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NHS Dental implant cost help?
Hello. I'm currently under my hospital community dental team. I have Thyrotoxicosis, post subarachnoid haemorrhage ten years, spondylosis, complex post traumatic stress disorder, and post heart attack one year. Outwardly I'm a slim and healthy looking 54 but my teeth are falling out due to my conditions and medications.…
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Hi, my name is Isis! I got HBP after the Moderna vaccine
I got HBP after the Moderna shot & a homeopathic doctor had warned me not to get vaccinated for the side effects I can experience after the COVID vaccine.
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pins needles an numbness in my fingers
at the end of last year i started to have pins and needles in my fingers and they kept going numb. i went to the drs and had a blood test. i was told their was nothing wrong. i put up with it until april when it got worse and my hands started shaking which is very annoying. in the meantime i had changed drs. i was given…
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Thinking about starting a meetup group for those with undiagnosed/rare conditions
I am debating whether to start one or not as I don't know if people would be interested. Would be based in the south east of England and monthly and free. Doing things like the following: discussions, eating out, day trips
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PVNS in knee, quality of life?
Hi there. I went for an MRI believing I had a meniscus tear. I only found out I had PVNS when written into a letter sent to my GP. The consultant really couldn't be bothered with me tbh. I was the last to be seen and he was running 50 mins behind. All he said was it was arthritis and it would degenerate. I asked about long…
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Checking in, How are you all?
It's been a long while since I was last on her. What has everyone been doing to keep busy during this pandemic time? What are your plans for 2022?
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Anyone had a cystectomy?
Hi I'm looking for advice regarding having a cystectomy if you have cerebral palsy. My dad has bladder cancer and we are finding the choosing the correct treatment alongside the consultant is proving difficult. If you have any advice regarding the operation and after care, we would be extremely grateful . Thanks
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Cervical Dystonia
l have this type of disorder which affects my daily life regularly. lt all started when l was 14 years of age. When l felt something very strange just under the base of my brain. Which l did not know not what this was at the time? lt is called the "Basal Ganglia" that controls the movements of the bodies muscles. As time…
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Hi, my name is pleasehelp101 and I really need help.
Hi everyone, I don't know if this is allowed here or I'm posting this in the correct place, so please bear with me if I'm not. I'm 24 years old and going through a really difficult time with an "invisible" illness that I thought was a mental health issue but now I'm not sure, and my "support system" has turned it's back on…
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Prada Willi Syndrome
i have prada willy syndrome i want to find a sugestion to help me torwards life.
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how to reduce blood pressure
Hi, for the past month my blood pressure has been very high. My doctor have today put me on some medication they want to try. They have said about reducing my salt intake but not sure what they mean. So, I am wondering if anyone has had high blood pressure and what they have done to reduce it which includes changing their…
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Insulin pen needles prescription rejected
Hello everyone, Yes, its true a GP rejected my script for pen needles, then a receptionist refused to help me get another prescription. I produce no insulin of my own and without pen needles I can't inject insulin which keeps me alive. This can lead to a chronic life threatening condition DKA ( diabetic ketoacidosis)…
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Does anyone have HSP?
Hello im paul. I got diagnosed with HSP late last year but never really heard of it before. It began when i was walking with a limp until after a MRI my other foot went stiff and now im walking on the tips of my toes. It just gets worse. Iv lost my job and my social life dont exist anymore. Has anybody else had this? Im…
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Irlen syndrome
I have condition called Irlen syndrome and I am ambassador for my condition. I like raising awareness for my condition and feel more needs to be done as in schools many children are going undiagnosed do I feel every school needs a Irlen screener, as I didn’t get diagnosed to I got to college
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Need help/advice w/t chronic disabling nerve injury
Hi everyone, In February 2020 I became poorly at home. After vomiting for a week and feeling extremely weak I collapsed in my bedroom. The way I fell I landed with my legs folded underneath me, and I was too weak to get up so I was basically sitting on my folded legs, I passed out and by sheer luck my sister visited me and…
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Fibromyalgia or 'just' menopausal?
Hi everyone I was diagnosed with fibromyalgia in my early 40's and at the time, though neither I nor my rheumatologist knew it then, I was also perimenopausal. Since recently reaching the other side of the menopause and searching for ways to improve my symptoms, I have begun to question whether my fibromyalgia diagnosis…
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Everyday life with IBS
Experienced by many but discussed by few, irritable bowel syndrome (IBS) is a common, but under researched, condition. From pressured morning routines to uncertain toilet provision, living with IBS can reshape everyday lives as unpredictable symptoms meet with inaccessible environments. The below animation captures the…
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Hello I’m new to the group! Any tips on how to help/understand a disabled child?
Hello, I’m new to this group as we’ve been trying to find support for what my daughter has. She’s been diagnosed with CFC syndrome a rare genetic disorder. With additional needs, thought we’d come in here and see if anyone has tips or advice, books, that anyone can suggest on how to help/understand a child with a…
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Anyone had a Flexible cystoscopy?
I have to have one on Friday and I am absolutely bricking it. Anyone had one?
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Hi, my name is lin0804! I have Orthostatic tremor
Hi I have Orthostatic tremor, leg tremors and falling backwards when standing, need to hold onto things so I don't fall, it is a very rare condition and I am coping as best as I can.
