Fibromyalga

hunnybunny123

Please help me if you can. I have fibromyalgia. I was diognised with it nearly 20yrs ago  I am in so much pain every single day  pain all over my body  I have pain in my ankles  they swell up and I get stabbing pains in my heels, and shooting pains through the top of my feet from my ankle  Doctor just says it's fibro. But it's getting so painful to walk now. Is there anything you think I can do ? 

Ami2301

Hi @hunnybunny123 Sorry to hear you are in a lot of pain! Have you consulted a different GP for a second opinion?

pixie61

Hi, I have fibro & Rheumatoid disease. Was wondering if you’ve ever had blood tests done. RA & Fibro feel more or less the same, except RA is degenerative & Fibro isn’t. I’d also ask to be referred to a Rheumatologist. Hope you get some help soon, 20 years is a long time to suffer without much help & support from the medical profession xx

hunnybunny123

Seen 3 different doctors, as soon as I mentioned anyt they just tell me there is nothing can be done for me except pain meds  I even changed my doctors  I can't sleep I'm awake every night by  2 30. I sleep in a recliner chair in my front room  so I don't disturb my hubby  he works 12 hr shifts up at 5 not home till 6.30pm  S he is 64, and gets really tired so needs his sleep. I've been sleeping I my chair for over a Yr think probably nearly 2. I've applied for a 2 bed flat or Bungalow. But council says that my needs are not enough for me to have a bedroom of my own  ?

hunnybunny123

I've had blood tests done and I have had a x-ray. They said I have osteoarthritis in my knees. But obviously as they keep telling me fibro doesn't show up in blood tests  I just get so low  Im sure there is something else going on with my ankles  I have to wear loose socks otherwise they cut into them  And one size bigger in shoes  

pixie61

I’m sorry to hear this, the medical profession can be cruel & heartless & I wonder why they do the job they do. Clearly devoid of any sympathy or empathy. Very often my rheumatologist just tells me it’s fibro, knowing my inflammation markers are raised! It’s soul destroying! Wish I could be of more help! Gentle hugs xx

hunnybunny123

It is. Sometimes I feel very alone, know body seems to understand .. I feel even my family don't believe how much pain I'm in. everyday. ?? Because you don't look disabled people just think your putting it on.. I. America its a known disability  Hugs to you as well ??

Ami2301

Have you considered looking into Fibromyalgia UK - they have a medical pack which can be sent to your GP which enables them to learn more?

hunnybunny123

That sounds like a plan... Thank you. ?

Ami2301

No problem! Other than suggesting to check out our dealing with chronic pain message board, I am not sure what else to suggest. However, I can assure you that whenever you need to talk, we will be here for you

hunnybunny123

Thanks so much for your kind words. I'm waiting to hear back from a occupational therapist  but it's 26 weeks or more to see her. ? Hoping she might be able to help me with getting moved  ? 

Waylay

Sleeping in a chair: Are you raising your feet up? Might help. (My aunt has swollen feet and ankles due to heart probs, and sleeps in a chair. She raises her feet.)

Swollen extremities can be a sign of other issues - can you bring someone with you and ask for a full checkup to make sure?

hunnybunny123

They have checked for heart problems it's all fine  I have my feet raised all the time I'm in my chair  Still doesn't make any difference  ?

CockneyRebel

My feet and ankles swell up, I tried loose socks but didn't make any difference. I now wear pressure stockings similar to the ones you have to prevent DVT when flying. My GP had my measurements taken and had them made on prescription. They are a nightmare to put on but they do work

hunnybunny123

Thanks I'll go and see my doctor again see if she will be able to get me some  Do you wear them all day or just at night ? 

CockneyRebel

I only wear them during the day. I have found that after a few weeks I don't need to wear them every day. The important thing that my nurse told me is the ammount of compression. I tried ordinary DVT stockings from the chemist but they did not help, they were to much compression