Need some advice

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Globster
Globster Community Volunteer Host, CP Network, Scope Member Posts: 3,046 Championing
in Coffee lounge
With having cerebral palsy loud noises and bangs or someone yelling makes me feel so scared and anxious and sometimes it’s feels paralysing for me I would appreciate if anyone on the scope online could share any tips on how I break out because really taken over my life it just feels like that to me  :'(

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  • Jimm_Alumni
    Jimm_Alumni Scope alumni Posts: 5,713 Championing
    Hey @Globster, I hope what Biblio has linked offers some help or advice. I'll look for more advice/ideas myself :) The community is here for you

    I'll be sending you an email so keep an eye out for it okay! 
  • Globster
    Globster Community Volunteer Host, CP Network, Scope Member Posts: 3,046 Championing
    @Biblioklept I appreciate your response and sharing of the link with me is very much appreciated  <3
    @Jimm_Scope I appreciate your support and communication with me was greatly appreciate thank you very much for your time  <3
  • Sandy_123
    Sandy_123 Scope Member Posts: 63,123 Championing
    Hi @globster I hope the link @Biblioklept gave was helpful to you. Sorry to read that you are suffering with noises. 
  • Globster
    Globster Community Volunteer Host, CP Network, Scope Member Posts: 3,046 Championing
    @Sandy_123 the link that @Biblioklept shared is very helpful and it quite alright i hoping find a method that works for me to enable to allow deal with this and hopefully not let this takeover my life 

    Thanks so very much to amazing people on the scope online community are so helpful and truly kind and supportive and knowledgeable thank you once again  <3
  • Albus_Scope
    Albus_Scope Posts: 10,070 Scope Online Community Coordinator
    We're all here cheering you on @Globster :) 
  • Globster
    Globster Community Volunteer Host, CP Network, Scope Member Posts: 3,046 Championing
    @Albus_Scope I appreciate your kind words is greatly appreciated  <3
  • chiarieds
    chiarieds Online Community Member Posts: 17,098 Championing
    Hi @Globster - so sorry you're suffering from problems with loud noises. I don't have CP, but do suffer from hyperacusis; great difficulty with noise, as I seem very sensitive to it, which I'd put down to having another neurological disorder (Chiari 1 Malformation). 
    My children still tease & call me 'radar,' as even when they're whispering, I hear clearly, & they get away with nothing! 
    I've had to learn to live with it, being sensitive to bright lights, or anyone coming up behind me, which makes me feel the ground/floor is moving up & down.
    How to cope....the first thing I do in my head is to tell myself, 'I'm OK,' then next I concentrate on my breathing, which helps calm me down. Try this exercise: https://www.cheshire-epaige.nhs.uk/wp-content/uploads/2018/11/Diaphragmatic-breathing-techniques.pdf   you can do this in any position you feel comfortable in, & it's been found to reduce both stress & pain, & aid relaxation, so worth a try. This is my mainstay; an exercise I used to teach (as a physio), & use daily.
    Hope Biblioklept's link about the 'Moro reflex' has helped, & perhaps this too.
  • Globster
    Globster Community Volunteer Host, CP Network, Scope Member Posts: 3,046 Championing
    Thank you to all the scope online community members for all of the fantastic information and I will take some time to read the link in some of your comments. Thank you so much to the scope online community are truly amazing thank you to everyone once again  <3

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