Is there anyone else on this group who has achalasia and oesophageal dismotility

firegratekim

Hi . Is there anyone else on this group who has achalasia and oesophageal dismotility please. Both incurable diseases ? 

Ami2301

Hi @firegratehim welcome to the community!

I have not heard of them before, could you tell us a bit more about them please

Pippa_Scope

Hi @firegratekim, and a warm welcome to the community! Great to have you here.

I've had a look around and you appear to be the first person to discuss these things on the community! We'll share this around, but would you like to tell us some more about them in the meantime?

Jean_OT

Hi @firegratekim

Welcome to the community.

Here are a couple of links to websites discussing these conditions and their management: 

https://www.nhs.uk/conditions/achalasia/

https://ctsurgerypatients.org/lung-esophageal-and-other-chest-diseases/achalasia-and-esophageal-motility-disorders

Best Wishes

Jean

siobhan1

Hi, I was diagnosed with esophageal dysmotility secondary to Ehlers Danlos 2 years ago... at the moment I'm trying to manage by eating sift foods or if not then someone is with me constantly while eating and I push the food down with water. There are still some days I choke on my own saliva when it goes into spasm and I just can't swallow. I've never met anyone else who has this. I have always had problems swallowing and dysphagia but over the years it's got worse. I had a cancer op a couple of years ago and the suction tube damaged by uvula and since then it's been a lot worse. I had steroids for the swelling at the time but my esophageus has never worked properly since 
. How are you getting on?