I am not sure where to post. But I don’t know what to do about this and am wondering if anyone has any advice.
I have been seen now by 8 different neurologists. The last, was a Movement Specialist who diagnosed me with FND and is forwarding me on to a Functional Neurologist. But it has been almost 2 months and I STILL have not even received a phone call to SET UP the next appointment for the FN doctor.
My symptoms include paralysis and severe muscle spasms. I am losing my ability to walk and talk. And am in a great amount of pain. I am so discouraged. And so frustrated. I have called multiple times and still nothing.
How do I find another specialist. I don’t see any!??? And when I try looking through search I am not finding them. The one I can see on a list is my regular neurologist and she doesn’t know anything about FND.
What am i supposed to do to get seen!??? This is so frustrating. And confusing to me.
(I live in Kansas. US)
i appreciate any advice. Thank you.
