Hello Everyone!
I'm new here
Wanted to share my story, hoping maybe someone would have an advise or something... I've been in pain and undiagnosed for 3 years now and not sure what to do anymore, so I'd appreciate any feedback.
My story started when I was 16-17, once a year I'd get episodes of a very painful attacks on the right side under my belly button, I couldn't move and it was painful to breath. I always thought it was appendicitis, but by the time we would get to the ER the pain would resolve on itself and ultrasounds wouldn't show a thing. Fastworward to 2020, I was 30 and although I still got those attacks here and there, I kind of gave up on searching for an answer because doctors would not take me seriously. In 2020 I woke up in the middle of the night from the same type of an attack but multiplied to 100. It was excruciating, I couldn't get dressed and was glued to the wall, inhaling and exhailing was a tourture. The ambulance workers got me to the ER, where the ultrasound didn't show anything and gynocologiest said I was fine, got several injections of painkillers and was released home. Unlike my other attacks this one never stopped, I was in a constant pain, any movement felt like something was about to tear inside of me, and sharp pain attacks would come and go 5-10 times/week now.
Now it;s been 3 years, I am still in pain daily, walking, sitting sucks. I had all possible tests done, gastroscopy, 2 colonoscopies, 4 ct scans, 1 mri, - nothing, nada. I had a diagnostic laparoscopy where they cut off my appendix just in case it was a case of a chronic appendicites, - for 3 weeks I was okay-ish, then the pain got back. I dont experience nausea, diarrhea or anything, - just pain..The only thing they found is that I have elongated colon, my trasverse colon hangs down like xmas lights under my belly button and my cecum is lying down in my pelvis, lower then it supposed to. 1 surgeon suggested I might have mobile cecum, - but all scans look pretty much the same, so I guess the cecum doesn't really move around much..
I am now pushing surgeons to do a right hemicolectomy to just remove the whole ascending and transverse colon, hoping it would be the answer and i will go back to my normal life.. But since nobody know for sure, I don't know if I should do a major surgery like this, I mean- what if it isn't the issue and on top of this pain I will have complications? I dont know what to do anymore...
So yeah.. Thank you for reading my "essay", like I said, I would appreciate any response, feedback or advise..
Thank you<3
