Pip psoriatic arthritis

shelby40
shelby40 Online Community Member Posts: 35 Connected

has anybody been awarded pip for psoriatic arthritis

Comments

  • chiarieds
    chiarieds Online Community Member Posts: 16,760 Championing

    Hi @shelby40 - PIP isn't based on an actual diagnosis (as everyone is affected differently), rather how this affects some activities of daily living & your mobility. Here's a link worth reading: https://www.gov.uk/government/publications/personal-independence-payment-assessment-guide-for-assessment-providers/pip-assessment-guide-part-2-the-assessment-criteria

  • Jimm_Alumni
    Jimm_Alumni Scope alumni Posts: 5,717 Championing

    Hi @shelby40, as chiarieds mentioned you don't actually need a diagnosis to receive PIP. You just need to fill out the PIP form, answering how your daily living and mobility are affected. This is so people who don't have a diagnosis yet can still get help, as sometimes getting a diagnosis can take many years.

    If you have anymore questions about PIP please do ask away 😊

  • Agulu
    Agulu Online Community Member Posts: 142 Empowering

    I have

  • shelby40
    shelby40 Online Community Member Posts: 35 Connected

    I applied for pip last year write down how things effect me also suffer depression anxiety I was awarded standard but nothing for mobility explained how I felt and how the walking was effecting me been back to doctors fair few times and they basically told me over counter painkillers so I’ve finally seen a rheumatologist 3wks ago to be told I have psoriatic arthritis and some bloods which were taking 2.5years had inflammation and I wasn’t told by gp just that it was all ok … I’ve had days where I’ve not be able to get out of bed the pain has been that bad it’s been horrendous I’m not a person to keep going and going if they say no then I don’t have the right in me to keep going I have a 5 year old also 3 granddaughters and I feel my 5 year old misses out on so much because it’s to painful to go to that theme park to go walk down to the park which is only 5-10mins walk from our house I’m only 41

  • Rachel_Scope
    Rachel_Scope Posts: 1,649 Scope Online Community Coordinator

    Hi @shelby40.

    I'm so glad you've been diagnosed finally. I've been through something very similar where it took 18 months for the doctors to listen to me and refer me to a Rheumatologist who then diagnosed me with Rheumatoid Arthritis. Are you on a treatment plan now?

    I can completely sympathise with how you feel about not being able to do certain things. I have a teenage son and I'm pregnant and I'm already worrying about doing things for the baby. We need to remind ourselves that we do what we can. The pain isn't our fault and we shouldn't let it consume us. I know that's much easier said than done, especially on really bad days. The main thing is being there for your children and granddaughters, not about how much you do with them. Do you have a partner to help you? Kids love crafting stuff and if you felt able to do that there are loads of ideas online 😊

  • shelby40
    shelby40 Online Community Member Posts: 35 Connected

    its just me and 2 kids at home now my eldest two have their own homes and families the lad is 17 which does help a fair bit but I don’t want him to miss out on going off with his mates or his career which he has been going since he was 4 all he’s wanted to do is be a joiner having his own business he’s in collage and doing apprenticeship my parents aren’t able to help their in their 70s and my dad is my mums full time carer as she has copd house bound oxygen 24/7,just feel at the moment it’s all ok having the diagnoses but what help could I get I’m so miffed off even getting in and out the bath is a struggle to even stand a cook a meal is painful I feel so useless and I’ve been a very active person I don’t even go shopping I do online and make sure my sons at home to help with it I’ve got a specialist nurse from rheumatology phoning me Friday not actually sure what it is also waiting for another podiatry appointment as he said before the rheumatologist appointment I had I had planter fascisa not sure how you spell it he made me stand on my tip toes unaided and I couldn’t do it said muscles were very very weak everything is just all a blurr really I’m worried about this nurse phoning as I’m not sure why she is phoning I was also given a steroid injection 3wks ago x

  • Rachel_Scope
    Rachel_Scope Posts: 1,649 Scope Online Community Coordinator

    It's really tough not being able to be as independent as you want. I'm hopeful that now you've been diagnosed they can get you on a treatment plan and you can gain back some independence. I forget what appointments are for all the time so don't worry about not knowing why the nurse is phoning, they'll explain it for you 😊 Did the steroid injection ease the pain at all?

    Did you appeal your PIP decision last year?

  • shelby40
    shelby40 Online Community Member Posts: 35 Connected

    I asked them to look at 2 questions again as they had put something totally opposite to what I said also the doctor didn’t help me with the moving about so I never carried on with that part I had a telephone assessment last year anyway I was awarded standard rate only for daily even though I told them I needed help washing my hair and can’t lean over as my spine isn’t very good not sure if that’s because I’ve had 4 c sections and not sure if needle they out it has damaged my back in anyway I totally feel I’m falling apart but I feel as if I’m jsut complaining all the time x

  • shelby40
    shelby40 Online Community Member Posts: 35 Connected

    got my treatment plan I’ve been given Sulfazaline tablets anyone else had these?

  • shelby40
    shelby40 Online Community Member Posts: 35 Connected

    Sulfasalazine not sure how you spell it 🤦🏼‍♀️

  • Agulu
    Agulu Online Community Member Posts: 142 Empowering

    I have methotrexate and cosentyx,in injections both But it helped me

  • shelby40
    shelby40 Online Community Member Posts: 35 Connected

    I would rather have injections as I’m not good with taking tablets but they said side effects can be severe on these in just hoping I don’t get any as don’t need it along side feeling like I am

  • Agulu
    Agulu Online Community Member Posts: 142 Empowering

    Well, I don't have any more. I've been taking Methotrexate for 12 years and the second one for about five years now.and he helped me a lot because I couldn't walk