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Feeling guilty
My son isnearly 14. Was diagnosed with mild cerebral palsy when young but no follow up advised?? being that it was mild i just did what i was told. Now he is having growth spurt and has been in chronic pain for 5 months. Rib cage rotated etc. The penny has finaly dropped that maybe this is cp. He is being seen next week.…
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CP and potentially undiagnosed autism or mental health in adulthood
looking to find out how to get a diagnosis in adulthood on possible CP “side effects” - mild left hemi cp from birth - highly intelligent but can’t always feel feelings: how do you know you like certain colours, are thoughts just made up on the spot, is love an active feeling or just not disliking someone and building up a…
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Boy with CP denied free bus travel to school
Josh Higginbottom aged 10, lives with quadriplegic Cerebral Palsy and is a full-time powerchair user. However, Josh and his mother have been told by Derbyshire County Council that "the distance from your home to the new school measures less than the statutory walking distance, there is no entitlement to assistance with…
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Meeting people and making friends
Hi. I’m Mollie and I have Cerebral Palsy. I’m 18 from Newcastle. I am hoping that this is a way I can talk and meet other people.
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Any ideas? granddaughter has spastic co and a pointy right foot
Hi my granddaughter who is 6 has spastic co her right foot is causing her more problems and is very pointy any ideas please.?
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Residential placement advice
hi. I’m new to the community. My daughter has cerebral palsy and I have been trying to find a residential setting for her for when she leaves National Star College in July. It’s a minefield! I am so disheartened at the lack of provision for young adults. The last thing my daughter wants is to sit in a semi circle watching…
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am wondering whether anyone else has had this happen to them
Hi I am a mum to a 35 year old son who has quadriplegic spastic cerebral palsy due to medical negligence at his birth which cause a brain acquired injury. I am wondering whether anyone else has had this happen. In 2009 the NHS took away his access to continuing health care and his complex care package and we have been left…
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Looking after a friend's child with Cerebral Palsy
Hello all I recently quit my teaching job of 15 years. I now am watching a 15 month old little girl who has CP. I am a long time family friend of the mother and grandmother. It's been one week Im learning about her and suggestions mom has given me. Child cries througout the 5 hours I watch her 3 times a week. She will calm…
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Pain
I suffer with constant pain and no matter that i take my meds each day they dont seem to be doing anything
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Support groups in Bromsgrove
Hi I'm living in Bromsgrove and wondering if there is any support groups or that type of thing? I'm 30 and beginning to struggle with constant falls.
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Face to face for PIP
Hi we have been following the process of my son’s disability benefits turning to PIP post his 16th birthday. I sent in loads of evidence and contacts for health professionals and received a letter advising me that they would be contacting the professionals involved in my son’s care and I know his OT was phoned as she…
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Knee Replacement
Hello. I'm 58 and have cerebral palsy affecting the right side of my body. Thanks to this I need to have a left knee replacement. The hospital where I'm due to have the op know about the cp but I'm just nervous about whether i'll be able to use crutches because of the cp and how this will affect my mobilty. Anyone else gad…
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Wish Fest Cornwall
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Advice about my care situation
I have just joined. I am seeking advice on what to do about my care situation. I am an independent 29 year old woman with CP who reeds 24 hour live in support.. I have an active lifestyle, I am in the process of setting up my own business and I am getting married in July. I basically like to live like any other young woman…
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Just saying hello
I was searching the internet to understand who else is out there with similar circumstances to mine and trying to learn more... and found threads here that relate! So just saying hello. I'm Larissa, I'm 46, I live in the US (California) and I was just dx with CP and autism at age 46... and I've got several other medical…
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What should I do?
Am a single mum and my daughter has cp. Am employed but I find myself struggling raise my daughter since the salary I get i feel isn't enough, i dont even get time to take her for therapy. Am so confused
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Fibromyalga
Please help me if you can. I have fibromyalgia. I was diognised with it nearly 20yrs ago I am in so much pain every single day pain all over my body I have pain in my ankles they swell up and I get stabbing pains in my heels, and shooting pains through the top of my feet from my ankle Doctor just says it's fibro. But it's…
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Newly diagnosed with mild cerebral palsy
Hi, I'm just wondering if anyone could give me some information and advice really. I was diagnosed with mild CP about 3 weeks ago, bit surprising as I am 42! I went to see the neurologist because I have had a problem with headaches/migraines and have had for the last 7 years. I have a permanent headache, it never goes…
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Using Exercise to Overcome Anxiety and Bullies
When Mariana Sfakianakis uploads a 'transformation' photo of herself to social media it has nothing to do with gaining or losing weight. Instead, the 25-year-old from Sydney is showing a little girl who grew up in and out of hospitals, holding crutches and relying on wheelchairs who has blossomed into a strong and fiercely…
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Scoliosis
Son (21, athetoid) just been referred to spinal unit due to fairly rapidly developing scoliosis (and apparent "misalignment" of 2 vertebrae). Probably been gradually worsening over last few years but very noticeable on Xray ...which was actually first spinal one, though hips been done for years. Anyone got any experience…
