Hi, my name is edmundo!

edmundo
edmundo Online Community Member Posts: 3 Listener
edited November 2024 in Talk about your impairment

I’m 41 years old and I have mild cerebral palsy.

Up to the age of 11 I could walk and run unaided, at this point I developed generalised Dystonia and although I was still able to walk shorter distances unaided I started using a wheelchair for longer distances. I attended university, live independently and work full hours as a Software Engineer.

During the COVID years I was unable swim (my main form of exercise). Although going back to it subsequently my walking has rapidly deteriorated to the point where now I am only walking with sticks or furniture cruising. A physio noticed about 18 months ago that my right leg was shorter than my leg (currently the leg length discrepancy is significant).

Following an X-Ray which showed a “chronic dislocation of right hip” I had an initial consultation with a surgeon who said that a total hip replacement for the right hip was an option and explained that both my hips were


Has anyone here had a THR operation who might be prepared to share their experiences and discuss hospitals and surgeons? Also, the pre/post op exercises and rehab are very involved & intensive so any advice I can get about those would be gratefully received.

Comments

  • Sandy_123
    Sandy_123 Scope Member Posts: 63,129 Championing

    Hi @edmundo welcome to the forum, it was lucky the physiotherapist noticed your condition. I presume most members have had a hip replacement on here. Do you know when you will be having the op.

  • Jimm_Alumni
    Jimm_Alumni Scope alumni Posts: 5,713 Championing

    Hey @edmundo, welcome to the community 😊 I hope we can help and maybe reassure you about this. I haven't had personal experience but my (to be) mother in law has had hip replacement surgery. It was difficult at first of course, recovery takes time. The exercises are a lot but they're important, because you need to strengthen the muscles and the joint after the lack of use and operation.

    Before the surgery she could barely walk the 10 steps to her car. Now she power walks around her local area daily and hasn't had issues in years. It really made her life a lot better.

  • edmundo
    edmundo Online Community Member Posts: 3 Listener

    I haven’t got a date, just assessing options at the moment

  • edmundo
    edmundo Online Community Member Posts: 3 Listener

    Is there a way I can make this thread private so you need to be logged in to see it? I thought I was posting to a private community but I can see it when logged out

  • Albus_Scope
    Albus_Scope Posts: 11,423 Scope Online Community Coordinator

    Hi @edmundo and welcome.

    All discussions on the community are public, which is why we suggest usernames are always anonymous. This is so people can search the community, so hopefully they can get their questions answered quickly.

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