In hospital and not for mental health this time

cupcake88
cupcake88 Posts: 1,372 Trailblazing
in Talk about your impairment

hi every one I have been having seizures since Friday the hospital admitted me there gonna get me to see a specialist .

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Comments

  • Albus_Scope
    Albus_Scope Posts: 7,984 Online Community Team

    Oh @cupcake88 I'm so sorry to hear that, but at least you're in the right place. I really hope they can get to the bottom of the seizures soon. Stay safe.

  • Bluebell21
    Bluebell21 Community member Posts: 3,721 Trailblazing

    I am sorry @cupcake88 hopefully they will soon know what the cause is. Take care.

  • Sandy_123
    Sandy_123 Scope Member Posts: 58,497 Championing

    Oh no @cupcake88 hopefully they will get you sorted and find out why it's happening, good luck

  • Nightcity
    Nightcity Community member Posts: 2,413 Championing

    Hey @cupcake88 that must be very scary and distressing.

    I hope you feel better soon and get some answers. Also that it's short term for you.

    best wishes

    Rick

  • chiarieds
    chiarieds Community member Posts: 16,613 Championing

    Hi @cupcake88 - sending lots of love & gentle hugs hoping you get the best possible care, xx

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 11,776 Championing

    I'm sorry to hear that @cupcake88 I hope you get better soon

  • cupcake88
    cupcake88 Posts: 1,372 Trailblazing

    hi every one there discharging me today as a out patient but there hesitant to start medication because of my mental health medications all the specialist in my care need to all chat .

  • cupcake88
    cupcake88 Posts: 1,372 Trailblazing

    thanks again to all my lovely friends on here I will say that as a patient in a general hospital for physical illness vs being in a general hospital due to a mental illness your treated a lot better I think it’s because the general nurses don’t understand mental illnesses

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 11,776 Championing

    I'm so glad you are getting discharged today @cupcake88

  • chiarieds
    chiarieds Community member Posts: 16,613 Championing
    edited October 28

    Good to hear from you @cupcake88 - I hope that your specialists may be able to help once they have discussed this. I bet you're pleased to be going home 😊 Love, xx

  • Jimm_Scope
    Jimm_Scope Posts: 5,349 Online Community Team

    I hope everything goes well @cupcake88, I know things have been difficult lately but I hope at least being out of the hospital feels better

  • Sandy_123
    Sandy_123 Scope Member Posts: 58,497 Championing

    Good news on the discharge hope the meds help you

  • Bluebell21
    Bluebell21 Community member Posts: 3,721 Trailblazing

    I hope they soon sort out medication for you. Hopefully you are now home. @cupcake88 Take care.

  • cupcake88
    cupcake88 Posts: 1,372 Trailblazing

    hi every one I was discharged yesterday came home let my dog out then I remember waking up on the floor my dog was still out side I had wet my self and my joints felt like I had been hit by a bus so I called a ambulance well I called 111 they called a ambulance again they said I need to wait for a specialist apparently fits aren’t an emergency. I mean I think it’s a joke I have to go to a n e each time it’s so hard as the 4 nearest hospitals are all 50 mins away . It feels so strange being in a general hospital I’m just not used to it im used to mental health wards .

  • chiarieds
    chiarieds Community member Posts: 16,613 Championing

    Oh what a homecoming @cupcake88 - are you in hospital now? What an odd thing to say about seizures - you'd have thought at least the severity of them needs to be taken into account, & ending up on the floor surely means you need checking out. You really aren't safe if you're at home on your own if you get no warning about a seizure & you fall.

    I hope you're feeling OK at the moment. Hugs are on the way, xx

  • DDN1429
    DDN1429 Community member Posts: 58 Contributor
    https://forum.scope.org.uk/discussion/comment/932727#Comment_932727

    This definitely sounds like seizures to me, so find it appalling that 111 have told you to wait. I have epilepsy from focal all way to TC, and my partner is "supposed" to 999 for me.. I don't always let that happen due to post ictal reasons. I get that your situ sounds pretty complex, but surely a multi-disciplinary team meeting should be sped up?. Could you get in touch with Patient Advice and Liaison Services?

    Main thing is to make sure to keep safe and rest if you can, and hope you get some answers soon.

  • cupcake88
    cupcake88 Posts: 1,372 Trailblazing

    hi every one I was back in hospital and discharged again saying the same thing wait for the specialist. I’m in such a bad way and I can’t believe there leaving me like this .

  • Rosie_Scope
    Rosie_Scope Posts: 4,345 Online Community Team

    Sorry to hear you're having a hard time @cupcake88, seizures are really scary. I hope you get some answers soon and you're not waiting too long to speak to the specialists. Did they give you any idea how long you might be waiting?

  • chiarieds
    chiarieds Community member Posts: 16,613 Championing

    Hi @cupcake88 - you'd have thought looking at your medication to see what may help with your seizures would be urgent. I hope you're OK today other than the worry of not having anything as yet put into place. Love, xx

  • cupcake88
    cupcake88 Posts: 1,372 Trailblazing

    hi every one I had a update the specialist should be writing to me in a few days so fingers crossed it’s soon I’m on the emergency list which is better than being on the normal list because I can’t carry on like this . It’s starting to affect my mental health now all of this it’s becoming very stressful . My mental health has been really good lately and now this not very good at all .

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