Hidradenitis Suppurativa? — Scope | Disability forum
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Hidradenitis Suppurativa?

HollyS28
HollyS28 Member Posts: 1 Listener
Hello, does anyone else suffer with this chronic disease? It’s not very well known and I am trying to find out if I am more at risk of coronavirus as I am still going out to work currently as I am a keyworker. Any advice would be welcome . Thanks so much and hope you are all keeping safe in these difficult times ?
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Comments

  • poppy123456
    poppy123456 Member Posts: 28,397 Disability Gamechanger
    HI and welcome,

    We are not medical professionals and won't be able to give you any advice regarding this.

    If you are one of those that are in the at risk group you will be contacted by your GP. There's currently 1.5 million people being sent a letter, within the next couple of days. If you are not contacted then you won't be in the at risk group.
  • Abdi_Scope
    Abdi_Scope Posts: 229 Pioneering

    Hi @HollyS28 welcome to the online community. It is a difficult time for so many, you may also find the following information useful but we are here to support each other. 

    We have pages which are grouped under particular subject headings - feel free to look around and post your concern or question on those boards. 

    And stay safe

  • krysrsrio2
    krysrsrio2 Member Posts: 4 Listener
    edited May 2021

    Hi, @HollyS28

    My name is Kryss and I want to come out here to help anyone suffering with this terrifying disease. Hidradenitis Supparativa has beeen the worst thing I ever experience in my life. How heartbreaking it is as a 14 year old  when you go to the doctor and the doctor tells you that they have no idea what it is that you have, so they refer you to a dermatologist and then the dermatologist don't know neither so she/he refers you to a surgeon to get it removed. My mom decided to stop going to the doctor because no one ever gave us an answer and it was just a waste of money. I was recommended to a surgeon but I ended up not doing the surgery because it wasn't guaranteed another boil won't grow, so as I got older I did more and more research to find out that I had HS. 

    I was horrified to know that I had this disease because they told me it was long term and that there was no cure. As a teenager I was bullied and terrified because I couldn't wear deodorant because if I did my boil will get worst since it was an open boil bleeding and pus coming out most of the time of the day. My mom use to tell me that it was only a boil and with a hot towel and draining the boil it will get better but once I did that the boil will flare up the next day again. I will cry everyday and I wanted to take my life, It was tiring at this point because the healing part was the hardest part; changing band aids, cleaning it, and constant bathing. This was a tough journey knowing that as a teenager you aren't able to play any sports because you have painful boils all over your body bleeding and pus coming out and your friends looking at you discussed at you. 

    After so many home remedies, antibiotics, pain, and suffering, I am 28 years old now and HS free for about 8 months now. I finally found someone that helped me and my sister who also had HS since 10 years old his website is [Removed by moderator - advertising link], He had HS all his life and he helped me fight HS and I am living my best life now. I am not afraid to get naked in front of my husband, I am not afraid to wear bikini, I am pain free, I don't have blood in my underwear, I don't have blood on my shirt. Also check out his youtube channel called ( HS relief ) where he gets deeper into HS. You're not alone. This is someone who suffered the same pain we have suffered. PLEASE CHECK HIM OUT HE HAS HELPED SO MANY OTHER PEOPLE WITH THIS SAME DISEASE AND HE CAN HELP YOU BE HS FREE TOO! YOU DON'T DESERVE TO LIVE WITH PAIN AND BE ASHAME OF YOUR OWN BODY, WE ALL MATTER AND DESERVE TO LIVE A HAPPY LIFE. GOOD LUCK AND MANY BLESSINGS TO YOU AND YOUR FAMILY.

Brightness

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