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Resources and tips for those living with chronic pain
Resources and tips for those living with chronic
pain Alongside advice from medical professionals, trustworthy online
resources can be beneficial in learning new information and coping techniques
around managing chronic pain. With special thanks to @chiarieds, this is a ‘mega-thread sticky’ of
suggestions for those…
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help. had a bad experience at dentist
Hi, I had a planned dental appointment today to replace a filling. I have multiple disabilities both physical and mental, including severe chronic pain. I am on several medications but just for pain I take Codiene, Morphine and Gabapentin. I have spasms too which is what this post is about. I am a pretty recent patient in…
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I'm really struggling to use Intermittent Catheter
Hey! I had an appointment for ICS yesterday and was given a few different catheters to try before the nurse puts in an order for the catheter I'm going to use on an ongoing basis. I've had a number of attempts since getting home from my appointment yesterday, but haven't had any successful drainage. I imagine I'm probably…
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Advice on how to cope with FND when you are autistic and have mh issues too
Firstly I'd like to say I didn't read the 'Get Started ' page so didn't realise my first post would be in the say hello chat. I went more in depth on my story in there and I'll try not to repeat myself too much because I don't want to unintentionally spam this platform. So I was diagnosed with FND (well, I was diagnosed…
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Cystic Fibrosis Trikafta Review?
Hello I hope you are doing well. I was wondering if anyone who has tried Trikafta has any feedback or experiences to share? Was it truly life-changing as advertised, or did it really help you? Thank you so much!
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My CP and work.
Hi,my name is Daniel [removed by moderator - personal details] and I have mild CP.I have managed to work my entire life,but over the last few years I have really started to struggle both physically and mentally.Obviously,i have always struggled,but my age is now against me.I know i will not physically last until i'm 67,but…
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Hi, I'm ospery2000! Did I get enough physio after my knee replacement?
hi
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Mesenteric Panniculitis
Hi everyone I'm new here and would like to know if anyone has been diagnosed with Mesenteric Panniculitis? I have had other ongoing symptoms for over 10 years now mainly burning numbness tingling sensation left side of face and left leg and arm. Fever fatigue and breathlessness. I have also had morphea for about 20 years…
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Alcoholic Neuropathy
Hi. For approx. 9 months I’ve had symptoms of Peripheral Neuropathy. My feet feel numb, but also painful. It feels like I’m walking on glass, but also with bubble=wrap on my feet. When I’m barefoot, it feels like I’m wearing boots! I haven’t been officially diagnosed, but as my sister is diabetic, and also has the same…
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Functional neurological disorder - New wheelchair user
Hi my name is Nikki I'm 55 and in 31/12/2018 I was diagnosed with a brain tumor I have since been diagnosed with fnd and I'm still trying to find the new me as I'm now a wheelchair user
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Diaability
Just looking for friends who have spinal cord injuries. Is there anybody out there?
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ACDF operation
I am currently waiting for an operation to remove a disc in my neck which is pressing on my spinal cord. The doctors say that it will not fix me but it will stop my condition from getting worse. I also suffer from severe foraminal stenosis in both my neck and lumbar region which will not be operated on. How can the doctors…
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Back problem
Doctor tells me I have Severe bilateral facet arthrosis, basically no cartilage left between two vertebrae. Has anyone had this? What was the outcome?
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Rheumatoid Arthritis
hi! Join myself and others sharing their RA warriors on TikTok TheGingerGirl, where I go about daily life, discussing the ups and downs of living with RA 🙏🏻🧡
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Methotrexate
I just wondered if anyone else had been on this drug. I was taking methotrexate for six months and all of my body hair stopped and gradually fell out. The hospital put t me on baracitinib to counteract the problem which has not worked, I mean no hair growth at all apart from my head. Absolutely smooth as I was born. I…
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surgery to relieve pain of the narrowing of the channels of the nerve fibres to the neck and arms
hI, I got the results of my MRI scans yesterday, showing severe stenosis of C2 to 5 vertebrae. Has anyone had surgery to relieve the intense pain of the narrowing of the channels of the nerve fibres to the neck and arms? If so what was the recovery duration and alleviation of symptoms?
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Hi, my name is tim190! Has anyone had decompression surgery for Spinal Stenosis?
Hi, I've been diagnosed with spinal stenosis and have been referred for decompression surgery. I'm concerned about the complications. does anyone have any recent experience of this surgery? Regards, Tim
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Hi, my name is TommyCockles! Looking for advice on diet and treatments for PN
new here. 55 yr old male with PN. started out small in right foot in 2018, has since spread laterally in both feet - very painful and debikitating- reg'd disabled now and struggling to manage my life as a newly mobility disabled person. looking for advice on diet and alt med's as I have tried all the NHS routes with little…
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Seniors with Hemiplegia
I'm 66 and have Left side Hemiplegia. My hand and leg have always been weak, but over the last say 5 years my chest has become weaker and painful. I've always had a tendency to slump to the left while sitting, but now my chest feels congested, my breathing is laboured, and I
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Left Knee Issues
I Have Cerebral Palsy, after 2 days of not doing physio my left knees achey and funny, added to that have been hospital for a while so suspect muscle atrophy. Thing is when transferring its like my left knee cant hold the weight and the pain gets worse as I lower myself. Any ideas?
