Did you acquire your impairment as an adult?

Seachy · January 2017

@MattStuart555 not knowing you or your whole history I cannot go in depth but having lived with chronic pain since my car accident along with numerous other issues and depression for 15 years now I do not see you as a coward at all. It takes a strong person to live every day in pain and I cannot imagine it continuing for as long as you have even though I know it will.

mossycow · January 2017

Sorry to hear of your stories fellow thread writers xx

@Alex I seem to have deleted your email, would you mind sending it again please as I thought the document was absolutely excellent and will be vital to so many people.

Alex · January 2017

@mossycow Sure, I've just sent it, thanks.

mossycow · January 2017

Great! Thanks

Alex · January 2017

Massive thank you to everyone who has emailed me your thoughts on this. The feedback so far has been incredibly useful. If you've not emailed me back - there's still a couple of weeks left (although the sooner the better!). I look forward to hearing from you!

kevstar1 · January 2017

I lost my sight in a work accident at 49years old am now registered blind suffer from panic attacks and anxiety issues

BeccaShark123 · January 2017

I was diagnosed with joint hypermobility syndrome aged 21, and that was recently changed to Fibromyalgia aged 23. I wasn't diagnosed with dyspraxia until I was 19- everything I have, bar asthma, has been diagnosed in my young adulthood!

Sealegs · January 2017

Yes I was diagnosed with Spastic Paraplegia when I was about 35.

Alex · January 2017

Thanks @kevstar1, @BeccaShark123, @Sealegs. I've emailed you all - let me know if you have any problems. Look forward to hearing your feedback.

shelly_z · January 2017

Hi....i started with my back problems when I was in my early 20s, finally got taken seriously after an MRI when I was 42, tried usual meds, physio, spinal injections, which finally led to surgery in 2014, after which got an infection, spent 5 weeks in hospital, had to have 3 wash outs, a vacpac inserted, went back to work for a 6 months, after struggling for the 6 months, had to admit defeat....which brings us to today, im under the umbrella term "failed back surgery syndrome" with extensive nerve damage and scar tissue. I'm awaiting a trial for a spinal cord stimulator, which hopefully will lead to being able to take less meds. Anyone's experiences regarding SCS would be gratefully received ☺

snakeman · January 2017

Late to the party, but I am disabled following an accident when I was thirty two, now forty one and happy to help

basiclee08 · January 2017

Hi Alex,Great idea and sounds like people on here found it useful!. I was involved In a RTA 2 years ago which left me using a wheelchair. A Lot of physio and now starting to look and get back working only P/T as am not sure how my body is going to manage. Benefits system a total nightmare not sure on threshold to get disability tax credits how many hours to get them.DEA or like ghosts know were to be seen or found lol. Heard gov work schemes to avoid?.their should be a easier way to access help/advice.

Cheers Lee

onmybiketoo · January 2017

2006 Hubby caught a staph infection left as an high level tetraplegic spinal cord injury at age 61. went over 4 days from extremely fit and healthy to now having to have round the clock care.

emkins40 · January 2017

Hi Alex,
I would like to help. My conditions only developed in 2011 following a severe car crash with prolonged concussion and brain injury leaving me with uncontrolled epilepsy.
Its something that really upsets me but my 3 children 15,13 and only 7 live mainly with my ex husband as I cannot care for them as I would wish. It breaks my heart. However, at least they have a relatively normal childhood. I do see them every 3 rd weekend and longer in holidays but I would do anything to be with them daily and give my youngest daughter the same opportunities I was able to give my older children. Just the bedtime stories and cooking with mum and days out. It has all been taken away.

Alex · January 2017

Thanks @emkins40 @onmybiketoo @basiclee08 @snakeman @shelly_z

I've emailed you all - let me know if you have any problems. Look forward to hearing your feedback.

pipster · August 2017

Diagnosed in 30s with bilateral hearing loss and tinnitus; just been diagnosed at 48 with rare disease Hereditary Spastic Paraplegia (hearing loss may well have been an early symptom)...a bit broadsided really and not sure where to turn. Any advice/support gratefully received.

Sarahmac83 · August 2017

I was diagnosed with borderline learning disabilities in 2005 I found that it made my life so much harder. I Also have serve depression plus many physical health issues

Nystagmite · August 2017

I was born with some of mine. I acquired a few as a teenager and acquired the rest as an adult. Most are permanent side effects of medication.

Jonesy1 · August 2017

Alex said:

Hi everyone,

We're developing a new online and print information product for people who have recently become disabled as an adult (rather than growing up with an impairment). The information covers common questions that people have around care, money, housing and equipment.

We have a draft version and we'd really like to get some feedback to see if we're covering the right questions and to see what you think of the answers!

If you're interested, and acquired your impairment as an adult, please let me know below and I will send you a copy.

Thanks!

Jonesy1 · August 2017

I would be interested I was diagnosed as partially sighted an

Did you acquire your impairment as an adult?

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