Hi, my name is Sarah25! I'm not a doctor but feel I have a hypermobility disorder or EDS

Sarah25

Hi, to be honest I wasn't sure if this was the right forum for me but thought I'd reach out as I'd just like advice and tips really.

I've been in pain with different joints most part of last 25years and still no answers other than yes your hypermobile. I suffer with stiffness, aches, instability in joints such as hip/knee and pain in lower back. I'm tired all the time and dislocated joints over the years, I could keep listing 🤪

Does anyone have a suggestion on what I should do or who I need to see as I'm not a doctor but feel I have a hypermobility disorder or EDS

Thankyou

Albus_Scope

Hi there @Sarah25 and welcome to the community. 😊

I'd suggest the first port of call would be your GP, as they would be the ones making the referrals to other specialists.

Unfortunately we're unable to give actual medical advice here, but I know a couple of people who would be great to speak to regarding EDS and hypermobility, but one in particular. Paging (not a) doctor @chiarieds 😆

Sarah25

Thankyou. I have tried for years with GP but not getting anywhere. I will persist but for any tips or advice how others manage would be great.

Thankyou