Chronic vertigo / vomiting

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catman60
catman60 Online Community Member Posts: 8 Connected
edited August 2024 in Everyday life

hi my name is Chris and I have meniers.

I have had three attacks of chronic vertigo/vomiting in two months. I’m worried about my job and life in general now. How do people cope with this.

One attack at work and two at home. My worry is how to deal with this if out and about, as I can’t stand/walk when this happen. Any advice would be appreciated,

Thank you

Chris

Comments

  • onedayatatime
    onedayatatime Online Community Member Posts: 239 Empowering

    Hello @catman60 . I personally don't have any experience of vertigo, though this was something my mother would experience regularly. These episodes would come on quiet suddenly and as you've experienced, would have her vomiting and bedridden for several days at a time. Unfortunately, her GP didn't do any investigation into the cause but would frequently prescribe tablets that I think were equivalent to travel sickness pills. Even so, these would take a while to have any effect.

    The frequent episodes you are experiencing must be extremely unpleasant.

    Hopefully someone here will be able to offer you advice as to coping with these unpleasant symptoms and how to deal with these frequent episodes.

    I"m following your post with interest.

  • Rosie_Scope
    Rosie_Scope Posts: 6,037 Scope Online Community Coordinator

    Hi @catman60, sorry to hear you're having such a hard time with this. A family friend has Meniere's, it can be really debilitating. I'm afraid I don't have any experience with it myself, but I just wanted to say hello and welcome you to the community. I hope some of our members can share what's worked for them 😊

    Has your GP or specialist been helpful with any treatment or coping strategies?

  • catman60
    catman60 Online Community Member Posts: 8 Connected
    https://forum.scope.org.uk/discussion/comment/896389#Comment_896389

    awaiting an appointment with ENT, hope it comes soon. Thanks for your support

  • catman60
    catman60 Online Community Member Posts: 8 Connected

    Thanks for your support. It’s a horrible condition that no one deserves. Your poor mother bless. It’s so debilitating. Worry so much that work will get rid of me soon.

  • Jimm_Alumni
    Jimm_Alumni Scope alumni Posts: 5,717 Championing

    Hey @catman60, I'm wondering if you've also spoken to your work about this at all? If you have something in writing informing them that you are having these medical difficulties that can possibly help you get adjustments

  • catman60
    catman60 Online Community Member Posts: 8 Connected
    https://forum.scope.org.uk/discussion/comment/898585#Comment_898585

    hi Jim

    I’m going to speak to them when I see a ENT specialist. I work in industry on the shop floor, where there is danger, so really worried. Watch this space.

    Thanks for your post.

  • catman60
    catman60 Online Community Member Posts: 8 Connected

    hi friends.

    Just been back to see doctor as I’ve been told there is a one year waiting list to see a specialist ENT on NHS. Yet I read prompt treatment can help stop total hearing loss with Meniers disease. Now on Sertraline. Our health system is on its knees.

  • Rosie_Scope
    Rosie_Scope Posts: 6,037 Scope Online Community Coordinator

    It's incredibly frustrating @catman60, especially when your condition has the possibility to deteriorate in the meantime. The health service really is struggling in so many places. Fingers crossed you get seen sooner than a year and everything stays stable for you

  • wonkydaze
    wonkydaze Online Community Member Posts: 35 Connected

    Hi, I have vertigo, hearing loss, tinnitus and poor balance, mine has been attributed to my MS. I was really lucky to get on a trial where I was treated with vestibular rehabilitation. It was tough going, especially the visual retraining as looking at stripes and shaking my head makes me so nauseous. I would look for these training videos on YouTube. I had to stand on a soft cushion and used my son's vr headset but that wasn't really necessary if you have a big screen. The best thing for me was treatment for the lack of movement in my neck and tension in my jaw and shoulders which can trigger the nerve that controls all of this stuff. Please try and get your GP to refer you to a specialist. I'm no longer on the trial and was told that the normal physio would be able to help but they just told me to rest and wait it out. I hope you find some relief, try and keep hydrated and eat small amounts frequently to keep your blood sugar level.

  • onedayatatime
    onedayatatime Online Community Member Posts: 239 Empowering

    Oh wow @catman60 that's an incredibly long wait! Can anyone explain to me what exactly the Choose and Book NHS system is or was? Is it called e-Referral or something now? Does it still exist? I thought it was meant to give the patient options of different hospitals to be seen by specialists outside of their local area? I distinctly remember being sent a referral number by my GP to book to see a consultant and going on a website or NHS app where I was given a choice of several hospitals. It gave a list of hospitals, including those outside of my area, with appointment dates, some of which were months away but some relatively soon if prepared to travel. I really don't understand how the NHS, GPs and everything works anymore. 😔 But surely @catman60 can't be expected to wait that long! Do you know where this ENT specialist is located @catman60 ? Have you been placed on the waiting list and are you able to phone to check for cancellations? I'm so sorry to ramble on and I really don't mean to be raising questions, but it's ridiculous the length of time you're being expected to wait to see someone.

  • catman60
    catman60 Online Community Member Posts: 8 Connected
    https://forum.scope.org.uk/discussion/comment/902238#Comment_902238

    thanks for the support

  • catman60
    catman60 Online Community Member Posts: 8 Connected

    Hi

    I’ve tried speeding things up by phoning the appointment line. They told me there are people still waiting from Sept 23 to be looked at. The UK National Health Service, is the worst I’ve known in all my years. It’s so stressful knowing I’ve all that time to be looked at and basically have to suffer.

    Thanks for your reply and support

  • frocktopus
    frocktopus Online Community Member Posts: 4 Connected

    I'm so sorry mate, I have vertigo from labyrinthitis and it's horrible!

    Thing I can think thatve helped me (ignore any you've already tried obviously)

    Upped my betahistine tablets (serc) to maximus dose (drs seem to give out low doses for it, I think I was on 16mg 3x a day at one point, but double check with a pharmacist because they was a bit ago and my memory is hazy.

    I saw a private physio who did a manoeuvre that moved the crystals in my ears, it was about £60

    Also private ent appointment was way cheaper than I thought at £70

    My eustachian tubes are blocked so started betnesol nasal drops each nose every night, and popping my ears with nose pinched blowing (will only be helpful if you have allergies or eustachian tube dysfunction I think)

    Really hope they stop for you. Big solidarity 💜

  • catman60
    catman60 Online Community Member Posts: 8 Connected

    now on Sertraline, as my anxiety is through the roof, however I’ve read this drug can help Meniers.

    Watch this space.

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