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PiP/financial support for fibro

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JSlay87
JSlay87 Community member Posts: 1 Listener
Hi all,

I have fibromyalgia and often I am able to function in a relatively normal capacity and work through the pain levels and fatigue. Increasingly however my flare ups are lasting longer and getting more severe to the point where I am currently walking with a cane. 

My question is does anybody have experience in claiming something like PiP or financial aid with this. I had a look at the PiP assessment and how I answer it very much depends on if I'm having a flare up and I don't know what to do! 

Any advice would be greatly appreciated.

Many thanks,
Jack

Comments

  • calcotti
    calcotti Community member Posts: 10,010 Disability Gamechanger
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    PIP is based on how you are on the majority of days over a 12 month period. Therefore it isn’t based on your best or your worst days. Look at each activity and think about the number of days you have difficulties with the activities. Some conditions are affected by seasonal changes which is why a 12 month period is used. There’s a lot of information on how PIP is assessed here
    https://www.gov.uk/government/publications/personal-independence-payment-assessment-guide-for-assessment-providers/pip-assessment-guide-part-2-the-assessment-criteria

    Information I post is for England unless otherwise stated. Rules may be different in other parts of UK.
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    Hello @JSlay87 and thanks for your query, I'm sorry to hear your flare ups are lasting longer. Scope has some clear guidance on applying for PIP which I hope you will find useful. 

    You can also use Scope Helpline to chat with one of our advisers directly, by phone or email. 

    When answering the questions, try to think about how things are a majority of the time. Make notes of some examples where you are perhaps struggling or feel limited doing a daily task. 

    If you need anymore help with this, please do ask :)
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    Scope

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  • livelife87
    livelife87 Community member Posts: 26 Connected
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    Hi JSlay87,

    I’m currently in the process of an application for Fibro similar to the level of severity and intensity as you. 

    I applied on 3rd Jan and had an assessment just this week on 7th Feb. Got a text the same day to say PIP report received and called the next day for copy of report which I received today. Looks like I’ve been recommend 11 points for daily living and 10 points for mobility, which I think is quite good. Just waiting for official decision and super anxious about the result as I’m concerned the DWP will go against it and score me lower but trying to be positive and not think about it too much.

    Anyways, the point is, yes, you can certainly apply for PIP if it has an impact on your daily life and doing regular things.

    These forums have been super helpful as well as one of the Scope telephone advisors who went through my application with them. I definitely recommend speaking to them. 


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