-
How do you manage your budget (those with monthly and other payments)
I will at some stage be moving to uc which is monthly, but have pip which is four weekly. I believe uc pays out Monday which gives up numerous Bank Holidays to contend with. I need to try and work out if I am better trying to work out both as every four weeks or both as monthly. So far it's always been two/four weeks and…
-
Medication review, the system that's broken
I wasn't sure where to put this, but it shows again how broken our systems are. I get a yearly medication review, I used to see my gp annually for this because he wanted to see me. They retired/covid and you could simply do this over the phone with the receptionist. "is everything okay" "yes" Review complete! That's…
-
Befriending and being nice to people
Just been watching a few dispatches programmes and there are a lot of lonely people out there aren't there. One thing I did was ignore all the comments that were negative and unsympathetic. Saying they haven't planned for their retirement and only have themselves to blame. I think I am going to make more of an effort to…
-
Cooking, or not. How do you eat?
Although PIP gave me 2 points as I cannot use a cooker. I still said that you do not need a cooker anyway. A meal might have been considered to be meat and two veg. But it's 2024, you can buy and choose to eat healthy or not without cooking the meat on the cooker. The majority of food these days is capable of going in the…
-
Reviews
Sick and tired of companies asking for a review, What do we get out of it, they don't give things away for free so why should we, My Moto Pay me and I will do a review if not go and swing for it lol
-
Do you trust social service
Do you trust social services or do you think the system let us down or that we get lost in the system because a lot of them can be incompetent not doing the job properly
-
White paper ..work coaches to go into gps surgeries
Do we have no privacy ,no rights ..This is concerning
-
Alison McGovern Makes things worse for disabled
-
PIP came back: ZERO points... your advice please
So my PIP came back on Friday, and I'm mildly annoyed. A friend of mine, who in volunteering for CAB, has written over 50 successful PIPS for people, says that this is a fairly generic 'yeah we didn't really think before writing you off' sort of response. Any advice is greatly appreciated. I will post their reply at the…
-
Blood Test Results
Good afternoon everyone. Hope you're all fit and well? I'm sitting here stunned and shocked (is that the same thing? 😝 ) For forty plus years, I've had a serious blood disorder, don't ask me to name it but it has quite a few x's and z's in it lol. And it all started when I was 16 after haemorrhaging and losing my baby at 7…
-
RP stress!
I have RP I don’t have any history of it in my family. They said it could skip generations. But, I have it if I had known I would never of had children the stress of passing it to them is unbearable. I know have 3 grandchildren to add to my stress. Both my children are in their 30s and don’t even wear glasses. Male and…
-
Hi to all
I have a Urology Appointment on Friday at 1.30 in the afternoon after trying to get my Catheter changed 8.5 weeks ago hopefully will solve the problem. Then afterwards I am hopefully going to The School Fair afterwards I just don't understand how they have left it so long to do Amazingblazing628..
-
How difficult is it to get your medical records?
Do I just ring the gp surgery up and ask them for them? Does anyone have the nhs app and have full access to their notes that way? Will I be questioned for asking for them? Ty x
-
Pip assessment
I know I keep posting on here .But I told the assessor I go shopping whith my son and he helps me .But yet it says on the l.W.R.C.A report that I don't go shopping that a family member goes for me . But I nevar told them that I said I go shopping whith my son .So will pip think I'm lying and will they contact l.W.R.C.A im…
-
Diets for primary progressive multiple psoriasis
I I'm simply looking for multiple diets for primary Progressive multiple psoriasis. I need do's and don'ts on what to eat and then preferably how I should prepare each ingredient of ppms requirements to help a body function
-
Needles and Pins
Anyone remember that song? Needles and Pins?.It came into my head this morning and I can't stop humming it.Which song from the past do you like?
-
Proof for PIP
I’m just struggling with what proof I need to send PIP for a change of circumstance, My diagnosis are stroke, osteoarthritis, complex regional pain syndrome, functional neurological disorder, fibromyalgia, dry macular degeneration, hearing aids, protrusions discs C1 C2 C3, protruding discs C4 C5 C6 & C7, plantar fasciitis…
-
Posts
Hi everyone, I havent been well for a while, hence the reason i havent been viewing people's posts. What's going on, I gather certain people are causing havoc, why on earth are we being so cruel to each other, life is bad enough. Please be kind, we are all in the same boat.
-
Travelling to Disneyland Paris - Beware of the Donald Desk of Doom
Disability and Disneyland Paris – The Donald Desk of Doom I took my family to Disneyland Paris for two days... I was told as a disabled person I could secure a 10% discount for myself, a free carer ticket and the children would be full price and we would get queue assistance. All this seemed very fair and generous but I…
-
Continuing Healthcare
I have had a continuing healthcare decision. I tried to appeal the decision. I have been told by the appeals team I cannot appeal the decision because I do not pay for my social care. Is this true? Only people who personally contribute or pay for there social care can appeal a continuing healthcare decision?
