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VNS Therapy Experience
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Fibromyalgia and adhd- medication options?
I've read a multitude of articles and papers which say there is a possible link between fibromyalgia and adhd, and the possible benefits of treating the first with medication for the latter, I just wondered if anyone is receiving this kind of treatment.
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I have my Hearr Scan Results
Hi to all, I recived my Letter on Friday saying that I have LAD artery blockage and will need to go back to Cardiology when they send for me I was in shock my daughters R saying this is a Serious Condition which it didn't say in the Letter but my Daughter said I will find out when I go for my Appointment. I just cannot…
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ankylosing spondylitis
Hi everyone i am 63 I have osteoporosis and since July Ankylosing Sopondylitis. very painful condition. I have fibromyalgia/ME and tinnitus and IBS. I have now been given biologics as other types of medication affect me. I know all medications have side effects but two pages of seriously side effects and family history of…
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Anyone with a similar disability? Arachnoiditis and Bronchiectasis
Hi my name is Krystal, I have just signed up for scope reason being maybe their is someone on here that has same disability as myself. I was told in 2016 I have a spinal disease but their is not a thing that can be done due to the disease it is called Arachnoiditis,and a condition in my lungs called Bronchiectasis stage 3…
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Crohn’s Help!
Hiya I’ve recently spend a month in hospital with sickness and diarrhoea, I’ve lost 15kg in that time, I’m still loosing weight and am struggling with eating and drinking due to the nausea and lack of appetite. I felt at my local hospital completely gaslighted, they kept on saying nothing was wrong with me and that it was…
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Hi, my name is janeandric! Unknown rash after B&B stay
We had a b and b stay in Blackpool I came home and the following day came out in a horrid rash. I cant sleep with the itching, ive used steroid creams and anti histamine there not working well. I've had little sleep. The rash started as spots lots and lots clustered together on my shoulders neck arms less on bottom my…
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Muscle spasms on one side of body?
I wonder if anyone can shine a little light on something I’ve been going through for a few weeks now. The only way I can describe it was a muscle spasm that started from my right foot, up my leg and right arm. I can’t recall ever feeling so much pain. I’ve since had a couple of other episodes, the last 111 was called and…
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Hi to all. I've seen the cardiologist
I have seen the Cardiologist and been put on betablockers have to go for my scans on the 5th of October I had to contact the cardiology dept at the hospital as I didn't recive my letters from them not good enough. I also have a gtn spray to use for chest pain. Sparklebright63
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Access to work for transport help
Hi, I've a colostomy bag and I'm on tube feeding through a catheder on my chest 12-15 hours a day. I'm going for a part time job interview next week. My friend is taking me to the interview. If I'm successful work place will be 30-50 minutes drive or about an 1 hour multiple train journey from my home. Due to my very…
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Hi, my name is amziegrace! I just got diagnosed with ADPKD with the variant pkd1
I just got diagnosed with ADPKD with the variant pkd1, and I have several cysts on both my kidneys and liver. Searching for people to talk to that can relate and exchange stories and information.
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PKD, anyone out there familiar with this?
Hi, my name is pippaT and I have Polycystic Kidney and Liver disease. Is there anyone here that has the same or cares for someone with the same. I would love to find other PKDers to chat to and compare notes etc. Also having the all too familiar problems with PIP and ESA, but that's another story!
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Diverticular disease. How many flare ups a year do other people get?
Hi everyone thanks for excepting me into the group,my question is how many flare ups a year do other people get with this nightmare of a disease any advice would also be really welcome 🙏
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PAE for BPH Prostate
Rather than the normal method of prostate reduction - have any of you (males) had PAE (Prostate Aryery Embolisation) ?This involves blocking the blood vessels supplying the prostate with tiny plastic particles - thus reducing the blood flow and the size of the prostateI have been told that my alternatives are drugs (which…
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New Girl. Anybody else out there with good, bad or in between tales of FND??
Hi all I was diagnosed with FND 2 years ago and it was only 2 weeks ago that I met a professional who not only knew about the condition but also knew where to get help but how to get help. She also really has my back as proven by the kick-ass letter she wrote to my GP and my Neurologist. What a blast of fresh air she is.…
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Pain relief during hospital procedures
I had two hospital procedures last week1. a Sigmoidoscopy - for which I was given gas and air (entenox) as pain relief2. a flexible cystography for which no pain relif was available (except for a dab of gel on my penis head) - this was an incredibly painful experience, my blood pressure went through the roof, and I can see…
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Hi, my name is Bromsgrove11! Struggling with Chiar i malformation type 1
Struggling with Chiar i malformation type 1 . Headache under control but muscle weakness and pain is unbearable. Constantly falling over nothing too. Is this normal as I know so little?
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Trying to rational my symptoms
So I have been diagnosed with mixed anxiety and depressive disorder, PTSD, dyspraxia, non epileptic attack disorder/functional neurological disorder and I’m suspected autism and adhd. Anyway, I went to my local hospital around two months ago with feeling dizzy and really severe head ticks. They suggested an MRI scan but my…
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Diabetes ?
I had my annual blood test by my GP on Friday (supposedly to check for diabetes as well) - and the results are in .All satisfactory Serum lipid levels Serum cholesterol level 4.6 mmol/L [< 5.2] Serum HDL cholesterol level 1.11 mmol/L [> 1.45] Below low reference limit Serum non high density lipoprotein cholesterol level…
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Pain
Hi peeps now I'm 38 and have serious pain in my right hand my thumb had seized completely not allowing me to move it sinces not working the last 2 years I've noticed my joints grind click and crunch I've been for scan on hand all fine but I wake with numb hands and swollen joints drs say arthritis and prescribed naproxen…
