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Anyone with a similar disability? Arachnoiditis and Bronchiectasis
Hi my name is Krystal, I have just signed up for scope reason being maybe their is someone on here that has same disability as myself. I was told in 2016 I have a spinal disease but their is not a thing that can be done due to the disease it is called Arachnoiditis,and a condition in my lungs called Bronchiectasis stage 3…
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Crohn’s Help!
Hiya I’ve recently spend a month in hospital with sickness and diarrhoea, I’ve lost 15kg in that time, I’m still loosing weight and am struggling with eating and drinking due to the nausea and lack of appetite. I felt at my local hospital completely gaslighted, they kept on saying nothing was wrong with me and that it was…
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Hi, my name is janeandric! Unknown rash after B&B stay
We had a b and b stay in Blackpool I came home and the following day came out in a horrid rash. I cant sleep with the itching, ive used steroid creams and anti histamine there not working well. I've had little sleep. The rash started as spots lots and lots clustered together on my shoulders neck arms less on bottom my…
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Muscle spasms on one side of body?
I wonder if anyone can shine a little light on something I’ve been going through for a few weeks now. The only way I can describe it was a muscle spasm that started from my right foot, up my leg and right arm. I can’t recall ever feeling so much pain. I’ve since had a couple of other episodes, the last 111 was called and…
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Hi to all. I've seen the cardiologist
I have seen the Cardiologist and been put on betablockers have to go for my scans on the 5th of October I had to contact the cardiology dept at the hospital as I didn't recive my letters from them not good enough. I also have a gtn spray to use for chest pain. Sparklebright63
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Access to work for transport help
Hi, I've a colostomy bag and I'm on tube feeding through a catheder on my chest 12-15 hours a day. I'm going for a part time job interview next week. My friend is taking me to the interview. If I'm successful work place will be 30-50 minutes drive or about an 1 hour multiple train journey from my home. Due to my very…
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Hi, my name is amziegrace! I just got diagnosed with ADPKD with the variant pkd1
I just got diagnosed with ADPKD with the variant pkd1, and I have several cysts on both my kidneys and liver. Searching for people to talk to that can relate and exchange stories and information.
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PKD, anyone out there familiar with this?
Hi, my name is pippaT and I have Polycystic Kidney and Liver disease. Is there anyone here that has the same or cares for someone with the same. I would love to find other PKDers to chat to and compare notes etc. Also having the all too familiar problems with PIP and ESA, but that's another story!
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Diverticular disease. How many flare ups a year do other people get?
Hi everyone thanks for excepting me into the group,my question is how many flare ups a year do other people get with this nightmare of a disease any advice would also be really welcome 🙏
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PAE for BPH Prostate
Rather than the normal method of prostate reduction - have any of you (males) had PAE (Prostate Aryery Embolisation) ?This involves blocking the blood vessels supplying the prostate with tiny plastic particles - thus reducing the blood flow and the size of the prostateI have been told that my alternatives are drugs (which…
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New Girl. Anybody else out there with good, bad or in between tales of FND??
Hi all I was diagnosed with FND 2 years ago and it was only 2 weeks ago that I met a professional who not only knew about the condition but also knew where to get help but how to get help. She also really has my back as proven by the kick-ass letter she wrote to my GP and my Neurologist. What a blast of fresh air she is.…
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Pain relief during hospital procedures
I had two hospital procedures last week1. a Sigmoidoscopy - for which I was given gas and air (entenox) as pain relief2. a flexible cystography for which no pain relif was available (except for a dab of gel on my penis head) - this was an incredibly painful experience, my blood pressure went through the roof, and I can see…
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Hi, my name is Bromsgrove11! Struggling with Chiar i malformation type 1
Struggling with Chiar i malformation type 1 . Headache under control but muscle weakness and pain is unbearable. Constantly falling over nothing too. Is this normal as I know so little?
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Trying to rational my symptoms
So I have been diagnosed with mixed anxiety and depressive disorder, PTSD, dyspraxia, non epileptic attack disorder/functional neurological disorder and I’m suspected autism and adhd. Anyway, I went to my local hospital around two months ago with feeling dizzy and really severe head ticks. They suggested an MRI scan but my…
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Diabetes ?
I had my annual blood test by my GP on Friday (supposedly to check for diabetes as well) - and the results are in .All satisfactory Serum lipid levels Serum cholesterol level 4.6 mmol/L [< 5.2] Serum HDL cholesterol level 1.11 mmol/L [> 1.45] Below low reference limit Serum non high density lipoprotein cholesterol level…
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Pain
Hi peeps now I'm 38 and have serious pain in my right hand my thumb had seized completely not allowing me to move it sinces not working the last 2 years I've noticed my joints grind click and crunch I've been for scan on hand all fine but I wake with numb hands and swollen joints drs say arthritis and prescribed naproxen…
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Functional Neurological Disorder (FND)
I have numerous autoimmune disorders but just last week I've been diagnosed with FND. Never heard of this before but after much research i'm very hopeful to be eventually with the right help to able to walk properly again, stop getting tired in the day and randomly losing my vision. I also have Non-Epileptic Attack…
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Hypermobility
Hello my name is daryl, I've not been diagnosed with hypermobilty as of yet.. but I'm here to ask questions about it. Ain't I was a child I've suffered some rapid dislocations, right elbow a few times, both knees several times including my right one last year and I haven't recovered. My wrists can have really bad days…
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Can anyone help we with my undiagnosed condition(s)?
I'll get straight to it. In November 2017 one day I noticed my muscles were fatiguing at a faster rate than usual most noticeably during physical exercise. It was seemingly spontaneous, numerous doctors and hospital appointments proved futile and this ultimately spelled the end of any hopes I had of pursuing a career in…
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Got my medication.
Picked my medication up on way for the bus, but didn't open the bag until I got home as there were too many people about. Had a look see what tablets I'm on and I have to take 1 500mg Metformin twice a day and this other tablet, that my mum also takes, which begins with an S, but I can't remember how to spell the name. My…
