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Can anyone give advise about Amyloidosis
Hi I wondering if anyone knows about Amyloidosis. I have been misdiagnosed for many years, hitting my head off brick wall with all different consultants. They now think as some tests have come back that I probably have AL Amyloidosis. Not been given much information and waiting for an appointment (urgent referral) however…
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In hospital and not for mental health this time
hi every one I have been having seizures since Friday the hospital admitted me there gonna get me to see a specialist .
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Hi, my name is HannahJanuary1! Has anyone had an open Heller Myotomy with thoracotomy?
Hello. I would like to discuss having an open Heller Myotomy with thoracotomy. I am almost two weeks postop.
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Hi, my name is pmurray! Has anyone had experience of these treatments for severe tremors?
I suffer severe tremor to both hands. Am taking medication that does help but have been offered a procedure next year. Either insertion of t wo monitors in my skull regulated by one in my chest OR laser guided MRI treatment which treats one side then the other. Has anyone on here had experience of either of these…
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Neglecte and discrimination! Under supported sheltered housing!
I've escaped from domestic abuse and was in a refuge, but was far from my children, so I've ended up in a homeless drug and alcohol shelter, emerging futures. I have severe mental health issues, and disabilities that I try hide. Ive asked for help as I'm suicidal and not coping. I forget my medication or what I've taken, I…
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Dysphagia thicken drinks
Hi, I have Dysphagia level 2, which means I have a problem swallowing drinks and food etc. I normally use a special thickner called Thick & easy which I get on prescription, which i thicken water, juice, brews etc, unfortunately my prescription is late and I've run out, has anybody got any ideas what I could use as an…
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Hi, my name is edmundo!
I’m 41 years old and I have mild cerebral palsy. Up to the age of 11 I could walk and run unaided, at this point I developed generalised Dystonia and although I was still able to walk shorter distances unaided I started using a wheelchair for longer distances. I attended university, live independently and work full hours…
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Ruptured Archilles tendon
Hello, 4 months ago, I fell over in my garden and landed on my hip, the left side that I have osteoarthritis. Luckily the grass was soft and wet, it didn't affect my hip. My right ankle felt like I had sprained it. It hurt but also felt very stiff. I never bothered going to my GP which I now regret because I left it too…
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help with hormone-based migraines
any advice for hormone based migraines ? 🧠 plus bloating? 🤔🤷♀️ love Mary
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SAR request rejected
I made a SAR request on a hospital that treated me 32 years ago and it was rejected on grounds of time (they claim that my medical records were destroyed in the meantime) This is wrong - records are supposed to be held until 10 years after the patients death - and I am still alive !!
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Tethered Cord
Hello. My name is Mark, I’m 53 year old male. I’m looking for advice/ other adults with TCS. As an infant I was diagnosed with tethered cord, a deep sacral dimple, scoliosis and Sprengel’s deformity/scapula hypoplasia. At 9 years old I had left scapula surgery to reduce the should height. At 11 (1982) I was scheduled for…
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Hypermobilty Syndrome
Hello I am still quite new to using the forum and I am so grateful for the advice and information I have been given since finding Scope. I wasn't sure where to post this - but I am wondering if there is anyone who experiences hypermobility syndrome with joint and body pain and boom and bust type tiredness? or maybe…
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Hi to all
I was back @t the doctors yesterday I have been cleaning my superpubicatheter all the time like I was asked to and it's still inflamed where my drain is so was given naproxen and fucidin cream and still getting yucky stuff comming out of it. The district nurse is comming tommow she what she says I think I need referral…
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Myasthenia Gravis
has anyone been diagnosed with Myasthenia Gravis or know anything about it ?
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Hi, my name is bon_gil!
I was diagnosed and have lived with ET first in my RH and now both hands plus internal tremors. Add to the mix type 1 diabetes and having to inject insulin multiple times a day and a chronic eye condition caused by diabetes in both eyes with ongoing treatment over the next three months. I am 62 and a carer for my 84 year…
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Good support for your ileostomy
Hello, I want to share my experience with ileostomy support pouches. About 7 months after my operation to remove my bladder, prostate, and a couple of other bits and pieces, and after starting work again, I started to experience some discomfort around my stoma - it felt a bit like groin strain. I received a "belt" to…
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Hi to all,
I had my operation on Friday I was the first to go down but had to get changed into gown so I didn't go down till 11 am I was anxious about having it done anyway I had epidural and some sedation I am pleased I ve had it done but it's very painfull I don't know about 10/10 more like 20/20 the amount of pain & antibiotics I…
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Hi to all
I woke up went into the hallway to go to loo last night lost my balance knocked cat water dish over and went into the wall. Then today I went to put Rug on line felt lightheaded and decked the decking outside couldn't get up my Son had to help me up. Just comming on out of nowhere I phone neurology up and they said I will…
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Functional neurological disorder help and support
Hi, I’m new to the site so do t know how to navigate it yet. But I was diagnosed with Functional neurological disorder in May this year and still trying to come to terms with it but would love any advice from anyone that suffers from this condition. Would really appreciate any help and support x
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Hi, my name is BigE!Thinking of starting Advanced biomechanical rehabilitation. Has anyone tried it?
I've been thinking of starting Advanced biomechanical rehabilitation is there anyone on here that has tried it and does it work?
