Hi, my name is DuckyYellow24! Assistive stretches for my son, anyone had a similar experience?

DuckyYellow24
DuckyYellow24 Online Community Member Posts: 2 Listener
edited December 17 in Everyday life

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  • DuckyYellow24
    DuckyYellow24 Online Community Member Posts: 2 Listener

    My 26 year old son is transitioning into Independent Living soon. I do daily assisted passive stretches with him, but our social worker says this will not be provided when he moves out. I asked our orthopaedic consultant if he could write a letter of support as 2 years ago, they suggested his support worker be trained to do the stretches with him, as he won’t get full range if he does them himself. The Consultant is now saying the research is ambivalent about their value and won’t support. I’m concerned that this stance is about driving down cost, because the research doesn’t come down strongly for or against, from what I can see and says more research is needed. I am not going to throw his mobility under a bus now. Adults with CP report better function and more comfort after doing stretches, but apparent this isn’t a good enough argument for Adult Social Care.
    I am convinced the stretches have maintained his range of movement and prevented surgery. Has anyone here got any suggestions or are facing the same situation?