FOF

Does anyone have experience of their child going into foster care or of being in foster care themselves? Especially as a disabled child?

Hi, My son is year 8 with ASD & ADHD with mental health issues since July 2025. School performance & SEN provision has not been adequate and curriculum content concerning. I am deciding whether to homeschool and wondered if you can give me some advice of your own journey? My son doesn’t have an EHCP. Don’t have any…

I need desperate help for my grandson. He has been diagnosed with autism (high complex needs) and is currently waiting for a diagnosis of ADHD. He was non verbal but although he can't hold a conversation, he can tell you what he wants and needs. On one hand he is the most loving and caring boy but he has a violent side,…

17yr old with AUDHD, anxiety, depression.. starting to be a nightmare to live with, he’s struggling mentally & emotionally and so am I, I’m walking on egg shells so I don’t upset him. mum exhausted as been on my own with him for 15yrs.

Hello I have a 9 year old grandson he has autism I don't know how to help him he doesn't like leaving the flat all he wants to do is stay in his pjs on his phone I have tried to talk to him but he won't talk and tell us what's wrong is there any advice you can give me please my daughter is a single parent

I have a son called Finlay who is two and has global developmental delay. I am thinking that he may be autistic but we wouldn’t know until he’s older about that. He stims a lot, he cannot speak or walk yet but bum shuffles everywhere to get himself about. He’s very funny and babbles all the time, he says mama and dada and…

Good afternoon all, I am new here, I'm a single mum with my autistic son who is nearly 4 yrs old, he's become increasingly difficult outdoors, i tried to let him run off some steam at a local park, early in the morning so the park was fairly quiet, and my son would not leave, kicked and screamed and was hurting himself and…

Hi, has anyone recently experienced the PIP telephone assessment for a 16 year-old moving from DLA to PIP? I've been informed by an assessor at Capita that my child will have to attend the telephone assessment with me (the appointee). This will be extremely distressing for my child (diagnosed with autism), the conversation…

Hello to everyone. Dear forum members please help me. I am looking for some advice regarding my son, who is currently in Year 11 and has an EHCP. He would like to continue to a mainstream school Sixth Form and study A-levels.I am worried about whether having an EHCP could affect his chances of being accepted into a…

Hello automatic review forms came out as son turned 5, DLA received them back 9th march. Can anyone advise of current wait times for a decision?

I am just after some advise, we are considering home schooling our boys for secondary school as the local offer is very limited. The LA say if we do they would no longer be supported with SALT and OT. Does anyone know if this is correct? Both have OT and SALT as part of there EHCP.

hi everyone, I’m just wondering if anyone thinks this is enough supporting evidence from school(in blue) he’s obviously masking quite a bit in school.

My 18 month old grandson has a mild(ish) club foot. It is now causing him to trip up constantly and his mum doesn’t like him walking unless he is on grass or carpet. He has never seen a doctor about it and has not had any visits from the health visitor. He needs help. What is the next step we should take to see a…

HI i have a 16 year old non verbal autistic daughter with complex needs. Tonight is her 2nd night away at residential school. I so miss her and as shes never been away for more than 2 nights restbyte i fret she is now realising that she should come home soon and will become upset and anxious when shes starts pointing at…

Hello all. I'm new here. I have a 10-year-old daughter who's autistic and has a severe learning disability. I'm struggling to get a learning disability diagnosis for her when her disability is 100% obvious. I'm looking for advise about getting a diagnosis for my daughter, please. My daughter was diagnosed with autism when…

Hi ,I'm just wondering if anyone has any good links or advice on where or how to start helping our cp/asc teen get involved in a hobbie , they have been in autistic burnout for almost a year and not at school due to this so lost any peer support or any feelings of worth , they currently have showed an interest in formula 1…

Hello, I would like to share a little about what has happened in recent months with my son's benefits. My son is on the autism spectrum. He was diagnosed when he was 2 and a half years old. We applied for DLA, which was accepted and he was given middle rate. Then I applied for carer allowance, and it was the same. My son…

Good morning am looking for advice I applied for dla for my little girl 14/02/2024 to be told they didn’t make a decision on my everdance they went by the booklet to go to mr told no again now I have a tribunal the 8/09/2025 am really scared my 11 year old daughter as undergone 7 major operations in 4 years on perthes an…

Hi, I am looking for support or advice, my son attends an SEN college he has Autism and communication difficulties likened to Selective Mutism and toileting problems and was using minibus travel that was awarded but due to issues with him feeling threatened with other children talking at him, toileting issues due to…

hi guys I’m new to this so please forgive me if I do any thing wrong. My name is miv and my 15 year old daughter has just been diagnosed with adhd. She believes that she is entitled pip or whatever. Could some one please let me know if this is true and if so how to apply thanks for now guys xx

Hi,my daughter has quite a few issues as cerable palsy on autistic spectrum global delay no danger awareness!shes only on low mobility which i thinks wrong .

My daughter has been home schooled since last October,I've manged to get her an appointment with a mental health worker.Do you think they can help me to get her into a smaller pupil size school with children that also suffer with what she suffers?

Hi all, Ive got a 12 Yr old who we recently started to homeschool. The struggles are there, small upsetting events cam lead to meltdowns and larger issues can be explosive meltdowns. I see adhd as a super power just need to understand how best to help him. Fpr instance teaching him to boil an egg because it firstly fell on…

hi I applied for child disability payment for my son 11 weeks ago and I’m still awaiting a decision. How long did it take you to hear back? he’s away to be one in three weeks. I’m also wondering if we can apply for the UC side of it too and how is that affected if myself and his father are both working? Thanks in advance

Hello everyone! I'm new and posting here for some advice. I work in a UK setting which provides children's holiday clubs. We have some children who are autistic with a PDA profile who would like to attend. Among other adjustments their parents requested that they use a completely different software to the one planned and…

I have joined for my 18 year old daughter. I am her full time carer but eventually she wants to be living independently of me. She is a full time powerchair user. We find it very hard to find out any information about what will be available for her in the future in terms of housing/care/access to work etc and would welcome…

Good afternoon all Hope all is well. Im here because im on day 2 of summer holidays and im struggling with my adhd and autism daughter already! There seems to be no support for me coping/managing her behaviour and i feel overwhelmed. How we all coping? Thanks

I'm a mum of 2. I have taken the leap and de-registered my 13yo son from mainstream this week to homeschool. My gut was telling me it was the right thing and already I have seen an improvement. My son is known ASC and we are on the pathway for ADHD. He had a burnout in 2024 and since then I don't think I have ever seen him…

Looking for advice specifically around oxygen hire, transfers and managing flying for the first time with a complex child please 🙏 Our son is 2 and half , gmfc level 5, immobile, non verbal, with epilepsy, Tof/oa, dystonia, severe gastroesophageal reflux, visually impaired, chronic lung disease, gastro jejunally fed and…

hi every one i am a carer for my daughter aged 13 who has asd anxiety and ebsa and sometimes its very draining and i find it makes my fibro and osteoathritis, and other conditions reaally flare up, wondering if anyone else on here is in the same positiion and any tips for support thanyou