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I feel like a prisoner in my own home

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paulmitch26
paulmitch26 Community member Posts: 27 Courageous
I get pip high rate for yboth now i feel like im not alloud out. I have HNPP and i have to walk on my tip toes i just feel astho im doing wrong or if somebody makes a malicious claim against me. Getting pip changed my life im scared of loosing it when in actual fact im in agony whenever i stand up but i need to get out. Am i meant to stay indoors on pip or do the government expect me to try live my life? Help please

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  • poppy123456
    poppy123456 Community member Posts: 57,053 Disability Gamechanger
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    No, you do not need stay at home at all. You can still have a life while claiming PIP. PIP is about how you are the majority of the time, so at least 50% of the time over a 12 month period. 
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • paulmitch26
    paulmitch26 Community member Posts: 27 Courageous
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    Thank you it just makes me feel horrible and paranoid when im out incase im being watched so i save myself the torture by staying in. Its driving me mad it really is, 3 years iv been sat alone, 3 xmas and new years and 3 birthdays alone im only 35! All my friends work so i feel really left out all due to the fear of the DWP. I hate my life haha 
  • poppy123456
    poppy123456 Community member Posts: 57,053 Disability Gamechanger
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    DWP don't make a habbit of watching people everyday because they don't have the time to do that. As i advised, you shouldn't punish yourself by staying at home everyday just because you're claiming PIP.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • paulmitch26
    paulmitch26 Community member Posts: 27 Courageous
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  • poppy123456
    poppy123456 Community member Posts: 57,053 Disability Gamechanger
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    GLASSBACK said:
    As long as you don’t start doing paid work

    There's no rules against people being unable to work while claiming PIP, whether it's paid or voluntary. Lots of people claim it while continuing to work. There could be issues though if the work you do contradicts the reasons why you're claiming PIP.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • paulmitch26
    paulmitch26 Community member Posts: 27 Courageous
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    Im from the asbestos industry plus scaffolding before that but now i can barly get around with my feet getting sore really quickly so i end up going home soon as i head out. Iv stopped getting dressed in my nice clothes because il be home 2 mins after leaving. Cheers everyone
  • WelshBlue
    WelshBlue Community member Posts: 768 Disability Gamechanger
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    I'm far from a psychologist but driven a few to despair ... 

    You'll drive yourself absolutely bonkers with catastrophic thinking (been there, done that and still do it to an extent).. easier said than done changing it I know, but you owe it to yourself to try and live your life the best you can.  You're entitled to a life on Disability benefits.  

    You say you're an ex-scaffolder so you've obviously put the hard graft in lifting those tubes day in day out, so no need to feel guilty or ashamed that you need help now.  My ex profession was 8 hours on a chainsaw in rain, snow and baking heat on mountainous terrain ... now I can't dress myself most days.

    I've given up thinking what people think of me, when they see me on my good days ... I know what I'm going through

    The relevant benefits departments have looked at your claim and think you need that extra help.
    Are there any clubs you can join, or hobbies that can get you out of the house, if only for an hour or so to start ?

    Good luck mate, and remember to be kind to yourself 
  • paulmitch26
    paulmitch26 Community member Posts: 27 Courageous
    edited March 2023
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    Glassback: i will need one at some point
    Welshblue: we used to have to work on building sites in some of the worst foot terrain iv ever seen, broken toilet pipes so walking through human **** and **** to the point of depression it affected us all i miss scaffolding it can be a right laugh before i went to asbestos i worked with a firm called <Moderator removed employer name> who set me on at 19 and sacked me at 19 for been utter useless but after the years went by i learned and ended up back there on my terms and my own chosen day rate of 95 a day i should have never left they gaffers there planned to invest in me when i think back its a depressing thought i finally got what i wanted 2nd spanner man on part 1 wages, i know people who was at trident and couldn't get 95 a day i kick myself all the time.

    Atm im on a cannabis detox i went cold turkey for 21 years of smoking i know its not clever but im trying to change my life around and that is a start im looking to learn a language group i want to learn german due to me playing games with german players plus i love the langauge anyway so thats a target of mine.

    Thanks for the kind words i feel astho im going insane so iv bought weights and a bench just to try and do something instead of getting up, watching the same TV then going to bed, just existing more or less, many times iv wished for a heart attack so i didnt have to do this but that is another person and now im loving life more than i have ever, also im trying to get into a bulgalow where i can get a dog or micro pig and live how i like, my anxiety has held me down a lot

    Thank you

  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,740 Disability Gamechanger
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    Hello @paulmitch26 How's your Thursday been?

    You made me chuckle with mention of a micro pig! They are so cute aren't they?! It's great to hear you're using exercise and long term goals as a distraction to get you through detoxing from cannabis. I hope I've interpreted that right, when you mentioned 'cannabis detox'?

    We'd always recommend speaking with your GP about detoxing from any recreational drug, so they can offer advice with the knowledge of your medical history. Also, please take a look at this NHS - getting help with drug addiction webpage for a list of organisations you can contact should you ever have any questions. 

    Have you ever accessed talking therapy for help with those difficult emotions you had in the past? Should you ever want to, you can self refer via the Improving Access to Psychological Therapies website

    Just to add, I've removed the name of your former employer to protect your personal identity. 

    Take care and please keep us posted with how you are.
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  • paulmitch26
    paulmitch26 Community member Posts: 27 Courageous
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  • paulmitch26
    paulmitch26 Community member Posts: 27 Courageous
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    Hello my Thursday was okay thank you how was yours? Im 33 days into my detox iv got a drug worker who helps me along i went 'cold turkey' instead of going to rehab so shes amazing and theast appointment is in a week then im all by myself, i had to ring emergency services in the first week due to withdrawal getting too much but now things are a lot better so im feeling super confident, i don't need to smoke it does nothing for me, i used it to cover up emotions now im reaping what i sow haha my dreams are like action movies, just last night i was a labourer for prince harry who was building a wall haha im learning the science behind why im having dreams as i didnt have many before. Things feel more normal although i still feel groggy and a bit down but this will pass.

    As for the micro pigs im in love its one of the first things im buying should i move into a little bungalow they really are little cuties haha thank you for asking and i hope your okay too
  • WelshBlue
    WelshBlue Community member Posts: 768 Disability Gamechanger
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    @paulmitch26 ... great to read the positivity in your posts mate.  
    Been there and done the coming off the weed after a lot of years, like you; to mask life and how I couldn't deal with it as it was ... I can echo the weird dreams ... I was the new Jesus in one.  Which is strange as I'm always scared of getting struck down when I walk into a church

    I used to be into weights and working out ... now I'm a wait lifter ... I wait whilst someone else lifts  :D

    Keep up the good work, and remember to find the time to be proud of where you are

  • paulmitch26
    paulmitch26 Community member Posts: 27 Courageous
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    Cheers mate thank you it means a lot  :)
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