online Community Member Posts: 13 Listener
    hi hi looking for fellow sufferers
  • Forestphotographer
    Forestphotographer Online Community Member Posts: 7 Connected
    Hi Marty600, 

    I also have Meniere's disease, which I've had for many years. Effects my right ear with hearing loss and tinnitus and balance problems. 

    Diane 
  • marty600
    marty600 Online Community Member Posts: 13 Listener
    Hi Diane have you taken betahistine dihydrochloride I’ve been free of it for a couple of years but it’s back with a vengeance I’ll try the tablets again 
  • marty600
    marty600 Online Community Member Posts: 13 Listener
    who Marty joined today would love to know any useful hints dealing with menieres 
  • marty600
    marty600 Online Community Member Posts: 13 Listener
    has anyone got tips how to deal with menieres 
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Hello @marty600

    Welcome to the community, I saw your other thread and saw this one so I will go ahead an merge them for you, so you have everything in one place :) 

    We don't generally give medical advice on here, so I am just putting that as a disclaimer in case you had any follow up questions or somebody gives medical advice and didn't know the house rules. 

    Is your GP / Specialist thinking of putting you on these tablets? If this is something you are looking at yourself, we would always say to consult with your GP / Specialist but they will be the best ones to speak to about the medication's stats and any other possible alternatives. 
  • marty600
    marty600 Online Community Member Posts: 13 Listener
    Yeh I’m currently taking betahistine wondered what other people’s experience is taking them thanks
  • Forestphotographer
    Forestphotographer Online Community Member Posts: 7 Connected
    Hi Marty, 

    I cannot go into details on the tablets due to house rules but i can recommend you join the Meniere's UK Facebook group. Hope that's ok with the admin? Many thanks Diane 
  • marty600
    marty600 Online Community Member Posts: 13 Listener
    Ok Diane thanks very much I understand ,feeling a lot better today managed a bike ride been doing some vestibular exercises seem to help a bit thanks again Diane.
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    Glad to hear you are feeling a lot better now @marty600 :)
  • marty600
    marty600 Online Community Member Posts: 13 Listener
    Heya I was looking for fellow sufferers of menieres decease
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    I do not have Meniere's disease @marty600 but hopefully, if people do, people can let you know  :)
  • marty600
    marty600 Online Community Member Posts: 13 Listener
    thanks thanks very much would love to know other people’s experiences 😃
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    I am hoping you can hear about other people's experiences soon too @marty600. Got my fingers crossed for you. 

    Until then, you might also find these resources helpful:

    I hope these resources are at least semi-helpful. Please don't hesitate to let us know if there's anything else we can do to support you until you hear about other people's experiences  :)
  • marty600
    marty600 Online Community Member Posts: 13 Listener
    thanks very much thanks very much I’m trying vit d heard it’s meant to help
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    How are you finding trying vitamin D @marty600?  :)
  • marty600
    marty600 Online Community Member Posts: 13 Listener
    heya hi yeh seem to be giving me more energy menieres seems to have calmed down
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    That's good to hear, thanks for sharing the update @marty600 :) 

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