0 points on mobility

alg13
alg13 Online Community Member Posts: 2 Listener
in PIP, DLA, ADP and AA
Recently applied for pip for my daughter with adhd , autism , eating disorder and scoliosis , osteopenia amongst other things. She’s of very low weighg and goes in the car pretty much everywhere with me (when she actually goes out anyway) due to a) getting tired easily and b) getting overwhelmed easily yet they awarded her 0 points for mobility. I suspect they haven’t read the report properly though as the final letter stated ‘there is no cognitive or intellectual disabilities’ when quite clealry there are and have been stated. Can this happen? Should I appeal? I have bone scans etc. not sure what other evidence I can use 

Comments

  • nasturtium
    nasturtium Online Community Member Posts: 390 Empowering
    edited June 2023
    Hello alg13
    You said that your daughter scored zero for mobility. Did she score any points for daily living?
    If this is the final descision letter then your option now is to write out a detailed Mandatory Reconsideration letter.
    It is always a good idea to write a detailed MR Letter (Do not telephone to ask for a Mandatory Reconsideration) because that letter will be used as evidence by a tribunal if you need to appeal if your MR descision stays the same.
    You have one month from the date on the descision letter to write and send your MR Letter but you have 13 months to write and send a MR letter if you had a good reason to send a late MR. If your MR is refused because of being late then you can go straight to Appeal.
    alg13 said:
    I have bone scans etc. not sure what other evidence I can use 
    The best evidence is your verbal anecdotal evidence of what happened the last time your daughter tried to do a PIP activity and in your case it is the Mobility activity.
    There are 2 section to the Mobility activity.
    Please look at the above links and use the information and advice on those pages to help you to construct a detailed MR Letter for your daughters claim.
    You daughter needs to complete all of the PIP activities Reliably and that is safely, repeatedly, in a timely manor and to an acceptable standard. All of the four criterias of "Reliably" need to be met to score zero points for that activity. So if your daughter can prepare herself a meal in a reasonable time, repeatedly and to an acceptable standard but it is not safe for her to do because there is a risk of her cutting herself then she cannot do that activity relaibly and she should score points according to the applicable descriptor. See the following links about Reliably https://www.mypipassessment.co.uk/updates/what-are-the-reliability-criteria-that-are-used-during-the-pip-consultation/ and https://pipinfo.net/issues/reliably
    If you have diagnosis letters, scans etc you can reference those from withing your MR Letter for each activity you are disputing.
    Remember to include what happened the last time your daughter tried to do the activity. What happened, who witnessed it and what was the concerquences and outcome.
    I wrote a lengthy reply on another forum post that you might find usefull for your MR letter also and it can be found here https://forum.scope.org.uk/discussion/comment/680205/#Comment_680205
    I hope this has been of some assistance.
    Kind Regards
    Nasturtium
  • alg13
    alg13 Online Community Member Posts: 2 Listener
    nasturtium said:
    Hello alg13
    You said that your daughter scored zero for mobility. Did she score any points for daily living?
    If this is the final descision letter then your option now is to write out a detailed Mandatory Reconsideration letter.
    It is always a good idea to write a detailed MR Letter (Do not telephone to ask for a Mandatory Reconsideration) because that letter will be used as evidence by a tribunal if you need to appeal if your MR descision stays the same.
    You have one month from the date on the descision letter to write and send your MR Letter but you have 13 months to write and send a MR letter if you had a good reason to send a late MR. If your MR is refused because of being late then you can go straight to Appeal.
    alg13 said:
    I have bone scans etc. not sure what other evidence I can use 
    The best evidence is your verbal anecdotal evidence of what happened the last time your daughter tried to do a PIP activity and in your case it is the Mobility activity.
    There are 2 section to the Mobility activity.
    Please look at the above links and use the information and advice on those pages to help you to construct a detailed MR Letter for your daughters claim.
    You daughter needs to complete all of the PIP activities Reliably and that is safely, repeatedly, in a timely manor and to an acceptable standard. All of the four criterias of "Reliably" need to be met to score zero points for that activity. So if your daughter can prepare herself a meal in a reasonable time, repeatedly and to an acceptable standard but it is not safe for her to do because there is a risk of her cutting herself then she cannot do that activity relaibly and she should score points according to the applicable descriptor. See the following links about Reliably https://www.mypipassessment.co.uk/updates/what-are-the-reliability-criteria-that-are-used-during-the-pip-consultation/ and https://pipinfo.net/issues/reliably
    If you have diagnosis letters, scans etc you can reference those from withing your MR Letter for each activity you are disputing.
    Remember to include what happened the last time your daughter tried to do the activity. What happened, who witnessed it and what was the concerquences and outcome.
    I wrote a lengthy reply on another forum post that you might find usefull for your MR letter also and it can be found here https://forum.scope.org.uk/discussion/comment/680205/#Comment_680205
    I hope this has been of some assistance.
    Kind Regards
    Nasturtium
    Hi, yes she scored for the enhanced rate for daily living. The main issue with mobility is we explained she gets severe anxiety however they said there wasn’t enough evidence of the distress but I’m not sure exactly what evidence I can use. I have college attendance sheets where she’s barely in because of the fact she gets so exhausted after walking a little and therefore , is put off going in unless someone can drop her off rather than get the school bus (which I still drop her off at the bus stop). Could this be used?
  • nasturtium
    nasturtium Online Community Member Posts: 390 Empowering
    edited June 2023
    So it is just the mobility section you will be requesting Reconsideration on. You will need to say at the top of your Reconsideration letter that you accept the dail living award but you want to reconsider the mobility descision.
    alg13 said:
    The main issue with mobility is we explained she gets severe anxiety however they said there wasn’t enough evidence of the distress but I’m not sure exactly what evidence I can use.
    I explained in my above reply that they are looking for written verbal anecdotal evidence because they want to know how your daughters conditions affect her ability to complete the PIP activities (in your case the mobility activity) for the majority of days. So if you are writting the MR Letter and you are her carer then you can explain in detail:-
    What happens when she goes out by herself?
    Does she get distressed? If yes describe in detail what distress she suffers.
    Would she be able to go out more than once in the day, if not why not?
    Would it be safe for her to go out by herself? If not why not? Does she need someone with her?
    You must be descriptive and give detailed real life examples of what has happened when she has tried to go out or to stand and walk.
    Please read the links I have provided above to give you a better understanding of the PIP Mobility activity. If she has Neurodevelopment problems and physical problems she could score for both "Going Out" and "Moving Around" for the PIP Mobility section.
    The key is understanding the Activities and the descriptors and being detailed in Your written verbal anecdotal evidence.
    Remember the criteria called "Reliably" I talked about in my previous reply to you. It is very important for PIP!
    Nasturtium
  • 2oldcodgers
    2oldcodgers Posts: 739 Connected
    I received 0 points for PIP mobility in the change over from DLA (High mobility)
    They simply didn't believe anything I said that I was unable to walk more than 20 metres reliably. They pointed out that I walked more than that in getting from the car park to the building.
    So I dug out a report that my consultant sent me some months previously which said that I could only reliably move forward 10 metres as after that distance I fell off the walking machine twice in the hospital. 
    They then offered PIP Enhanced Mobility!!! 

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