Hi, my name is catch29!

catch29
catch29 Online Community Member Posts: 3 Listener
in Start here and say hello!
Hi. I'm 73, retired and living in Bletchley . I'm hoping to find out more about the long term prognosis for my PN which has been 'creeping' long now for about 6 years.

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  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    Hello @catch29 and welcome to the online community, great to see you join :)

    You'll have to forgive me for asking, but can you explain what PN stands for? 

    How are you finding things at the moment?
  • chiarieds
    chiarieds Online Community Member Posts: 16,682 Championing
    edited December 2022
    Hi @catch29 - & welcome to the community. Do you have peripheral neuropathy? If so, then the long term prognosis may depend on the underlying cause, but will likely be variable in each individual.
    You should be able to discuss this with your GP if not in person, by phone.
    There are some support groups, but again the most helpful would likely depend on the underlying cause; if you let us know, someone here may be able to advise further. We have also had other members with PN.
  • catch29
    catch29 Online Community Member Posts: 3 Listener
    Hi, thanks for the info.
  • catch29
    catch29 Online Community Member Posts: 3 Listener
    @Alex_Scope Hi. PN or Peripheral Neuropathy, bit of a mouthful. Getting worse. 
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    Morning @catch29 and thanks for explaining, I'm sorry to hear it's getting worse. Do you have loved ones you can chat to about it? Talking won't slow things down or take away physical symptoms, but it can definitely help with your wellbeing- and we're always here if you need to vent too.

    I'd definitely echo other member's advice here and encourage you to speak to your GP if you can. They'll be able to help support you with managing your PN symptoms day to day.

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