Osteoarthritis, carpal tunnel, sciatica, compressed neck discs that all affect my movement — Scope | Disability forum
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Osteoarthritis, carpal tunnel, sciatica, compressed neck discs that all affect my movement

Pick3500
Pick3500 Community member Posts: 14 Listener
Hello all, 

I have spoken to my work OT three times, applied for PIP (declined 2 points awarded), I can't drive a manual car because of gear changing (limited shoulder movement) and I would like to have someone come into my home to assess my home situation so I can my life easier for my mobility.

I have already has a work assessment which advised my that I cannot walk for long distances, no school trips< different computer, table, chair and wrist supports (mouse, mats etc..)

What help and support is available?
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Comments

  • Rosie_Scope
    Rosie_Scope Posts: 2,177 Scope online community team
    Hi @Pick3500, hope you're well. I'm just checking in as I noticed you haven't had a response to this so far, sorry about that. How are things going? Did you have any luck finding ways to make your home situation easier?

    Sometimes your GP or your council can refer you to be assessed to see if there are any adaptations that can be made to your home, perhaps this is something you might like to look into if you haven't already :)
    Rosie (she/her)

    Online Community Coordinator @ Scope

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  • onedayatatime
    onedayatatime Community member Posts: 14 Connected
    Hello there Pick3500, I'm sorry that you are experiencing these difficulties with your mobility. You must be in some discomfort. 
    As Rosie has suggested, I think your GP would be your first point of contact. Also I think it is a department within Social Services that can help with smaller adaptions and aids for the home and the council who have grants for larger and more expensive adaptions for the home. I'm not sure, but perhaps your GP can refer you to an occupational therapist who can help assess your needs at home and guide you through the process.


  • Pick3500
    Pick3500 Community member Posts: 14 Listener
    Thank you all. I'm speaking to my doctor next week.

    I completed my pip assessment 2 weeks ago and just waiting for some news. Since my first post I've dislocated my knee cap and found out that I need a knee replacement because my knee has no cartilage. I'm really struggling with walking, standing, sitting, stairs etc and this is severely impacted on my physical and mental health. 

    Work are finding out what additional support they can offer me. Moving in the right direction.
  • Albus_Scope
    Albus_Scope Posts: 3,930 Scope online community team
    Glad you're in touch with your GP @Pick3500 sorry to hear about your knee though! I'm happy to hear work are being supportive, that can make a huge difference.  I'll be keeping everything crossed for a positive PIP outcome too. :) 
    Albus (he/him)

    Online Community Coordinator @ Scope

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  • Pick3500
    Pick3500 Community member Posts: 14 Listener
    Some good news this morning, my 'PIP' has been awarded for my (haven't a clue what) disabilities. I've been struggling with most parts of my body.

    Thanks to my children for filling in the form and sitting with me for me assessment. I think it helped because they gave a true reflection of how my conditions affects me constantly. When I filled it out myself, I had to complete it over 3 weeks and I had to give a true reflection of how my life is, I honestly believe that I was less realistic about my limitations in my first application.

    Thank you for your support. Albus_Scopeonedayatatime and Rosie_Scope.


  • Rosie_Scope
    Rosie_Scope Posts: 2,177 Scope online community team
    That's great @Pick3500, glad you were able to get your PIP sorted! Hope it means there's a little less to worry about. Thanks for keeping us updated, it's good to hear from you :)
    Rosie (she/her)

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  • Pick3500
    Pick3500 Community member Posts: 14 Listener
    Thank you again  :) I was quite shocked how quick the decision. 
    Asked for an application: 14th December 2023
    Extension requested: 5 January because of Christmas)
    Application sent back: January 28th 2023 (recorded delivery) 
    Application received at DWP PIP: 29th December 2023
    Phone Assessment: 9 a.m. Tuesday 26th March 2024
    Report sent of by assessor: 11.50 a.m. Tuesday 26th March 2024
    Decision: 9th April 2024 (14 days in total this includes a 8 days that were weekends and 2 bank holiday)

    I hope this helps others with a timescale. My application was all about how I feel mentally and physically, how I complete tasks and a detailed summary of my problems related to every day tasks. My children wrote words like 'assistance(s),' 'supervision(se)' and timescale of each task.

    Now just to wait for the letter. 





  • Pick3500
    Pick3500 Community member Posts: 14 Listener
    Good afternoon all, 

    An update, the letter arrived.

    Daily Living: 14points
    Mobility: 10 points

    I'm very please with the outcome, however I've decide to do a mandatory consideration for the mobility because I cannot walk more than 20 metres without extreme pain, bone on bone, catching and giving way. I've also not been given ZERO points for Q14a, although they gave me points mixing with others. I only go to work which is a familiar setting, hospital etc and I'm always taken my my son.

    Any advice would be appreciated.
  • Albus_Scope
    Albus_Scope Posts: 3,930 Scope online community team
    Heya @Pick3500 that's a great outcome!  If you're asking for a MR, please be aware that your award can go down as well as up during these.  But if you can say why you have issues with a specific descriptor, that'll certainly help. If you can walk 20 meters but have to do it very slowly, or you're in constant pain, then you'd be classed as being unable to do it in the eyes of PIP assessors. 
    Albus (he/him)

    Online Community Coordinator @ Scope

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  • Pick3500
    Pick3500 Community member Posts: 14 Listener
    Hi Albus, 

    I'm aware. A bit silly if I'm only questioning Q14a & but hey ho. Should I send my X-rays and MRI? I have bone on bone and all the issues that someone needing a knee replacement as such I suffer from extreme pain from the  above plus  
    osteoarthritis, sciatica, spurs, chronic ankle instability, carpal tunnel and compressed discs in my neck (all diagnosed). I have suffered 6 falls in 12 months as well all connected to weakness of the knees.

    It feels like 10 points is the magic number for Q14 :)
  • Albus_Scope
    Albus_Scope Posts: 3,930 Scope online community team
    It does seem very silly indeed!
     The assessors will be looking at how your issues affect you, not for diagnosis, but if you feel the x-rays and MRIs could help, then feel free to send them in. 
      Though I'd be focusing on telling them what you've just told me. Saying you've had several falls due to your disability will certainly be more useful information, as it's showing real world examples of how your disability affects the descriptor in Q14a. It shows you cannot do it safely. 
    Albus (he/him)

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
    Want to give us feedback? Complete our feedback form now.
    Opinions expressed are solely my own.
    Neurodivergent.

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