Pressure sore, Oestomyelitis & potential amputation.

Deco1808 Community member Posts: 2 Listener
I have a pressure sore on my backside for the last three years. I have had multiple skin grafts to try close it but none of them worked. I have now been told I have very bad oestomylitsis in the pelvis and my only option is to get my leg amputated, its actually called a hind quarter amputation so includes the pelvis. 

Anyone any experience of anything like this ?. 
Any advice or information would be greatly appreciated, I’m at my wits end over it as I feel at this stage I have been through enough and not sure I could cope with it. 


  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    Hello @Deco1808 thanks for reaching out today. 

    I'm really sorry to hear the pressure sore has led to needing to have an amputation. Have you spoken to your GP and any specialists working with you about how this news has made you feel? They can work with you to help you feel heard and supported.

    Do you know what caused the pressure sore at all? Sometimes if the chair we use isn't right this can really aggravate pressure in places we don't want it to be. If you have an Occupational Therapist, perhaps you could speak about finding mobility aids which are going to support you to be independent, without causing you any additional pain. 

    I'd like to share some information on amputation from the NHS which I hope you'll find helpful:

    Being told you need to have a limb amputated can be a devastating and frightening experience. Adjusting to life after an amputation can be challenging, but many people enjoy a good quality of life once they have managed to adapt.

    There are a number of charities that can provide advice and support for people living with amputations, which include:

    If you feel we can help with anything further please do let us know. You are not alone in feeling this way, and hopefully our members can share their thoughts with you soon as well.
  • janer1967
    janer1967 Community member Posts: 21,922 Championing
    Hi and welcome to the community 

    I am an amputee below knee so not quite the same 

    I had years of foot ulcers and infection leading to sepsis 4 times and as the bones were infected advised on amputation as only solution 

    Tbh even though it was life changing it was best decision I made as my physical health improved so much I actually felt 100% better 

    I'm now 5 years down the line and adjusted to my disability 

    I do understand your situation is different but 8f you want to ask anything I'm happy to help