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Hi, my name is Shimara! Does anyone have experience of using the mollii suit?
I have a disability called hereditary spastic paresis, this condition causes spasticity especially in my legs. I have just started a trial of the mollii suit and wondered did anyone have experience using it?
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Hi, my name is Ian777! Looking to find out more about Spinal Stenosis
Hi - Looking to find out more about Spinal Stenosis - Had this for a while but starting to affect me more significantly now - Looking for tips and wondering how it will develop so any input greatly appreciated. Happy New Year!
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Hi, my name is mecca1! Iv just had a partial knee OP
Hi Iv just had a partial knee OP and would like to see other people's advice and help in my road to recovery , thanks
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Battle to be taken seriously – dystonia.
Hello everyone, my name is Natalie, and I am 38 years old. I will try to keep this brief and hope not to bore you. For two years I have been battling with doctors just to be
taken seriously. 8 years ago, the people closest to me started to notice my
head would shake from side to side as if I was saying no over and over. I…
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Hi, my name is pipjoseph! My son has Lennox Gastaut
My son has Lennox Gastalt and I’m looking to make contact with people in a similar boat
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I have had my angiogram done
Hi to all I had local injected first.I had my angiogram done it was eventfulwhen they put the catheter in got it so far up and had to stop I had pins n needles in my leg and they went numb.Went a bit further up about 3/4 and had to stop again had heart tightness and pain and breathlessness so ended up having sedation and…
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Peeing way too much
My PEEING has been affecting me NEGATIVELY for many years I am unable to travel anywhere, unless I am sure that there
are toilet facilities at the other end, and on route as well. It also means that I have to be careful with my fluid intake. I need a pee, every hour or usually even more often It is not the quantity that…
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Partially Sighted. How do I apply for a white cain to use when walking
Hi to all, I am registered as Partially Sighted I have a Yellow card in my Purse how do I apply for a white cain to use when walking .I have blurred vision in my not so good eye I keep walking into doors and walked into stool before and injured my foot. Sparklebright63.
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Hi, my name is Garrett1! Anyone had DBS procedure?
Hi,I have been suffering from Cervical Dystonia for 4 years receiving Botox injections and Gabapentin for pain unfortunately my symptoms are getting worse. I have been thinking about DBS procedure and wondered has anybody had this and what difference it made.
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I cannot sleep because thinking about
Hi to all, I cannot sleep because thinking about my hospital appointment for tommorow and Tuesday as to what might happen.My brain is wide awake no chance of sleep 🙃 and have grandaughter tommorow too will be fun lol. Sparklebright 63.
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Hi, my name is Jackson2! Shoulder pain and lack of movement since last covid booster
Hi since my last covid booster have had extreme shoulder pain and lack of movement
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Anyone from Wiltshire
Hi I'm from salisbury Wiltshire I was just wondering what everyone's thinks about service offered for use activities wise.
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Help! my doctor missed the fact I've had a stroke
Hi, this is my first post, I'm not sure who to turn to for guidance. I have degenerative disc disease, osteoporosis, spondylosis and peripheral neuropathy. My husband unexpectedly passed away in January and I've not managed back to work due to anxiety and depression. I realised how much he'd been doing for me...eg. I…
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I have been to see the Cardiologist today
Hi to all, I have been to see the Cardiologist today and he said I have to have an urgent angiogram done ✔️ and also an Echo scan too been put on more 💊 medication and have to go back when I've had the angiogram ✔️ I might also have to have more tests as may have another heart problem that needs investigation done.…
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Fibromyalgia and stress
Hi all I have a question about fibro. I was diagnosed with it 4 or 5 years about but several months ago I was given a care coordinator for help with other things. They say that my fibro is stress related. If this is the case then why is it that I can be feeling ok mentally at times and not too stressed (for me) but still…
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Bowel issues sorry
Hi to all I went out this morning on the bus to go shopping when I got their I thought I need the loo so went 🙃 and my bowel erupted messed loo up my clothes everything toilet wouldn't even flush) Washed my hands ✋️ and heard the toilet cleaner say who's been in their so I said sorry it was me I have a bowel condition it…
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Hi, my name is Onemax! Looking for advice on purchasing Sildenafil
Morning I looking for advice on purchasing Sildenafil 100mg online I have a GP private prescription and do not need a consultation or want to pay for one. Other than ED I am fine, I think.
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Anyone else's hypermobility worse when sitting at a desk? Can being hypermobile affect pregnancy?
Thank you for setting up this community, I have hyper mobility and am so relieved to hear others have it too! Does anyone else find that they get it worse sitting at a desk? Does anyone have any tips for how to sit in a way that doesn’t aggregate the pain? Also, my husband and I are trying for a baby. Does anyone know how…
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FND
Hey just looking for a penpal with FND, i have been recently diagnosed with FND and would just like to know someone who understands it, we can help each other out with tips on how to deal with the symptoms. I am always here for a chat.
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My son has Guillain-Barre syndrome. Has anyone ever been through this?
Hi I’m new on here my son 19th years old has been struck with GBS was wondering anyone on here been through this.
