About the PM's (Sunak's) speech: Stop demonising us

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  • rita444
    rita444 Online Community Member Posts: 45 Contributor
    ElizaRose said:
    Hello. I am new to this forum and never really write posts as I am not a computer person. I just really feel for everyone who has written on here about all the anxiety this is causing.

    I was recently, very thankfully awarded higher rate PIP for both physical and MH problems, and after finally getting through that soul destroying, horrendous process it feels like it could now just get ripped away again. Since this was announced last week my anxiety has been through the roof and my physical problems have been made a lot worse. The last few days I have just had to stay in bed and have hardly been able to move.

    Also, I am terrified for my eldest son who is 24 and has autism and schizophrenia. I have been battling the system and banging my head against a brick wall for him pretty much his whole life. Now I am just too ill to do it anymore. He spent the last four years in and out of various mental health hospitals with psychosis. Twice he was discharged to street-homelessness whilst still very ill with the psychosis. He wouldn't let me help him for fear of "them" knowing where he was and putting him back in hospital again, so he spent a couple of months each time living rough until he got picked up by the police again. I was a wreck and now have ptsd attacks at night because of it, on top of everything else. I did not even know if he would survive. His social worker told me that even though he was still ill, once he became the least ill in hospital, and they needed the bed, they would discharge him. What sort of help/therapy is that? The whole system is broken and completely heartless when it becomes normal to discharge ill people to the street who could be a danger to themselves and others.

    After more battles he is now in a rehabilitation hospital. He only has up to a year to be there and has already done four months. I am absolutely dreading what will happen when he is discharged, especially with all this going on. He is not going to be able to just get a job! I know even now he has a work coach phoning him periodically, and although there is no pressure at this time, what will happen when he is discharged? As he is finally a little more on an even keel, I don't want a load of pressure and stress to send him back to square one again as he suffers terribly with anxiety at the best of times.

    This barbaric government has no idea about the realities and struggles of living with mental health and any disabilities in the real world, especially when any so called services have been cut to next to nothing. They also have no idea of the devastating impact and knock-on effect on families and loved ones....and now they want to take the little bit of support which helps us towards surviving and trying to have a little normality in life. I am at a point now when I have nothing left to battle with....for my son or me, and I fear if I go down both my sons will too, as we only really have each othe
  • Jimm_Alumni
    Jimm_Alumni Scope alumni Posts: 5,717 Championing
    edited May 2024
    Hello, I saw a few people requesting a clip of James on Sky News. Here is a twitter link showing the clip 

    James Taylor from disability charity Scope spoke to #BBCBreakfast about reforms to personal independence payments (PIP) 
  • mrsBB
    mrsBB Online Community Member Posts: 120 Empowering
    @Jimm_Scope

    awww 👍☺️ thank you so much for taking the time to find that link. I was one of the ones that asked, I spent ages searching for it, thank you for providing it 😀
  • mrsBB
    mrsBB Online Community Member Posts: 120 Empowering
    Just watched, James did a fab job, thank you Scope for all you do 😀 
  • Andi66
    Andi66 Online Community Member Posts: 905 Championing
    I have just ploughed though that green paper. Good grief. 
    I have to fill it out, do I email it. What evidence do you put .
  • Andi66
    Andi66 Online Community Member Posts: 905 Championing
    I've just read it, there just as bad.
  • Andi66
    Andi66 Online Community Member Posts: 905 Championing
    Just read that the woman of labour said about getting the young back to work as well as older women in the 50s who are disabled or carers.
    This is terrible.  Work made me ill with copd in the first place.
  • Andi66
    Andi66 Online Community Member Posts: 905 Championing
    I'm the same , also in my 50s . They have no shame.  I worry about if they take cash payments away,how to pay for things. Heating etc 
  • Bingo
    Bingo Online Community Member Posts: 74 Contributor
    ElizaRose said:
    I just saw an article on MSN from The i saying "Labour to target job centres and PIP assessments to get disabled people into work". It goes on to say "Alison McGovern acknowledged that fixing the welfare system would need "big changes" if Labour got into power." This is all so distressing. I am shaking like a leaf!

    Is this what you read?  https://www.msn.com/en-ie/news/other/labour-to-target-job-centres-and-pip-assessments-to-get-disabled-people-into-work/ar-AA1o0VZw

    I don't necessarily think this is Labour taking aim at PIP and disabled people the way the Tories are or would if they got the chance. It sounds more like its aimed at improving the system and giving disabled people more opportunities to work. 

    We should be aware that the media bias in this country despite MSN being centrist is in the main going to (for now at least) back the government.

