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Phrenic nerve palsy
So good to find you guys (despite the circumstances), I came across this forum by chance and after reading your messages I feel confident that I have Phrenic nerve palsy. It gets worse when I lie down and the smallest task gets me winded. I had an emerge visit which tested for Covid-19 (negative), did a chest X-ray (clear)…
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How is cerebral palsy stereotyped or under-represented on screen?
Thank you to Daniel Kay for contributing this guest blog to the community, I hope you all enjoy it :) How is cerebral palsy stereotyped or under-represented on screen?? Media has undergone a seismic transition in a very short
period of time in terms of content and quality. With the advent and rise of Netflix worldwide,…
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Re-adjusting to Socialisation
We are KEEN, a charity with the mission to create, support and promote inclusion. How are you adjusting to returning to normal life? As lockdown measures ease up, we are holding our first Inclusion in Focus Event - a youth panel designed to be an open space for you to voice your experiences during and after COVID-19. Our…
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My Scoliosis story
I have emailed Scope to see if they would share this on the main part of their website and i thought i would share it on here. Have you heard of Scoliosis? Below is my Scoliosis story. My name is Sarah and i am 34 years old. I was born with Scoliosis, which is a curve of the spine. I wore a corset brace for a while, when I…
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thinking podcast for written poetry
Hello to scope community I am thinking of creating a podcast instead of the youtube channel and blog but I find speaking more easier than the other two options my english have grammatical correct I look forward to hearing your views
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Hi, my name is Julie I came across the article Costco and discrimination
Costco has a policy in place that if your exempt from warring a face mask and refuse to put one on you cannot go in the store. Even if you are already a member. I have taken my mask of twice in the shop to catch my breath. Each time the staff pointed me out and told me to put it back on even though there was nobody near…
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Migraines
Hi.... I was diagnosed with rheumatoid arthritis 2 years ago and get so much help from the hospital. But... I’ve had migraines for years lately so bad and no help at all. I feel like I’ve tried everything, my children get upset because mums not well again. The doctor won’t refer me to a specialist because he said as you’ve…
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Am I eligible to stop working because I am on benefit?
This discussion was created from comments split from: Am I eligible to stop working because I am on benefit?.
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Hi I'm sew59! Some of my loved ones have experienced illness after having their coronavirus vaccines
Note from moderator: this post may contain unverified claims regarding side-effects of COVID-19 vaccines. You can find recognised side-effects of the AstraZeneca and Pfizer vaccines on the respective gov.uk pages linked. My three sisters and I have had Astra vaccine my sister and I both had Pfizer on 25th of February of…
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Community kitchen - May edition
Summer salads are here! Tis the season for fresh, crispy salads, with local ingredients coming into
the shops. Now all we need is the sun
(cross fingers). Salads are very 'accommodating’. You can add or subtract ingredients without
too many problems depending on what you have in the fridge. We all have issues
with certain…
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Hi, my name is Supportw! Is there help available for gardening?
GARDEN FUNDING!!! Keen gardener but cant access garden. Funding help required to adapt a garden to make it accessible. Hi has anyone experienced needing to access a garden but being unable to due to being a full time motorised wheelchair user a the garden layout/surface being unsuitable? Council can only contribute so much…
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Has anyone here got low platelets? I've taken my vaccine as yes a bit worried about count dropping
I was wondering anyone on her got low platelets I have taken my vaccine as yes a bit worried about my count dropping
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Fill in a survey to tell the BBC about your experience of covid-19
The BBC is carrying out a survey to understand how covid-19 has affected disabled people in the UK and need your help. Covid-19
has impacted the lives of disabled people disproportionately and the BBC need
your help to better understand the realities faced during this challenging
time. The survey is completely anonymous…
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Reflections on accessibility in a global pandemic
Danielle Spence, blogger at Disabled Danielle, brings us today's guest blog and a personal reflection on what the last year has taught her about accessibility. It might sound silly, but the idea of making my presence known
and truly being seen by society has always terrified me. Before the pandemic,
leaving the house was a…
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COVID Uplift in news
Millions on benefits could get £1,040 back pay as DWP faces High Court over Covid boost The £20 a week boost - which was introduced to support 6million families who have seen their incomes fall since March 2020 - excludes two million people who have not yet switched to Universal Credit
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Scope calls out Government on unlawful decision to exclude disabled fans from pilot mass events
BBC: Clinically vulnerable spectators allowed to attend sport pilot events after guidance change We're glad to see that the Government has seen sense and changed its approach - and hope event organisers follow this updated guidance moving forward. What do you think?
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Searching for some Practical Advice on blood marks and lower leg swelling. Anything I can do?
I earlier placed a post on tinnitus. I am pleased to say it has just about disappeared. Thanks for the advice on that one. Here's another, well a couple really. I suffer from blood marks on the forearms, some of them quite large and they keep coming, when one goes away another appears. Anything I can do? Another is my…
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Any ideas on how to get used to full mask for sleep apnea?
Been diagnosed with sleep apnea got full mask to wear any ideas how to get used to it and get some sleep ????
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Being autistic in a post-lockdown world
This guest post has been written by Cheryl. She has Autism is worried how she will adapt to a post-lockdown world and if she can continue to have adventures with her daughter. It’s
been more than two months since I left my house. Before the COVID-19 lockdown
the world I lived in was a predictable environment. I’m
autistic.…
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Brain AVM
Hi everyone New here but I needed to know if someone’s been through a similar thing as I’m really struggling, at the age of 21 I was diagnosed with an avm back in 2013 and had radio surgery (gamma knife) in 2014 to treat it, unfortunately I suffered quite a lot of trouble post surgery I then developed epilepsy and started…
