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am wondering whether anyone else has had this happen to them

Hi I am a mum to a 35 year old son who has quadriplegic spastic cerebral palsy due to medical negligence at his birth which cause a brain acquired injury. I am wondering whether anyone else has had this happen. In 2009 the NHS took away his access to continuing health care and his complex care package and we have been left without access other than paying privately. It has now ben decided he does meet the criteria fo CHC back dated to 2016.
Replies
Sorry we do not have a category on this but there's some information from the NHS website on continuing healthcare
I hope this helps, please let us know if you have any questions.
Disability Gamechanger - 2019
Good to meet you. I live with spastic quadriplegic CP too. Just so I am clear, has your son had his care package reinstated and backdated?
Specialist Information Officer - Cerebral Palsy
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Specialist Information Officer - Cerebral Palsy
Want to tell us about your experience on the community? Talk to our chatbot and let us know.
We also have a free helpline who may be able to advise you in the process of reclaiming your costs on 0808 800 3333
Specialist Information Officer - Cerebral Palsy
Want to tell us about your experience on the community? Talk to our chatbot and let us know.