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Psoriatic arthritis
Hi everyone, I don't know if anyone can help but I have a very odd arthritis which just arrives and completely destroys the joint within a couple of years. I had a hip reconstruction just over a year ago and by the point of surgery my thigh bone was in my pelvis such was the catastrophic damage. All was well for a while…
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Face coverings
Does anyone know what the rules are regarding disability, particularly autism, and having or being exempted from having to wear a face covering on public transport.
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Help with Spinal Stenosis :(
Hi everyone!!! Hoping to find some help and support on the forum and be able to help others. I'm a 33 year old male and in 2017 I was diagnosed with Lumbar Spinal Stenosis. My Doctor has me on Zomorph 12H release tablets which I have to take 2 in the morning and 2 at night. Sadly I am unable to work anymore due to the…
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wearing a mask
Hi a see the new rules coming at nhs staff about wearing a mask here is fact by over 200 doctors world wide ,,,when wearing a mask your reducing your ability to oxygenate,you our increasing your cortisol levels which your stress hormone it suppresses you immune system you get what is called SYMPATHETIC MIMETIC DRIVE you…
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What are the legal issues surrounding installing a camera and filming carers?
Hi guys I’ve had to sign up in unfortunate circumstances. My GF has cerebral palsy and requires care. Unfortunately we’ve noticed money going missing so I’ve decided to instal a camera for when I’m not here. Anyone know the legality of this am I obliged to inform the care company/council. Has anyone else suffered from…
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Weigh gain on meds and unable to shift it
I take Depakote and quietapine and can’t lose weight I am no confiden to go to gym not even a all female and lack the motivation even though it consumes me thoughts everyday just can’t seem to do it dnt know why help plz I need loads help any help even find a gym buddie if that’s such a thing would be excellent
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Autistic and adapting to lockdown
Ben is Autistic and
likes to use social media as a way of giving people an insight into what it’s
like to have Autism. Following the change of routine caused by lockdown, here
are his thoughts and the difficulties he has faced. Guidelines we need to follow Like most people, I'm currently off work and have been
advised to…
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My son is ok
Hi all just to let you know my son has had his operation and he didn't need a stoma, he is really pleased and he's getting on ok.
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Ex pat
I am a disabled ex pat returned to uk are there any more out there who have returned to a different uk from the one we left.Do you know about the transition rule??
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New to Wheelchair, work needs?
Hello, I'm new here and also new to a wheelchair. I work in a global company, with millions of employees across the globe. During my shielding my degenerative spinal and brain condition had deteriorated, and now I have a wheelchair, not fultime, but that will come. I know, as my neurosurgeon has told me, I will be…
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Query regarding the 'one way system' in place in shops
Today, I went down and 'up' aisle, about 10 feet, to get bread. A clerk came over to me and said "sorry, this is a one way system and you're going the wrong way." There were people about and it was embarrassing; I admit I forgot about it being one-way. I just said I was getting bread and walked away. Is it really necessary…
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Thinking About the future.
:) Hi all. I've thinking about the future with regards to independent living. I dont how I would be possible for all those who need a P.A or similar. Perhaps one solution is.... Assistance dogs. They different ones. Thanks to the advice of several people on here. I checked out the Assistance dogs international for uk.…
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Free Online Yoga for Carers
**Funded Yoga Session for Carers of all ages and abilities on Friday 12th June at 10:30am** In partnership with Cerebral Palsy Midlands, Noah’s Star have planned a funded virtual get together for unpaid carers. The session will start with a 30 minute beginners yoga session to encourage positive health and well being. This…
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Life after Cancer treatment
Hello, I’m Caitlin and I’m 19. I was diagnosed with acute myeloid leukaemia back in 2018 and had a donor bone marrow transplant the same year. I had extremely intense treatment and I’m struggling to cope with the side effects and adjust to my new normal. I need the aid of a wheelchair, I’ve lost many friends since I don’t…
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Are there any social groups that meet up over zoom for disabled people
Hi folks, I'm new here and I'm starting to feel a bit isolated because of the lockdown.I was just wondering if there are any social groups of people my age, 20s or 30s that meet up over zoom. I also have a disability, a visual impairment.
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Something i have been thinking about with BLM
Hi all! I have recently joined this forum and would like to ask my fellow community members their thoughts on this: BLM is a truly important issue and is utterly heartbreaking and i am so glad things are being done. it breaks my heart and i just cry when i see how dreadful this world is. i don't physically understand how…
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Broad Independent Treatment Plan?
Morning all, I don't know what to title this, or where to put it on the forum, which is quite fitting for the topic really! :D I feel like I have now been given some DWP lemons in the form of PIP...but still don't have the recipe for lemonade. I've been struggling financially for a while, especially over the last couple of…
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Tips for volunteering as a disabled person
This week, 1st-7th June, is Volunteers' Week. To say thank you to all of our amazing community champions, we are hearing from @emmarenshaw who is sharing her experiences and top tips. The online community would be a very different place without a team of volunteers who work hard to support other disabled people. Hello,…
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Degenerative back pain complicated by EDS and heart arrhythmias
Hi , I am looking for resources, people experiencing similar issues and support to improve my understanding and options in respect of degenerative back pain complicated by EDS and heart arrhythmias
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Carers
My carers come from an agency funded by the government. An aide comes 2 -4 hours a day to help with for cleaning, shopping. My question is this: the agency sends whoever they want never consulting me was to when someone is coming. I get used to an aidd, a relationship is formed, then the carer never comes back. The agency…