-
Eating Disorder Awareness Week - What To Do If I Am Concerned About My Childs Eating Behaviour?
Eating Disorder Awareness Week - Part One Eating Disorder Awareness Week - Part Two As we wrap up this weeks focus, this post is about the steps you can take if you feel like your child has an eating disorder or if you are concerned by your childs eating behaviours. This post also includes where you can find for additional…
-
Social services the relationship has totally broken down.
Owing to historic issues that started when I was a child Social services got it badly wrong, I had one amazing social worker sadly she burned herself out and had to quit, things got worse in the end one social worker actually screamed at my mother who was getting over breast cancer to "get the hell out of the room", My…
-
Please please give me some advice 🙏
Hi guys, I posted on here a few weeks back about my autistic daughter and got lots of advice.. so here goes... My daughter is 10 years old and has several learning difficulties and severe school anxiety. She has a EHCP in place, which is not helping with her anxiety. Every day is a struggle to get her to school and every…
-
Disability Price Tag - Tips and Guidance for Applying for DLA - Parents and Carers
Part Two - Disability Price Tag - DLA Information for Parents and Carers Part Three - Disability Price Tag - Changing from DLA to PIP at 16 This weeks focus is the disability price tag of raising a disabled child so I am going to talk about the different benefits you might be able to claim as a parent. To help you get…
-
Eating Disorder Awareness Week - Introduction For Parents and Carers
Eating Disorder Awareness Week - Part Two Eating Disorder Awareness Week - Part Three This week is Eating Disorders Awareness Week and often the intersection of disability and disordered eating can often go unnoticed but creates unique challenges. This is why we are making it this weeks focus. For many parents of disabled…
-
Exciting Launch Event with Cerebra and Pedal Power
You’re invited to an exciting day of fun, community, and celebration at the Relay Your Way launch event being held at Pedal Power in Cardiff on Saturday 8th March. This free, family-friendly event marks the official public announcement of Relay Your Way. Created by the national children's charity, Cerebra, Relay Your Way…
-
Hi, my name is Chamberlin_scope! I joined this group because I want to meet people like me...
I joined this group because I want to meet people like me who are in similar situations. I am in my early 20s, and my mother had her second stroke in 2013 and has been disabled since. I was 9 when I found her. She is the strongest woman I know. In recent years, things have become really tough for her, both emotionally and…
-
International Epilepsy Day - Support and Signposting for Parents and Carers
As we wrap up our focus on epilepsy this week, I want to provide resources and support for parents of children with epilepsy. This post offers signposting to organizations that can offer further support, information and advice. Epilepsy Action Epilepsy Action provides information, advice and support to people with epilepsy…
-
Hi, my name is Katiemc94! Any advice on pathological demand avoidance?
New here, my son is currently being referred for ADHD and ASD, not sure on the ASD but there is so many over laps the school advice to tick both boxes. He's symptoms have been so much worse the past month. I think this is due to my parenting style has completely changed. I have ADHD so very short fuse and explosive. Since…
-
Hi, my name is cordicole! Any guidance on my son's behaviours?
I have a 7 year old son who I believe may be ASD he is high functioning and school haven't picked up on alot of things, but more symptoms present as he gets older and I am personally finding it hard to navigate some of his behaviours that are not dangerous to others but mentally self harming to himself. Need any help and…
-
Children's Wellbeing and Schools Bill
I'd like to bring your attention to an issue that I have been working on since the 17th of December last year when the government decided to introduce a new bill that could potentially **** parents of their parental rights in certain situations. We approached Steve Broach Specialist Barrister KC when the changes to rights…
-
Hi, my name is NannieAnnx5! I'm hoping I can get some help/ advice to pass on.
I'm hoping I can get some help/ advice to pass on. I have a grandchild who has a disabled mum and has periods of chronic pain, she tries at all costs for him to be aware which has a huge impact on her energy levels. Her little boy is often aware and at such times he becomes emotional, very demanding of her no one else will…
-
International Epilepsy Day - Reflecting on Childhood Experiences with Sara
As part of International Epilepsy Day, this is a conversation with @SaraC_Scope who was diagnosed with epilepsy as a very young child. This interview talks about her childhood experiences, explores the impact of the condition and highlights the positive and supportive role her parents played. We hope this is a helpful read…
-
International Epilepsy Day - What Questions Do You Have? (For Parents & Carers)
It is International Epilepsy Day today and this is a worldwide event dedicated to raising awareness and understanding about epilepsy. It is a little bit different from the well known Purple day as International Epilepsy Day is a collaboration from the International League Against Epilepsy and the International Bureau for…
-
International Day of Education - Inclusive Education
It's International Day of Education today and in this post we will talk about the importance of inclusive education for disabled children and young people. Inclusive education is crucial for disabled children because it creates confidence, empowerment and boosts their self-esteem. Inclusive education is more than just…
-
Hi, my name is Louisemac77!
my son was recently diagnosed with epilepsy
-
Hi, my name is miasmummy24!
hiya everyone, just wanted people to talk to who are in the same boat as me. My beautiful daughter is waiting on a diagnosis for autism, global development delay and sensory processing disorder. Just wanted some advice on how to help her deal with it and how I can help her. Thank you for reading!!
-
Hi, my name is maggines!
Hi everyone. I’m a new member of your community from today. I would like to briefly tell you my story about my son 10 years old with Downs Syndrome and ASD. He was born as a strong and healthy boy with small numbers of DS futures . Genetic tests confirmed that he has Trisomy 21. He was developing very well till he turned…
-
Three year old boy with cerebral palsy running 500m to raise money for charity
Jacob Fallows, a three year old from Devon is running 500m around his school playground in 30 days. Jacob has spastic diaplegia cerebral palsy which affects his legs, but hearing his parents were running to raise money for his local school, he wanted to get involved. Read the full story here Devon News
-
Depression
How do I deal with a depressed Wife/Carer ? She's got a history of depression but I've never seen her so bad before… Any advice please
