Hi, my name is shell1971! I've been diagnosed with diverticulosis — Scope | Disability forum
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Hi, my name is shell1971! I've been diagnosed with diverticulosis

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shell1971
shell1971 Community member Posts: 3 Listener
edited May 2023 in Chronic pain and pain management
Hi, I ve been diagnosed with diverticulosis in April l. I have persistent pain. The endoscopy was really painful. I have gained nearly 2 stone. Anyone else had these problems. All I hear is you had flare ups but I Don t. I struggle every day with this. Can sit or lay in comfort or walk like I used to

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  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,912 Disability Gamechanger
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    Hello @shell1971

    Welcome to the community! :) 

    I'm so sorry to hear you are having such a difficult time with diverticulosis. Can I ask, have you had a follow up from your endoscopy yet? Have they given you any treatment plan? 

    We don't give medical advice here on the community, we would always suggest speaking to your GP or specialist and I would encourage you to speak to them if you feel your current plan, if on one, isn't working. 

    I have Inflammatory Bowel Disease, and many people I have come across with bowel issues have similar situations with pain when sitting and laying. I sometimes use a comfy pillows to sit on to help ease the pain. 
    Hannah - She / Her

    Online Community Coordinator @ Scope

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  • Beaver79
    Beaver79 Community member, Community Co-Production Group, Scope Member Posts: 20,936 Disability Gamechanger
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    Hi @shell1971 Welcome to the Community. This link might be of interest to you. Take care.

    https://www.nhs.uk/conditions/diverticular-disease-and-diverticulitis/
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  • shell1971
    shell1971 Community member Posts: 3 Listener
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    I have already read all this but thankyou
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  • shell1971
    shell1971 Community member Posts: 3 Listener
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    Hannah_Scope said:
    Hello @shell1971

    Welcome to the community! :) 

    I'm so sorry to hear you are having such a difficult time with diverticulosis. Can I ask, have you had a follow up from your endoscopy yet? Have they given you any treatment plan? 

    We don't give medical advice here on the community, we would always suggest speaking to your GP or specialist and I would encourage you to speak to them if you feel your current plan, if on one, isn't working. 

    I have Inflammatory Bowel Disease, and many people I have come across with bowel issues have similar situations with pain when sitting and laying. I sometimes use a comfy pillows to sit on to help ease the pain. 
    Hi, all they prescribed is lansoprazole, fibre gel with mebeverine laxido and antriliptomine. On 20 mg but still having pain. More so on my right side
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    This sounds really difficult @shell1971 - especially as you are still having pain despite being prescribed these medications  :( Did they say how long you could be expected to take these medications before a pain reduction or if anything else might help? Please don't hesitate to let us know if there's anything we can do to support you  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,912 Disability Gamechanger
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    Hello @shell1971

    Have you mentioned the pain to your GP or specialist? 
    Hannah - She / Her

    Online Community Coordinator @ Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.
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