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Respite support for children
Hi. I am trying to get some respite care for my 11 year old son who has autism. My son's dad and I are separated and he's left me to basically do everything myself and I'm finding it so tough. Does anyone know of anyone or any organisations that may be able to work with my son to give me a break and to give him some…
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Hi there! I'm looking to connect with pregnant ladies or new mums :)
hello I'm studying to become a Midwife and I'm really interested to hear about birth experiences. would anyone like to share? Do you think your disability affected the care and choices you were given? What could have been improved? I'm a mum of 6 myself (oldest 7 youngest 6 months) and was deemed high risk and made to feel…
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My son cannot go to school after the lockdown
My 12 yr old son was diagnosed with ASD and anxiety disorder. He is changing from primary school to junior high school, so he only has few friends left in a new school. After more than 3 months staying at home, he cannot get back to school. He rarely come out with us for dinner and he just wants to stay in his room all day…
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Sleep in babies
Hi all my little girl has been diagnosed with a sever neurological disorder, metabolic condition amongst other things. Just wondering if anyone knows or can advice what they did about their child’s sleeping like do I follow advice of the amount she should sleep which is 8 months (Her actual age) of do I follow what she is…
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Disability discrimination
I am just trying to get a quick simple yes or no answer to a question without having to pay expensive legal fees, can anyone help please? I recently took school to first tier tribunal special educational needs and disability court. The court have ruled that school did discriminate against my Autistic son and breached the…
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Why can't our adult kids live with us.?
Please be kind folks if your reading this. I know it's a subject that divides people. I know I won't live for ever, my sons needs are complex. He's 29,im 50 Why do people assume he shouldn't live in the family home. My friend who works as a senior support worker has been telling me for years. He has a separate social life,…
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Am I the only disabled parent in Derby to an ablebodied child?
I have only joined up today. I'm 39, I'm looking to make friends and see if i can find someone who can relate to my situation. I walk around with the assistance of a wheelchair outdoors if my legs aren't too painful. I have an 8 year old daughter who is able bodied. I feel very alone with the difficulties and challenges i…
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Can anyone tell me what I should be doing now?
Hi. I am new here. My 8 year old has been struggling for years in school and socially. (Had to even repeat year 1.) She has been taken out a few hours a day from the main class to give her more suited work with a small group and a senco teacher. Last week her teacher and I were talking and she mentioned to me, that she…
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Support for my son: developmentally immature, lacks gross motor skills and has emotional outbursts
We are looking for some advice and any tips would be great. our son is nearly 6 and is waiting to see a community paediatrician. He is developmentally immature, lacks gross motor skills has emotional outbursts, and has been at speech therapy for 3 years. We have now been told that he has no tone to his voice so his speech…
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Cleaning service
Is there a cleaning service that could help my daughter, she has cerebral paplsy and adhd.
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EHCP help
Hi everyone. I'm new on here. My son is in year 10 and he have just been refused to access for a EHCP. Iam not sure if I should go to mediation or just go to appeal. Any advice.
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Looking for a little bit of advice
Hi to everyone, not sure where to start or even why I am here,my grandson Cole will be turning 10 in august, through family issues Cole lives with me.Cole has special needs and he was being seen at cahms, seen pediatricians seen social worker's who all say that Cole as the age of a 4yr old almost 6yrs behind his peers.he…
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Free school meals - extended over the Summer holidays
In case it's of interest to anyone, it has been announced that the free school meals voucher scheme will be extended over the Summer holidays. There's been much debate about the scheme in the past and it's interesting that there has been a U-turn after some high-profile campaigning. Has anyone had any problems using the…
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Teenage son who's depressed
Has anyone got any ideas to help my teenage son who is depressed? He’s 17, finished college until September and doesn’t want to do anything, speak to friends or talk to his counseller (online)- he’s really down and just wants to sleep. He has had very little social contact except online and even that’s reduced to pretty…
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Guilt of being a disabled parent.
I have been struggling for 5 years now with degenerative disc disease. I had a second surgery in Feb but I’ll forever have chronic pain. Over the last year I had a few other medical issues which has resulted in me leaning on my teenage son more and more. I hate having to do so and have recently realised that I have become…
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Free Online Yoga for Carers
**Funded Yoga Session for Carers of all ages and abilities on Friday 12th June at 10:30am** In partnership with Cerebral Palsy Midlands, Noah’s Star have planned a funded virtual get together for unpaid carers. The session will start with a 30 minute beginners yoga session to encourage positive health and well being. This…
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Real struggle at the moment with 13 year old son
HI Im julie i have a 13 year son Joe with Apd and i'm pretty sure spd. its a really struggle at the moment he is like a pressure cooker waiting to blow at any moment. just needed to share.
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I'm angry and hurt hoping this feeling goes away
Hi have 4 month old with hie grade 2 obviously didn’t happen long ago so still feeling traumatised by my experience. I have worked in a special school for over 20 years so im not really upset at what her outcome will be just that it happened. I had preeclampsia with my first child but felt so ill with second but nobody…
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Recent diagnosis
Hi, my daughter was recently diagnosed with Dyskenetic/dystonia CP (hypoxia at term). This has come as a complete shock to the family because we were not told of any concerns at birth. I became concerned about her development when she was six months and basically visited the GP as often as I could. However, we were told…
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Carer’s credit
Hello. I wonder if anyone has experience of claiming Carer’s credit? I took early retirement 2 years ago. One of the main reasons for this was to provide more support to our adult son. He has learning difficulties and lives - with much support - independently in a council flat near to our home. I have discovered that I may…
