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Hi, I'm Michelleuk48! I struggle with recurrent infections. Does anyone else + how do you cope?
Hi my name is Michelle I've been poorly since I was 11 in the last 3yrs I've had 27 various infections does anyone else have alot infections any advice I'm at my wits end on how to cope with them xx
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Fibromyalgia depression and loneliness
Hi everyone my name is nat i have fibromyalgia and in the last year lost 2 of my closest friends the avoied me dont answer my messages i jave 5 kids and recently been really down to the point im now on45mg mirtazipine witch i really dont want to be on but cant help but feel down all the time i have no one round me as all…
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The truth about stomas and why stigma needs to be silenced.
Living with a stoma Stomas get a bad rap. A sign that the bowel is ‘dysfunctional’ and the body can’t control its own waste, our collective reaction towards them leans to awkward disquiet. This unease with the presence of poo is reinforced in myriad ways as we grow up: comedy sketches where explosive diarrhoea gets the…
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The DWP are going with failure to disclose
F A O mikehughescq Because he really seems to know his stuff, but also any help much appreciated the dwp are going with failure to disclose and are basing their case on the fact that they sent the claimant leaflets (no evidence seen in claimants house) the claimant could not read and this would appear to have been accepted…
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Fibromyalgia and walking aids, do they help ?
Good evening. I was diagnosed almost a year ago with fibro and cfs , since then I have become progressively worse, more so with nighttime pain , restless legs and really bad stiffness in my legs. I work full time (currently on furlough due to covid) . I am unable to take painkillers due to stomach issues , I am on…
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Disability and sexuality
Most people are sexual beings, and have sexual thoughts, attitudes, feelings, desires, and fantasies. Having a physical or intellectual disability doesn’t change your sexuality and your desire to express it – or the emotions that can go with it. In fact, the World Health Organization says sexuality is a basic need and…
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My thoughts on getting an ADHD diagnosis at 40 years old.
I wanted to share my story as I know first hand how ADHD can seriously affect your life. One week ago I was diagnosed at 40 years old and it literally is the final piece of the puzzle. It literally explains everything. I wanted to share my story so anybody that is waiting to be assessed or has been assessed may resonate…
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How do you get gp or hospital consultants to take you seriously?
Hi, I'm Aztariyel and just wondering if anyone else has had trouble with getting medical professionals to listen? Over the years my family have had bad luck with nhs as I'm sure many have. For me I got diagnosed with ME when I was 16 (32 now) which seems to be a get out clause for anything else. I was diagnosed with…
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I'm a guide dog owner, and find that people talk to me when I'm with my dog, but not when I'm alone
I’ve just found out about the Invisible Disabilities campaign and think it’s a wonderful thing to do. I’m a Guide Dog Owner currently trying to get my confidence back after 18 months of shielding. Do other GDO’s find that if they’re out with their dog people - even neighbours - don’t hesitate to come up and talk but if I’m…
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I'm feeling fobbed off by my doctors, and want a definitive answer
Hello i havent posted on here for a very long time but im being fobbed off yet again by doctors i was diagnosed with mild spastic diplegia when i was 25 10 years on and i have problems with my left leg been told its a dystonic.spasm been told that some of my symptoms are psyccoscematic been told again that is there is use…
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Worrying health concerns
I’ve not posted this for the sympathy but more for the support. I’ve kept this quiet from family and friends because I don’t want to worry them. I haven’t been feeling very well for nearly 12 months and I have my ups and downs. I don’t want to list all my symptoms or go into detail it’s too personal. I’ve luckily had the…
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Bell's Palsy / Anxiety. Should I change my role to a non-facing one?
Hi, I was a long time user of Seroxat (paxil) 12 years+ which I took to curb debilitating panic attacks owing to social anxiety. I weaned myself off them 3 years ago. Last year I was hit by Bells Palsy which has affected my confidence as I can no longer smile as one side of face is lopsided. I work as an engineer for a…
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Hi, my name is Eunomi ! I have FND, and believe research is key
Only had symptoms for six months just diagnosed as FND now partially sighted and mobility problems. as a retired nursing sister a little knowledge doesn’t do you favours. When it is a condition that even Drs don’t understand. So research is key to keep on top of the latest centres of excellence. And help fellow sufferers.
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Hi, I'm Leebrom! Looking to find information on Myasthenia gravis (MG) + help others.
Hello every my name is Lee from Manchester I was diagnosed with mg in 2014 just thought I would come on here to see if I could find information on the illness and also to see if I could help an1 out who suffers with mg
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Weird symptoms for the past 3 days
Hi, I quit smoking weed on Thursday last week after smoking heavily for 2 years and have been having strange symptoms the past few days. I would smoke as soon as I woke up all day to the point I went sleep. I have crohn's disease, gilberts syndrome autism and schizophrenia too. I also have a perminent ileostomy. I keep…
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Epilepsy
Epilepsy Action support Brighton and Hove coffee and chat All local branch and group face to face meetings and activities have been suspended. We realise that many people rely on their group meetings and activities for information and support. Some of our groups are offering information and support through local virtual…
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Body feels heavy, numb, tense, tight, stiff, weak, rigid - headache - eye pain - brain fog - voices
Hello all, I'm a male and I'm 23 years old. Below is the detailed list of symptoms of my undiagnosed illness. If anyone has heard of any illness like this, please let me know! I hate living like this! This undiagnosed illness has caused me to drop all of my classes at college. It also stopped me from doing the things I…
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Has anyone been through the menopause with lupus? Can you give me any pointers?
Having been diagnosed with lupus since 2015 it has been managed well with varying doses of steroid. I am 51yrs, the last year has been pretty dreadful, Covid caused me a great deal of stress and anxiety, on top of that my sister who lives abroad came close to death on 2 or 3 occasions due to bowel cancer complications, I…
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Has anyone got experience of coming off Adhd medication?
Hello, im a woman in my 30s who has always been told ha suffered high level of anxiety since childhood that’s never resolved with therapy or medication. My gp has referred me on for an adhd assessment after I flagged a lot of boxes and he wanted me to be investigated. I’ve been told treatment would be medication but the…
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Tourettes syndrome
Hi everyone, My name is Helen and I live in Pembrokeshire with my husband and 3 girls. My 16 year old is autistic and my 13 year old has tourettes syndrome, adhd and is selective mute. I am supporting a campaign to get medical care for our children with tourettes syndrome. Most of the UK has none. Wales has 1 specialist…
