Hello, when the LCWRA for change is 'day to day life cannot be managed', what does that mean?
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Your son and I sound similar, there's some with ASD that don't like the term "high functioning," but I often do use this myself, as I can manage independently for the most-part, but when things do start to get on top of me and change, it spirals and I will have massive meltdowns, and I'm talking screaming at the top of my lungs meltdown, and that won't get better unless I get left alone.
I am like your son though where I can't keep track of multiple conversations, or when something sporadic happens it can flip me out — but again, it depends on how I'm feeling and what the situation is.
Although, yes, when there are too many demands, I can start to feel the burnout happen — I start to stim, flap my hands, muscle tension and headaches. I work in computers, and the office environment I found extremely hard to get into after Covid. To be honest with you there's been workplace bullying and harassment going on in my old work and that's why I'm on the sick — to be honest with you, it's looking like it's going to a Tribunal, so you should now be able to tell why I'm not coping and I have to manage my Union as well, and my Mum is helping me stay calm.
I did live away actually, far from Mum, and had a girlfriend, but she had dumped me and described me as too intense, which sucked, although I must admit there were problems on both sides, I ultimately think she just didn't want to deal with something with a bit more needs than an able-bodied person, and she had enough in the end, but I've learned a lot from that. Although, I do miss her.
The office though, yeah, people are annoying — perfumes, noise, bangs. I much prefer to do a job at home where there's none of that and I can stim in my own room without holding it in which makes me concentrate less, because I'm busting inside and need to do it. Very difficult.
My Mum or my ex girlfriend used to calm me down, and I used to phone my Mum when I was away, but I had to come home because of the bullying, but it was very, very bad bullying. It's gone so bad it's probably going to court.
I found 37.5 hours a lot for me though as well because of my condition, so doing some part time work would be better and staying on LCWRA. I'm afraid to say that I've had a lot of trauma, and I don't feel that I think as well as I used to due to the burnout and the bullying. It has shattered me.
I'm so sorry for talking too much if I am.
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I've pretty much been constructively dismissed for all intents and purposes. That's why I'm sort of curious if I do a job with less hours and maybe move again but still have Mum helping me on the phone in a very routined job at home, whether I could stay on LCWRA… I personally don't see why not, as work without a routine will eventually spin me out.
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Also yes people are annoying, and I think all humans think that, until you find someone that is similar to you.
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Oh and strategies that help me cope? Well, removing myself from the situation and taking deep breaths really. Mum has calmed me down a ton too. Although it has been difficult. I do write my thoughts down too, chuck it away, although not much is really working right now.
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