Remaining politically neutral during General Election 2024


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Hello, my name is MaddyB. Speech and language assessment for my toddler.

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MaddyB
MaddyB Community member Posts: 3 Listener
I am the parent of a toddler who suffered a brain injury as a result of Meningitis when a baby. We are playing the waiting game to see the extent of the impairment.  They are about to have a speech and language assessment (we are paying to go private for this) and they are on a long waiting list for an assessment for a possible cognitive development delay.  Is anyone else feeling totally helpless and that they are letting their child down while they wait for support? 

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  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,912 Disability Gamechanger
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    Hello @maddyb

    I just wanted to let you know, I popped your post into our Children, Parents and Families section of the forum. I thought you may find someone else who has had a similar experience. 

    You are not letting your child down, you are getting them an assessment, I am keeping everything crossed that comes around soon for you all. Can I ask, are you ok? do you feel like you have good support?

    The community are a lovely bunch and we are always here if you want to talk or vent :)<3
    Hannah - She / Her

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
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  • MaddyB
    MaddyB Community member Posts: 3 Listener
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    Thanks Hannah. I'm okay, I just feel a bit lost. Hopefully I can find support in this community. 
  • MaddyB
    MaddyB Community member Posts: 3 Listener
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    Hello @MaddyB Welcome to the Community. The health service at the moment is a nightmare. I am waiting for two operations no idea when although are supposed to be urgent. I feel totally helpless. You are not letting your child down you are doing the best you can. Good luck with your child's speech and language assessment. Just keep pushing for the assessment for a possible cognitive development delay. Have you asked your GP for their help with this? Take care.
    I was hoping to get a letter of support from my child's paediatrician at our appointment last week and guess what, it got cancelled. Rescheduled for mid April. I suppose I should be grateful that was rescheduled and we're not just left waiting again! 
    I can't complain about the NHS, they saved her life,  but they're at breaking point. 
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,912 Disability Gamechanger
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    We are here if you ever need to vent or chat @MaddyB <3
    Hannah - She / Her

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
    Want to give us feedback? Complete our feedback form now.
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,982 Disability Gamechanger
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    I just want to add that I am thinking of you @MaddyB and sending you hugs. Please don't hesitate to let us know if we can do anything to help  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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