How do families with a child with Cerebral Palsy experience diagnosis and the first five years

Richard_Scope
Richard_Scope Posts: 3,755 Cerebral Palsy Network
in Cerebral Palsy Network

Qualification in Counselling Psychology                              

The British Psychological Society

St Andrews House

48 Princess Road East

Leicester

LE1 7DR

PARTICIPANTS NEEDED

 

WOULD YOU LIKE TO PARTICIPATE IN A STUDY WHICH MAY HELP TO EDUCATE OTHERS AND GIVE FAMILIES LIKE YOURS A VOICE

 

Title:

How do families with a child with Cerebral Palsy experience diagnosis and adapt to the first five years of life

 

Research Aims:

 

·       To expand practitioners’ understanding of the experience of diagnosis for families

  • Discover what meanings were made by families, linked to the experience of diagnosis and adaption in the first five years of life
  • Discover if there was anything which mothers believe may have assisted their families in psychologically adapting to the diagnosis 

 

What would participation involve:

 

  • Sharing your and your family’s experience of receiving a diagnosis of cerebral palsy for one of the children in the family.

 

  • As a participant, you would be asked to set aside about 2 hours of your time, at a time that would be convenient to you.  The research will involve you taking part in an interview via video or held in one of the rooms at the organisation’s offices.

 

  • This research will be undertaken as part of a master's research dissertation, with the aim of publishing the research for other health professionals to read, once the marking process has been completed.

 

 

To register your interest, please complete the short form below providing contact details and consent to be contacted for further information.

 

 

REGISTRATION OF INTEREST 

 

 

Full Name:………………………………………      Title……….

 

Telephone Number:………………………………

 

Email:…………………………………………………………………….

 

Marital status:

 

Single     Living with partner     Married     Other

 

The number of children:…………..

 

Primary spoken language…………………..

 

I confirm that I would like to register my interest in participating in the study advertised and give my permission for the researcher to contact me to provide me with further information.

 

I understand that I have the right to withdraw my participation, personal details and data at any point if I decide not to continue with the study.

 

I also understand that on rare occasions if there is a high level of interest in participation, not all parents that express their interest may be able to be included in the research and participants will be chosen on a first-contact basis.  The researcher will contact you if this situation arises.

 

 

Signed:………………………………………..           Date………………………

 

 

Please email this completed form directly to the lead researcher Tina Greene via her secure email address: t.greene1@nhs.net 

 

 

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