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Running out of options, just looking for a bit of advice on next steps.
Hi all 😀 I'm just looking for a bit of advice from anyone with similar symptoms or in a similar situation on what to do next, I have added some personal things like medical history and meds incase anyone experienced similar symptoms on the same meds or with the same medical conditions. Any advice is greatly appreciated, ♥…
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Rare conditions synovial osteochondromatosis.
Not sure if this is in the right area of the forum here? Just discovered today I have a rare condition among other more popular ones. Anyone else have this? I have a condition called synovial osteochondromatosis. Is it as randomly disabling as it is for you as it it me from one day to the next. Massive fluctuations in a…
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In chronic pain with degenerative disc disease. Anyone had injections in the lumbar region/surgery?
Hi all, I hope your all doing as good as possible. I’m in constant pain with degenerate disc disease cervical and lumber. Has any one had injections in the lumbar region which has helped? Also has anyone had surgery in cervical to relieve pain. I’m really fed up with this pain, it is there all the time, it wakes me when…
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Abdominophrenic dyssenergia - chronic bloating!
Hi folks, I came across this forum after finding a thread from another abdominophrenic dyssenergia sufferer here. At @Hannah_Scope 's suggestion I said I would write a short introduction. Abdominophrenic dyssenergia (or APD for short) is best described as a miscoordination of energy (hence dyssenergia) between the…
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belly pain for 3 years, no diagnosis
Hello Everyone! I'm new here :) Wanted to share my story, hoping maybe someone would have an advise or something... I've been in pain and undiagnosed for 3 years now and not sure what to do anymore, so I'd appreciate any feedback. My story started when I was 16-17, once a year I'd get episodes of a very painful attacks on…
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Hi, my name is Lunadog! I am considering fusion surgery
Hello everyone, I am here because I can hardly walk due to a numbness/partial paralysis of my right leg. I had surgery, but it failed to help me still have condition 8 months later I am considering fusion surgery , But of course I am skeptical that it will reverse my condition. I hope that we can share our experiences, and…
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I have an undiagnosed symptom that is so strange that explaining itself is a difficulty
Hi all, I apologize if this is not the right place to post a rather long and personal story, but I have been struggling with my own emotion for so long that I just wish to be able to share, to write down how this condition makes me feel physically and mentally. I guess the best way to explain what I have is to say that it…
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Worried after CES surgery
Hi I have suffered with sciatica for years now but in march this year i had emergency surgery on my spine L4-L5 discectomy and decompression for cauda equina syndrome...however its now 3 months on and my back feels the same as it did before the op..so if they had decompressed the nerve why do I feel like this again...I'm…
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Chronic Kidney Disease
I was diagnosed with Stage 3 Chronic Kidney Disease yesterday, just wondering if anyone else has this? I've been hospitalised twice with kidney infections, the most recent being in September last year - both times I've been really severely poorly with it and it's just not a pleasant thing to experience. I've got one kidney…
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FND
Hi ,I was diagnosed with FND a year ago.I have mobility issues,fatique,arm ,shoulder, neck pain,tremors ,hallucinations,noise intolerance .I am 49,married to a fabulous man and have 2 boys and a dog.glad to be part of this group.any one else have FND?
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Clinically isolated syndrome
So I was diagnosed with transverse myelitis.. at my appointment a year ago I was under the understanding I was just diagnosed with that.. but they hadn't received my lumbar puncture results. Got a call a few days later saying the spinal fluid was inflamed meaning I was at a higher risk of another attack. Anyway last Monday…
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I think i have carpal tunnel syndrome
My right hand and arm is weak and at night tingles and goes numb. This started two days ago. I think it due to overuse or sleeping in my right side a lot. I struggle to do certain tasks and it's making me get worried. I hope it doesn't get worse I hope it gets better. I'm 31 female, got a lot of health issues it's…
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Fnd
Hi, I have been told I have fnd, but they way I was told was " my mind is playing tricks on me " I have limited use in left arm leg, feel like they have had an injection to numb them, migraines, get confused and loose interest in things and can't find my words when I speak, and pain in joints and muscles This started March…
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PIP EVIDENCE
Does anyone know how long it takes for pip to send text evidence received after sending it off ??
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Degenerative Disc Disease
Hello, I’m Dave and live in Telford. I’m interested in the views about the above especially when it comes to claiming PIP. I’ve worked all my life but are coming to the stage where DDD is making my job very difficult to do. I’m 58 years of age.Â
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Decline In Cognitive Dysfunction
A long history of cognitive dysfunction Back in the 90s, my university gave me lots of extra support on the back of a cognitive function and memory assessment I paid for privately.. I was in my mid-30s at that time. I adjusted pretty well by accepting that the issues that had followed me all through my schooling had…
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Colitis
Been struggling with colitis symptoms. Got to try some different medication to see if it helps. Feeling a bit down.Â
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Hi, my name is dennisR! suffering with side effects of the Covid vaccine
Iam suffering with side effects of the Covid vaccine and looking for others in a similar situationÂ
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Hi, my name is wol139! my neurologist suspects I have hsp
Hi there. I’m a lil scared as my neurologist suspects I have h s p I’m waiting for brain mri at mo. I have all the symptoms and it’s progressing. Need someone to talk to. X
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MS and coronavirus
What would you say to somebody who has MS and is terrified of catching COVID. As a result is afraid of entering any inside rooms preferring to stay outside apart from her own home?
