Severe episodic cluster headaches - workplace challenges

Bydand said:

Jxrdxn_N said:

I’ve recently been diagnosed with severe episodic cluster headaches. My employer will do anything apart from accept the reasonable adjustment requested by my GP. I worked a 9pm-8am shift Thursday-Sunday. These have been my hours since January 2023, when I applied for the job it was for the night shift position. I am unclear on what I can and should do going forward. Rumour is that if I keep pressing for an adjustment they will move my shifts to another store over an hour away. I cannot travel as I can’t drive, they pay below the median living wage for my county and most likely won’t pay for travel expenses as it was per my request to be moved onto days and I cannot afford it, I fell into rent arrears last month and will only fall more if I can’t get this sorted. What can I do? My disability is classed as significant on my NHS records but highlighting that hasn’t done me any favors. 

I’m losing hours and money and I don’t know where to go or what to do. I’m completely lost here. I’m consistently missing nearly 50% of my hours per month due to my condition, the company have lost faith in me completely where as this time last year i was putting in up to 260 hours a month (I’m contracted 160). Everything just isn’t going my way. 

Hi, sorry to hear about the problems you are facing, hopefully folks on here will be able to offer advice that helps.

Not sure what employment sector you are in but my first thought is Does your employer have an HR dept, and are you in a union.

Bydand said:

Jxrdxn_N said:

I’ve recently been diagnosed with severe episodic cluster headaches. My employer will do anything apart from accept the reasonable adjustment requested by my GP. I worked a 9pm-8am shift Thursday-Sunday. These have been my hours since January 2023, when I applied for the job it was for the night shift position. I am unclear on what I can and should do going forward. Rumour is that if I keep pressing for an adjustment they will move my shifts to another store over an hour away. I cannot travel as I can’t drive, they pay below the median living wage for my county and most likely won’t pay for travel expenses as it was per my request to be moved onto days and I cannot afford it, I fell into rent arrears last month and will only fall more if I can’t get this sorted. What can I do? My disability is classed as significant on my NHS records but highlighting that hasn’t done me any favors. 

I’m losing hours and money and I don’t know where to go or what to do. I’m completely lost here. I’m consistently missing nearly 50% of my hours per month due to my condition, the company have lost faith in me completely where as this time last year i was putting in up to 260 hours a month (I’m contracted 160). Everything just isn’t going my way. 

Hi, sorry to hear about the problems you are facing, hopefully folks on here will be able to offer advice that helps.

Not sure what employment sector you are in but my first thought is Does your employer have an HR dept, and are you in a union.

Bydand said:

Jxrdxn_N said:

Bydand said:

Jxrdxn_N said:

I’ve recently been diagnosed with severe episodic cluster headaches. My employer will do anything apart from accept the reasonable adjustment requested by my GP. I worked a 9pm-8am shift Thursday-Sunday. These have been my hours since January 2023, when I applied for the job it was for the night shift position. I am unclear on what I can and should do going forward. Rumour is that if I keep pressing for an adjustment they will move my shifts to another store over an hour away. I cannot travel as I can’t drive, they pay below the median living wage for my county and most likely won’t pay for travel expenses as it was per my request to be moved onto days and I cannot afford it, I fell into rent arrears last month and will only fall more if I can’t get this sorted. What can I do? My disability is classed as significant on my NHS records but highlighting that hasn’t done me any favors. 

I’m losing hours and money and I don’t know where to go or what to do. I’m completely lost here. I’m consistently missing nearly 50% of my hours per month due to my condition, the company have lost faith in me completely where as this time last year i was putting in up to 260 hours a month (I’m contracted 160). Everything just isn’t going my way. 

Hi, sorry to hear about the problems you are facing, hopefully folks on here will be able to offer advice that helps.

Not sure what employment sector you are in but my first thought is Does your employer have an HR dept, and are you in a union.

Bydand said:

Jxrdxn_N said:

I’ve recently been diagnosed with severe episodic cluster headaches. My employer will do anything apart from accept the reasonable adjustment requested by my GP. I worked a 9pm-8am shift Thursday-Sunday. These have been my hours since January 2023, when I applied for the job it was for the night shift position. I am unclear on what I can and should do going forward. Rumour is that if I keep pressing for an adjustment they will move my shifts to another store over an hour away. I cannot travel as I can’t drive, they pay below the median living wage for my county and most likely won’t pay for travel expenses as it was per my request to be moved onto days and I cannot afford it, I fell into rent arrears last month and will only fall more if I can’t get this sorted. What can I do? My disability is classed as significant on my NHS records but highlighting that hasn’t done me any favors. 

I’m losing hours and money and I don’t know where to go or what to do. I’m completely lost here. I’m consistently missing nearly 50% of my hours per month due to my condition, the company have lost faith in me completely where as this time last year i was putting in up to 260 hours a month (I’m contracted 160). Everything just isn’t going my way. 

Hi, sorry to hear about the problems you are facing, hopefully folks on here will be able to offer advice that helps.

Not sure what employment sector you are in but my first thought is Does your employer have an HR dept, and are you in a union.

HI thanks for the response, I think we have a HR but management have never mentioned them or how to contact them. Since I posted my situation on the forum it’s come to my attention that another night worker has been moved onto the day shift instead of me. So HR will need to be found and contacted also. My manager hasn’t been off for a few days so I’m waiting for her return to work.

Hi again, if your organisation is big enough to have a dedicated HR, then they should also have access to an Occupational health provider. Your GPs recommendation really means nothing at this point, however would be used as evidence as part of the OH referral.

Dont make it personal between yourself and your manager, but you need to be proactive at this stage. It can be easy to take things very personally which is why it’s important that you make sure all policies are being followed and a process has been started officially which works to everyone’s benefit.

I would as a matter of priority contact HR, explain the situation and ask to be referred to OH due to the difficulties you have been having medically and how this has affected you.

once under OH then everything should be recorded and the decision to a large extent is taken out of the control of others. The recording part is very important as it gives you protection from others perhaps misrepresenting the situation and provides evidence of how any medical disability affects you.

The role of OH is to mediate between you and the employer and their recommendations are usually followed, this would include using reasonable adjustments and what that may consist of and for how long. It may well be over a period of time and will be reviewed.

you have to be aware though that they also represent the employers interest and it is not always possible for an employer to accept reasonable adjustment recommendations.