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Supermarkets: the pandemic, and the future for disabled customers
You might have seen that Scope have produced a report highlighting the barriers that disabled consumers have faced in accessing online, delivery, and in-store retail services during the pandemic. You can read the report here on Scope's website. It's quite long, but well worth a read. I've put a summary of some of the key…
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Swimming for disabled
I used to enjoy swimming for pleasure but since my stroke leaving me limited use down left side find it difficult in finding where i can get 1 to 1 help to get started again. My husband took me before lockdown to our local baths just to see how i could cope. The staff there were very friendly and helpful offering any…
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Solving the period problem for disabled people
Paige from Flux Panties talks to us about menstruation and the difficulties some disabled people have in using tampons, pads or reusable menstrual products. Periods are a nuisance for everyone. Whether it’s leaks, stains, cramps, or just that general feeling
of ‘meh’, we’ve all been there. But for disabled people, periods…
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Hi, my name is EllieP! Does anyone have experience of Neurofibromatosis 1 (NF1)?
Hello, I'm pleased to join this forum. I have siblings on Special Guardianship who both have disabilities as a result of a genetic condition Neurofibromatosis (NF1). I'd like to know if there's anyone in this forum with experience around NFI. Thanks in advance.
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Hi I am New to scope and to having a disability really ...?
So my story is I was 36 yrs just had my 4th child (10days postpartum) and I had a SCAD heart attack. Paramedics couldn't believe it thought I was having a panic attack. I was taken to hospital where after tests they believed it was a SCAD spontaneous contrary artery dissection. I fitted the criteria stressed young woman…
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Anyone got a positive experience of using a Sunflower Lanyard? What do you have to do to get one?
I was watching a programme in the week ITV Tonight. Hidden Disabilities. In this episode it mentions the Sunflower Lanyard and the help you can get having one of these Lanyards Has anyone ever used this in a positive way. I am thinking of applying, but I would imagine I have to jump through hoops to get one. This would…
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Lack of sleep due to overactive stoma
Hi, I have a perminent ileostomy due to my crohn's disease and it has been overactive the past few days and has leaked 3 days in a row at night. I've been up since 3am and it has leaked twice this morning. I always seem to have problems with it at night and can't remember the last time I had a full nights sleep.without…
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Posting on behalf of Cerebral Waves
Disclaimer: Includes adult language and themes Hi, it’s Jack, I’ve had cerebral palsy from birth. This causes a tremor and slurred speech. Despite this, I attended mainstream school. This is my first foray into writing rap lyrics and I wanted to see how they were received. https://youtu.be/D3ALlUTt_fk
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Found opportunity
Hello to scope community I found a new opportunity to be come a poet laurel for Coventry City culture I going to apply for the opportunity I will definitely keep you posted on how I get on
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Scared
Well hello everyone what a **** night's sleep I have had in pain and worrying about what I'm going to get told at breast clinic today also waiting on my doctor to ring with blood results I'm so scared ???
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Recently diagnosed with mayasthenia
I have recently been diagnosed with mayasthenia. I am 75 years old. I would like to hear about other peoples experiences.
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Disability Trust HELP
i am emailing you as was suggested by my local citizens advice bureau, i am a married man with two disabled sons and myself and my wife are there carers, one son is 24 and the other son 18 and who would not have the capability to look after themselves when our time is up. and to be quite frank we are in the benefits system…
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Making new friends around Sussex/Surrey areas
Hi all! Is there any support or friendship groups around Sussex/Surrey? I have a condition which effects my mobility and need crutches to walk, also suffer with chronic pain. Would be nice to meet others similar, I found I struggle with my previous friends as I can not do what they do, leaving me to be quite restricted to…
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Is anyone else on dialysis? How do you feel about that?
HI any one else on dialysis? How do you feel about that ?
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Write to your MP regarding £20 Uplift - Retain and Transfer to Legacy Benefits
Just to clarify, I know some people will think this approach might not be the best, but then others might think differently, so please respect that whatever we all decide it is our individual choice. Tori has already agreed through private message I can link to this site and request. If anyone is interested in sending…
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Coping with abusive neighbours
Hello, I've recently moved home and I'm having a few problems with my new next door neighbour. Whenever I go out, they stop what they are doing and stare. They have a lovely garden and sit in it most of the time. I overheard them staying 'that lady is a spastic' a few days ago and yesterday when I went out to the bin, the…
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Reaction to today's release of the National Disability Strategy
The government has today published the much anticipated and delayed National Disability Strategy. What is the National Disability Strategy? The strategy, described as: “the government’s vision to improve the everyday lives of disabled people”, sets out plans to address a variety of areas in which disabled people still face…
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Hi, my name is sharon63! Has anyone had a flare up on ME since having the AstraZeneca vaccine?
Hello All. I wondered if anyone else has had a flare-up of M.E since having the AstraZeneka ??
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It’s time for dementia to be seen as a disability
Beth Britton
is a former carer turned award-winning writer and social care consultant who
specialises in ageing. In this blog she explores her personal experiences of
her father’s dementia and how it progressed over nineteen years. When people living with dementia were granted access to the Blue Badge
car parking scheme in…
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Looking for: adults requiring additional care in hospital beyond that of close family
Could you help? We are looking to speak with any adults who require additional care in hospital that goes beyond that expected from close family members (in terms of basic support and communication), particularly those in circumstances where individuals have complex needs, severe disabilities or lack capacity. If you or…