    One things for sure as said previously. Who would you trust more as regards looking after the disabled? The Tories or Labour?  Having worked for the Tories in a previous life. Trust me. They do not care about the disabled, poor or the working class. 
  • Andi66
    Andi66 Online Community Member Posts: 905 Championing
    Labour have brought out a manifesto for disabled people, called breaking down barriers for disabled people. It's online 
  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    Andi66 said:
    Labour have brought out a manifesto for disabled people, called breaking down barriers for disabled people. It's online 
    That's not new, it's from Dec 2019.https://labour.org.uk/wp-content/uploads/2019/12/13130_19-Breaking-down-barriers-easy-read-manifesto.pdf I can't see a date on that but if you google it you can see dates next to them. 
  • Meg24
    Meg24 Online Community Member Posts: 390 Trailblazing
    edited May 2024
    I've said before on this issue, the Tory plans would kill me, Labour can't be worse than that...

    I did well under the last Labour government, got tax credits & help from Sure Start, my daughter got EMA & a good university grant. I might feel as pessimistic as many about what this current version of Labour might do, but if I had to bet it all - and I do - I'm betting my life on Labour.
  • Andi66
    Andi66 Online Community Member Posts: 905 Championing
    Mine too, my condition is life long one is chronic and won't get better.
    I have just filled and emailed that 39 questionnaire green paper. 
  • Middleton
    Middleton Online Community Member Posts: 258 Empowering
    🤔
  • Meg24
    Meg24 Online Community Member Posts: 390 Trailblazing
    edited May 2024
    I think they'd find if they asked, that we all *want to work. Who wants to be too ill to fulfill their potential? I think we need a decent level of UBI, for life once they've established your needs. Then give support to those who are able and willing to try some work. Personally I am never going to be able to do anything other than maybe occasionally sell some crafts, as long as I don't have to deal directly with people. It wouldn't be regular tho, but I'd be ok with them knocking off some money if I did, I would like to earn my own money and not be beholden to others, anyone in their right mind would! It's the Tories punitive and suspicious system that has us trapped, not our disabilities.
  • KG100
    KG100 Online Community Member Posts: 276 Empowering
    I think Labour will also look into reforming PIP and other benefits but perhaps not as much as the Tories.
    Whoever gets in, things will change, and not for the better !!
  • Bingo
    Bingo Online Community Member Posts: 74 Contributor
    ElizaRose said:
    Bingo said:
    ElizaRose said:
    I just saw an article on MSN from The i saying "Labour to target job centres and PIP assessments to get disabled people into work". It goes on to say "Alison McGovern acknowledged that fixing the welfare system would need "big changes" if Labour got into power." This is all so distressing. I am shaking like a leaf!

    Is this what you read?  https://www.msn.com/en-ie/news/other/labour-to-target-job-centres-and-pip-assessments-to-get-disabled-people-into-work/ar-AA1o0VZw

    I don't necessarily think this is Labour taking aim at PIP and disabled people the way the Tories are or would if they got the chance. It sounds more like its aimed at improving the system and giving disabled people more opportunities to work. 

    We should be aware that the media bias in this country despite MSN being centrist is in the main going to (for now at least) back the government.

    One things for sure as said previously. Who would you trust more as regards looking after the disabled? The Tories or Labour?  Having worked for the Tories in a previous life. Trust me. They do not care about the disabled, poor or the working class. 
    That's interesting that you used to work for the Tories so have first hand experience of their attitudes towards the poor, disabled and working classes. Hopefully Labour will be more about improving rather than punishing. It's just hard when you see these articles out of the blue as I constantly feel on high alert, panic mode these days.

    It was a long time ago in the 90s.  I met some high profile MPs though.  They were a completely different party to what they are now (which is much worse) but even then I saw what many of them really were like. Pretty horrible. They always reminded me of the tale of the Scorpion and the frog. 

    "A scorpion asks a frog to carry it across a river. The frog hesitates, afraid of being stung, but the scorpion argues that if it did so, they would both drown. Considering this, the frog agrees, but midway across the river the scorpion does indeed sting the frog, dooming them both. When the frog asks the scorpion why, the scorpion replies that its my nature, its what I do" 
  • martymart
    martymart Online Community Member Posts: 30 Contributor
    I have signed the petition and hope it works as deemed. 
    I  taken aback of the ideology from the present Prime Minister- does he not know what people have endured throughout dealings with DWP re:PIP and the negativity which is imposed on individual people where having to let someone unknown your personal information. Yes I am registered disabled due to bilateral severe hearing loss, following severe Otis media of which PTSD, anxiety including social anxiety, depression and worse Tinnitus and Hypercusis following the lack of support with health and treatment and how treated at work only two years ago when had to leave as they treated me with disgust, even following advice from DWP workplace manager. 
    Sorry for saying above but my life is again in turmoil regarding this suggestion, please don’t panic I am receiving mental health support for cbt which have just started following a long wait 🙂
  • Rosie_Scope
    Rosie_Scope Posts: 5,460 Scope Online Community Coordinator
    Thanks for sharing @rubin16, sounds like your MP is quite understanding :)