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Hi, my name is sophieken! Does anybody have any experience of neurodevelopmental physio
Hello ??
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Who do I speak to about care for a disabled adult after his carer dies ?
I have a very disabled adult brother , he is in his early twenties and requires round the clock care , my mothers health is failing, its only a matter of time before she can either no longer look after him or she will not be here to do the job herself anyway. Who do we turn to ? I will not be able to look after him, I wont…
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Study Higher Accessibility in Higher Education Webinar
My name is Charlotte. I am an Outreach Hub Assistant to the Uni-Connect programme Study Higher. As an organisation, we aim to deliver impartial advice to young people in Oxfordshire, Buckinghamshire, Berkshire and Swindon about their future options in higher education. We also work with under-represented groups in higher…
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My son struggles with communication and spends a lot of time alone. What should I do?
Hi my 8 year old son does not like to go outside and really struggles with communicating with others and likes to be alone a lot. I don’t no what to do should I leave him to sit in a bedroom on his own for hours every day or should I try and force myself and others on him and when he says can you just go should I leave him…
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Hi, my name is broomy!
My husband and I have decided that our autistics , sld, adhd son needs more help than we can give him also he is older now and needs to leave school . The local special needs college has stated that they cannot meet his needs and so we are thinking residential. We are thinking 52 weeks as the la state that they cannot…
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Advice on Carer taking unpaid leave
I need a bit of advice and wondered if anyone on this forum has been in the same situation as me. I have a private carer who gets paid through my direct payments with a payroll company managing her payslips. As she is classified as a private carer and I am her employer and I cannot seek advice through a care agency.My…
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Hi my name fiona
Hi im fiona im new to this site. Im a carer to my 10 year old son who has autism anxiety and ocd. Im hoping to get some advice as my son going through a bad time with his ocd. His is anxiety was high but thats fine so far but his ocd is very high. He keeps asking for wipes so he can wipe is arms and hands. He asks if there…
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Work aren’t very supportive
Hi everyone, I have a 5year old daughter who has asd, life is very challenging and i feel extremely depressed. I’m currently on anti-depressants and ant-anxiety tablets and I’m still really struggling. I have scoliosis myself... I’m really struggling to find a balance between work, being a mum, caring for my daughter, my…
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Hi, my name is Anna_Louise! My daughter has ASD and dyspraxia and needs some help with life skills
Hi I'm the mother to a 17 year old daughter with ASD and dyspraxia. I also have dyspraxia and am sure I have ASD but have never got tested. I'm trying to help her with life skills and am trying to find a course to help because I'm finding it really hard to help her.
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Stressed Disabled Parent
Hi everyone I’m new here, I’m basically on standby for a kidney removal it’s been nearly 3 years of going back and fourth to two different hospitals in taxi as I’ve been advised not to go on public transport. I have a server Autisic daughter who’s lashing out on me, I’m constantly living on painkillers and can’t work. I’ve…
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Hi, my 8 year old son has HSP
My 8 year old son has HSP. His walking is very limited and mainly uses wheelchair. He takes max dose oral baclofen. He’s been offered an ITB pump to help reduce spasticity and make everything a bit easier. Currently weighing up the benefits, versus risks and implications of living with lifelong implant. Would be interested…
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Hi, I'm robnvik! Daughter aged 10 has started her periods and they have sent her off the rails
we have a daughter age 10 and she has started her periods and they have sent her off the rails with psycosis and wondered if anyone has had any history of this she has pvl and cerebral palsy
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housing
im a tenant of a housing association, they have rented the house next to me to a couple who constantly smoke cannabis outside their house, weve had to stop opening windows, and cant even go into the garden as the smell is so bad, the housing have said just fill in an anti social form, no help as usual, this is the second…
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Hi, my name is mamalou72! Can my daughter claim carers allowance?
My 17yr old daughter has basically become my carer due to severe deppression and mental health. She's at college 3 days a week and I claim child benefit for her. I'm support Groupon esa and I get standard rate pip. Can she claim carers allowance for helping me
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Don’t know what’s wrong and struggling to find help.
Hi everyone, I’ve joined this forum as I’m at a loss as to what’s wrong with my son and what to do for the best. I’ll try to keep this brief! 5 weeks ago my 10 year old son woke with sore legs. It was straight away bad enough to limit his mobility and keep him off school. Within 24 hours the electric shock type pain…
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Autism development query. Anyone have experience of autism in young children?
Hi, My son has a recent diagnosis of severe Autism. He is 3 and we are applying for an EHCP. We have been told it may be blocked because he is starting bucket therapy and object association. And they want to give this time to work. My concern is he is nowhere near ready for school in a years time as he is non-verbal and…
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Hi, my name is andersf! Ranting about loss of respite care ?
Just found out that the residential home at my son's school is closing so our respite care package is stopping ?? feeling cross, frustrated and upset and abandoned! H has very complex physical, mental and health needs and overnight residential care has been an absolute lifeline for us as a family. Social worker is looking…
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Hi, my name is Piggy11! Looking to gain support from likeminded parents
I am looking to gain some vital help with likeminded parents - feeling the struggle!
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Hi, I'm HippyRick! My partner's child is in care due to her being disabled, can anyone help?
I’ve joined the community because my partners child is in care due to her disability. I’m with her now, but also disabled and they are saying we are not the right parents for our child despite him screaming to come home with his Mammy at every contact meeting. Our solicitor is useless and we believe he is in cahoots with…
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Can I use my DP to pay for the cost of taking my PA with me on holiday?
I’ve booked to go on a short 4 night holiday in July and need my PA to come with me to provide assistance. Can I use my DP to pay for the cost of taking her? There is more than enough money in my pot and one of my goals on my support plan is to travel more. There is not a specific action plan for that goal, only to bank…