NEAD. Does anyone suffer with seizures and personality Disorder?

amidagirl_51

Does anyone suffer with seizures and personality Disorder?

Tori_Scope

Welcome to the community @amidagirl_51 Thank you for joining us! 

I don't live with NEAD or a personality disorder, but I hope another member with experience of these conditions will see and respond to your post soon. I could be wrong, but I think that @bluefox has mentioned living with NEAD, so you two might like to connect.

Would you like to tell us a little more about your experience of living with NEAD and a personality disorder?

bluefox

I do indeed live with NEAD. 

First started November 2020. Diagnosed officially May 2021. And just recently seen a Neuropsychologist about this condition and will continue to have appointments. 

amidagirl_51

I've had partial seizures for years and never told anyone I put it down to my mental health and I coped with it. It's when I started having full on convulsions, I seeked help.  Unfortunately apart from giving me a diagnosis I've not been offered anything else.  How often do you have them? 

 

bluefox

amidagirl_51 said:

I've had partial seizures for years and never told anyone I put it down to my mental health and I coped with it. It's when I started having full on convulsions, I seeked help.  Unfortunately apart from giving me a diagnosis I've not been offered anything else.  How often do you have them? 

 

I can have them 2-3 times a week, some weeks none or other times in clusters (especially when stressed). They happen in 7 different ways including loss of consciousness and awareness but also blank staring spells. Other times I go completely rigid, stiff and gasp for air and then ‘come out of it’. 

The most unusual thing was having the seizures conscious. Now that was weird but according to www.neurosymptoms.org it’s a good sign. 

How about yourself?

Taliesen

I have suffered with nead for 8 yrs, even cost me a job 5 yr ago, cnt work as dont fall under insurance buffer for epileptics, I can have  up to 30 in one sitting,  I'm on  PIP for it, I have full body convulsions with my seizures along with breath holding. I have cptsd due to childhood abuse for 15 yrs and its a coping mechanism from that I was told when I was diagnosed. Neurology were ones who diagnosed me and then discharged me.