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GP requires permission for me to talk about son's medical needs
Firstly my son does not have CP but many doctors presumed he had, so I am posting here hoping you can help. He has Agenesis of the Corpus Callosum, ACC for short. He is 35 years old and now due to the data protection act we are having trouble with our GP and a rather unhelpful, rude practice manager. He has Epilepsy and…
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Advice for my granddaughter please
Hi I am so frustrated after a visit to Tesco today. Shopping for My 4 year old Twin granddaughters one of whom has quad CP gmfs level 5 visually impaired none verbal and is on a high fat diet as recommended by her dietician at alder hey. She can only eat the smoothest of puréed food and likes a good variety of different…
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Cerebral Palsy Midlands Up and coming online activity plans week beginning 2nd November
Hello everyone Cerebral Palsy Midlands Up and coming online activity plans Monday 2nd November 12pm Chit chat with Mark on Zoom https://us02web.zoom.us/j/89486011859 2pm Matt's Music Monday (LIVE on the CPM Facebook Page) Tuesday 3rd November 11am CPM are making Guy Fawkes – Help John name the Guy Fawkes. If you would like…
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Making dance with my 4 iPads I’m a contemporary with cerebral palsy
https://youtu.be/9XoXNxfFVWo
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Lack of SALT for adults with CP
I will try and be as concise as possible but we are encountering a situation that epitomises everything that is wrong with services (or lack of) for adults with CP.My son is 22, athetoid CP, GMFS 4, no speech (uses AAC) and significant dysphagia so on blended diet, all orally fed.Since becoming an adult he has had…
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SPASMS
Hello!Do spasms get more frequent the older you get? Am 77 and have CP on the left side only and have noticed that they are happening more oftenNorahmay
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What's on This Week with Cerebral Palsy Mids (CPM)
Cerebral Palsy Midlands Up and coming online activity plans Monday 26th October 12pm Chit chat with Mark on Zoom https://us02web.zoom.us/j/84569358239 2pm Matt's Music Monday (LIVE on the CPM Facebook Page) Tuesday 27th October 11am Spooky Ghost Lanterns – Empty Milk Bottles, Glow sticks and Felt tips. Followed by the…
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My Morning Care Routine
https://youtu.be/vAqWm2obl2s
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Looking for Advice on Getting A PEG or Feeding Tube
Hi all, I am a young adult with Athetoid Cerebral Palsy. I am currently looking into having a PEG or Feeding tube in as I am concerned about my calories and fluid intake. My question is, is it my right to request this or not? Also, what would be the best avenue to go down? Thank you so much for your help and advice. :)
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Wheelchair Football
Here at the Wheelchair Football Association (WFA), we believe everyone can play a part in changing lives through the power of football. Powerchair Football is a unique sport that provides opportunities for people with a high level of impairment to access the game of football. It is the only active team participation sport…
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My name is Andrea. i live in Havant, Hampshire.
I have hemiplegia Cerebral Palsy on my left side. I use a walker when I go out anywhere as my balance isn't what it used to be. I am having a lot of falls indoors and have been advised to move to a bigger flat suitable for someone in a wheelchair by a GP. Last week I had a fall outside whilst walking my dog. Is there any…
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The CM Sessions!! Dance music event
Our Social Session Headliner this week is DJ Oli He will be performing a set at 5.50pm on Thursday 22nd October. Oli controls his DJ software with his eyes. His favourite music is dance, pop and a wee bit of rap!! We’ve got our ticket booked – have you? Get your tickets from the link below.…
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Info
Hi all hope everyone is well i feel so stupid posting this but here goes. ive always had problems with muscle stiffness and fatigue especially in my legs. i had 2 operations when I was younger on my achillies tendon to help release the strain and help me walk better or they would of snapped. as I’ve gotten older walking…
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Accessible Inclusive Exercise from Home
Movement and staying active is so important for maintaining our mobility levels and our mental wellbeing. It is also important that we exercise safely and obviously have fun! InclusFit is run by Sam James who is an experienced award-winning fitness instructor, Personal Trainer and a UK Disability Fitness Expert.who lives…
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Travel agents and insurance companies?
Hi everyone we are hoping to take my twin granddaughters 1 of whom who has quad CP GMFS 5 to Cyprus during half term. Can anyone recommend a travel agent who specialises in disabled travel and an insurance company please? We will only need flights and transfer as we are booking a adapted bungalow. Thank you for your help xx
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Getting older with mild cp
I was born with cp and effects my left hand side. I've noticed increasingly that I'm worn out and exhausted just by school run there and back then trying to do my shift I'm struggling to concentrate. I'm worried I'm being selfish or putting to much to my cp but I'm just so tired. I struggle tho to sleep at night as when I…
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This Fridays Carers Group with Healthwatch Birmingham
Attention all carers, parents of adults or children with disabilities. This week in our carers online session, Cerebral Palsy Midlands and Noah’s Star will be welcoming Healthwatch Birmingham and Mark McKinley, Volunteer and Engagement Officer will be joining our zoom meeting to talk to us about their service to our…
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Woman with cerebral palsy removed from Alton Towers ride
A woman with cerebral palsy was left in tears after being publicly removed from a ride at Alton Towers. "Adrenaline junkie" Hannah and her sister Becky Cheetham visited the resort on Monday to celebrate a birthday. Ms Cheetham said the attitude of staff was "disgraceful" and not one person had spoken directly or apologised…
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cerebral palsy and school
hi looking for some advice My grandson has cerebral palsy and is in mainstream school There has been a positive covid test in the year below Do i keep him home and shield him
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Hi, my name is clareaj!
I need advice about my brother Martin. He is 58 years old and has recently been having quite serious health issues which have prevented him from going to work since last November. We have seen a neurologist (private) who said he thought Martin had mild Cerebral Palsy. This fits with all the problems he's had in life, and…
