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Lichen sclerosus

suz7895suz7895 Member Posts: 2 Listener
Hi, I have been diagnosed with Lichen sclerosus for the last 3 years and have now been told that there is fusion of the skin. My next appointment will consist of Gynae, Derm and Surgeon.. Has anybody else had this happen? I'm 43 


  • janer1967janer1967 Member Posts: 11,201 Disability Gamechanger
    Hi and welcome 

    It's not something I have heard of sorry 

    Hopefully other members may have some knowledge 

    Just wanted to say hi 
  • suz7895suz7895 Member Posts: 2 Listener
    Hi Janer
    It seems not a lot of people have heard of it but just great full for you to acknowledge and say hello x
  • janer1967janer1967 Member Posts: 11,201 Disability Gamechanger
    Maybe your gp and consultant can explain more 

    Have a good think about everything you want to ask f8r your next appointment and write it down 

    You may find some info on nhs website I'm not one for advising to look online but nhs is quite a good site 
  • Caz_AlumniCaz_Alumni Scope alumni Posts: 626 Pioneering
    edited March 22
    Hi @suz7895 :)

    Welcome to the community!

    I just wanted to drop by, say hello and offer you some support with your query. 

    I've heard of lichen sclerosus, but I don't know a lot about it, I'm afraid. I think you're right - there's not a great deal of awareness. Hopefully, they will be able to tell you a bit more at your next hospital appointment. When will you be going to see your specialists?

    Also, you might want to check out the NHS website on lichen sclerosus at 

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