Hi, my name is TracyHall!

TracyHall

Hi everyone, I'm new here. I am the parent of a young adult who has quadriplegic cerebral palsy and am looking for some advice. Our son is a full time wheelchair user and has learning difficulties, he needs 24 hour care. I am wondering if anyone out there is in the same situation and lives independently with support in their own property? 

Alex_Alumni

Hi there @TracyHall and welcome, thanks for reaching out with your query, I've just moved your post over into our Cerebral Palsy category so that it's easier for our members to share their thoughts with you.

Is there anything in particular you're struggling with most at the moment- is it about finding enough support for your son's care?

forgoodnesssake

Interesting question.  My son is almost 25, quad athetoid, power chair, communication aid, currently a student and we are looking at the same issues.  Finding suitable housing is the biggest issue...and that's in a reasonably large, and no too expensive northern city..

TracyHall

Hi we have a property but are struggling with fire regs as our son wants to live with another wheelchair user and an ambulant friend. I sometimes think things are put in our way for the sake of it. Does anyone else live in a shared house with two wheelchair users. if so how do you manage the fire regulations?

Richard_Scope

Hi @TracyHall
When I first left home I rented a room from a friend she was a wheelchair user like myself. Fire regulations never really came up.

There is an organisation called Habinteg that may be able to advise you on the fire regulations.

TracyHall

Thank you. I will take a look. Was your friend able to transfer?

Richard_Scope

Hi @TracyHall
She could transfer in very specific circumstances.