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Swollen lymph nodes
have had swollen lymph nodes(glands) for approx 5 months. Seen by ENT , luckily no biopsy needed. Ultra scan showed benign lymph nodes and thyroid. Told nothing to worry about, but also that the glands won’t go down. To return if they should get bigger. Anyone else experienced this. I feel poorly some days with this, seems…
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Alexithymia
Better known as emotional blindness it's a failure to recognize or be able to describe your own or from my point of view be aware of them I think except anger and verbal aggression. Also being able to see or know them in others, again, for me. It's a tough one, even just to define!
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Misophonia
Didnt realize this was a condition till a few years back. Thought it was just some weird thing with me. Definitely a flight or fight thing with me. I get it visual as well as hearing. Wondering if its linked to autism.
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Paralysed diaphragm phrenic nerve damage
Hi all. Been diagnosed phrenic nerve damage and paralized diaphragm following surgery. Struggling with breathlessness on exertion and unable to do my job..getting me down. Would like to hear others experiences
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Anyone have any experience with POTS?
Hi, I’ve been researching pots for a couple of months and a lot of it seems to fit me. I think I naturally have quite a high heart rate anyway, my resting heart rate is about 85/90 bpm but when I stand up it consistently jumps higher. Usually to around 130 bpm, it goes back down to 95/100 bpm in about 5 minutes. I’m 23…
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Spirometry results
Hi all, I'm not sure where this would be relevant so I apologize in advance, I finally got my results from respiratory services, my sleep apnea screening showed up low oxygen levels several times, my spirometry showed that my lungs were restricted as appose to obstructed, I'm being referred to a lung specialist and for a…
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Paralysed vocal cords
Hi i'm wondering if anyone else has suffered this. I had a total thyroidectomy 6 years ago. woke up and not been able to breath properly since. was told one side is paralysed in the open position and the other side is dysfunctional. not treatments offered due to breathing problem. i have just been left like this.
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I'm new here. I have diverticulitis
Hi my name is BKos and I'm new here. I have diverticulitis and wanted to hear how others deal with it, what to eat, drink, can you drink wine etc.
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Bowel resection
How "major" is a Bowel Resection" for a 91 year old male ?My Dad has to have one in 2 weeks - he had polyps in his intestines which he tells me were removed last year..
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Assistance Dog
A big hi to everyone 😁. Does anyone have an assistance dog and has had a bad experience? I am usually shouted at NO DOGS even though I have a barnyard, the other day I got refused entry when I explained he is my assistance dog they still banned me 😪
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Struggling with being honest
Do you ever feel like you can't be honest with your friends and family about how scared/impacted you are by your health conditions/disabilities? I still don't have a diagnosis for my issues but it's finally pointing towards a rare autoimmune condition. A particular antibody I have tested positive for is highly associated…
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I don't know what's wrong
hi I am used to being part of online communities and feel supported with stuff like my mental health. My physical health declined last september and I have been very isolated in this experience. In 2020 I started to become unable to walk after a few minutes, my lower back on the right side would get tight, moving to left…
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Colitis
My colitis has started and I've not been well all day . Hardly anything to eat and feeling really low. Despite medication it still doesn't feel very nice at all .
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Running out of options, just looking for a bit of advice on next steps.
Hi all 😀 I'm just looking for a bit of advice from anyone with similar symptoms or in a similar situation on what to do next, I have added some personal things like medical history and meds incase anyone experienced similar symptoms on the same meds or with the same medical conditions. Any advice is greatly appreciated, ♥…
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Rare conditions synovial osteochondromatosis.
Not sure if this is in the right area of the forum here? Just discovered today I have a rare condition among other more popular ones. Anyone else have this? I have a condition called synovial osteochondromatosis. Is it as randomly disabling as it is for you as it it me from one day to the next. Massive fluctuations in a…
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In chronic pain with degenerative disc disease. Anyone had injections in the lumbar region/surgery?
Hi all, I hope your all doing as good as possible. I’m in constant pain with degenerate disc disease cervical and lumber. Has any one had injections in the lumbar region which has helped? Also has anyone had surgery in cervical to relieve pain. I’m really fed up with this pain, it is there all the time, it wakes me when…
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Abdominophrenic dyssenergia - chronic bloating!
Hi folks, I came across this forum after finding a thread from another abdominophrenic dyssenergia sufferer here. At @Hannah_Scope 's suggestion I said I would write a short introduction. Abdominophrenic dyssenergia (or APD for short) is best described as a miscoordination of energy (hence dyssenergia) between the…
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Hi, my name is Lunadog! I am considering fusion surgery
Hello everyone, I am here because I can hardly walk due to a numbness/partial paralysis of my right leg. I had surgery, but it failed to help me still have condition 8 months later I am considering fusion surgery , But of course I am skeptical that it will reverse my condition. I hope that we can share our experiences, and…
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I have an undiagnosed symptom that is so strange that explaining itself is a difficulty
Hi all, I apologize if this is not the right place to post a rather long and personal story, but I have been struggling with my own emotion for so long that I just wish to be able to share, to write down how this condition makes me feel physically and mentally. I guess the best way to explain what I have is to say that it…
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Worried after CES surgery
Hi I have suffered with sciatica for years now but in march this year i had emergency surgery on my spine L4-L5 discectomy and decompression for cauda equina syndrome...however its now 3 months on and my back feels the same as it did before the op..so if they had decompressed the nerve why do I feel like this again...I'm…
