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Does anyone have any experience of a hip replacement with CP?
Hi I am 36 and have CP effecting my lower limbs.I had both of my Achilles' tendons lengthened in 1987. I live as active life as I can, I have a job which I love, & an active social life. I struggle with increasing pain on a daily basis. I try to stay a cheerful & upbeat as I can! I also have a hereditary hip complaint…
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Does your brother or sister live with Cerebral Palsy?
As it was World Cerebral Palsy Day on 6th of October. Our friends at Young Sibs have provided some information that is helpful and interesting if you have a brother or sister with Cerebral Palsy.
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Ask your questions about Cerebral Palsy and ageing: Q&A with Dr Shah
In the lead up to World Cerebral Palsy Day, we've been adding some extra features to the community over the week. This coming Monday 8 October, we'll be hosting a Question and Answer session with CP and ageing specialist Dr Shah. Find out more and how you can get involved below! My name is Dr Sonali Shah (@DrShah), and I’m…
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Info on cerebrl palsy and other disabilties
Hi, I'm doing some research and I would like to learn some information on the day to day struggles of people who have disabilities such as cerebral palsy or other physical disabilities. Thanks for your help!
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What does Cerebral Palsy awareness day mean to me?
October is always a special month to me. Despite raising
awareness all year round, it is great to have a focus and to have an awareness
day where everyone becomes united in the message they share. Cerebral Palsy affects
everyone differently, yet our shared experiences and similarities can help the
general public to…
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Telling friends about my cp
I am starting college next week and as I will be meeting new people, I was wondering should I tell them about my disability from the start or wait a few weeks. Also what is the best advice you can give to a college student who has cerebral palsy Many thanks
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How to talk about CP to my teenage twin sons
I am wondering how to talk about cp to my teenage twin sons who both have mild cp. It is something they know they have. They are affected differently. I am thinking about them soon becoming young independent men...can anyone share their experiences please?
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My daughter has CP and forgets to go to the toilet. Anyone else in the same situation?
my 7 old daughter has mild cerebral palsy and she keeps soiling herself or forgets to go to the toilet and leaves it to last second, anyone else in the same situation? thank you
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How important do you view nutrition and healthy eating?
Just thought I would start a conversation about nutrition and healthy eating, Would you consider going to see a nutritionist? Do you ever think about the link between food and how it makes you feel? Have you found some foods helpful in managing your condition?
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Noise trigger sensitivity
Anyone else with CP have an extreme sensitivity to sound and have noise triggers? Like loud chewing or slurping? I mean more than getting annoyed by it, like it driving you up a wall. When I was younger I would say I had the same sensitivity, but that it is changing and getting more aggravating with age. I wonder if it has…
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Wheelchair seating and CP
My son currently has a R28 chair he has severe spastic cerebral palsy in his legs he doesn't tolerate the position of the seat or the footplate when he spasms his legs just lock up and he is left with pressure sores. Is there any other seats that may work better for him.
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Caring and CP
Hi im hoping you can help me i am starting soon as a live in carer for a lady with cerebral palsy and need as much info and advice as possible! Is that ok to ask on this community? cheers Diane
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hnpp
need advice on pain relief
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spinal lumbar stenosis
diagnosed with s.l.s. last year...since...had just one pain relief injection which worked great...no more since..was told hospital cannot afford any more ! meanwhile its got worse...living on a mixture of painkillers..i.e. codeine..naproxin..co codamol 500/ 30..weakness getting worse in legs and feet numb...need to wee…
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I think I may have undiagnosed cerebral palsy
Hi so I have always suffered with severe headaches,migraines, since I was young. I have had troubles with my shins when I walk and I cannot run without a lot of pain. I have seen doctors about it over the years, I am 35 now, and the only reason I have been given is shins splints. When I walk my feet stick outwards at the…
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Hi, my name is Dhiraj my 2 years 4 months son have Cerebral Palsy
I would like to know the treatment available for my son suffering from CP in Norwich ,
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4 yr old son with mild CP and tiredness
Hello, Our son was diagnosed with a left hemiplegia when he was 2. He has just started school and we are starting to worry about how tired he seems to be! He's sleeping more and I have had to start using the buggy board again on the 10 minute walk to and from school. Does any one have any advice on anything we can do to…
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What are the most important things that would help you live and work independently?
In response to the NICE draft guidance on Adults with Cerebral Palsy, I would love to hear about what are the biggest barriers that people with CP face when wanting to live and work independently? What changes do think should be made to make it easier for people with CP to live the life they choose?
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Audrey, 35, dx cp past March
Hi! My name is Audrey Gardner! I am very glad to read that I am not the only adult recently diagnosed with cp. My mom first started noticing my developmental delays when I was a toddler. In my first year of life,. She noticed that I reached with one hand and that my hand shook as I tried to feed myself; By the time thar I…
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odd sized shoes to accommodate foot brace
Hi I'm 29 and have cp and a back condition this has put even more strain on my already very painful joints. I have recently been given a footbrace by orthotics to help with ankle rotation on my right foot how ever this has left my right foot a size 7 and my left between a 4/5 aside from looking a bit of a clown with my…
