Hi, my name is TracyHall! — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.
Please read our updated community house rules and community guidelines.

Hi, my name is TracyHall!

Options
TracyHall
TracyHall Community member Posts: 4 Listener
edited February 2023 in Cerebral palsy
Hi everyone, I'm new here. I am the parent of a young adult who has quadriplegic cerebral palsy and am looking for some advice. Our son is a full time wheelchair user and has learning difficulties, he needs 24 hour care. I am wondering if anyone out there is in the same situation and lives independently with support in their own property? 
· Share on FacebookShare on Twitter

Comments

  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
    Options
    Hi there @TracyHall and welcome, thanks for reaching out with your query, I've just moved your post over into our Cerebral Palsy category so that it's easier for our members to share their thoughts with you.

    Is there anything in particular you're struggling with most at the moment- is it about finding enough support for your son's care?
    Online Community Coordinator
    Scope

    Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to give us feedback? Complete our feedback form now.
    · Share on FacebookShare on Twitter
  • forgoodnesssake
    forgoodnesssake Community member Posts: 508 Pioneering
    edited February 2023
    Options
    Interesting question.  My son is almost 25, quad athetoid, power chair, communication aid, currently a student and we are looking at the same issues.  Finding suitable housing is the biggest issue...and that's in a reasonably large, and no too expensive northern city..
    · Share on FacebookShare on Twitter
  • TracyHall
    TracyHall Community member Posts: 4 Listener
    Options
    Hi we have a property but are struggling with fire regs as our son wants to live with another wheelchair user and an ambulant friend. I sometimes think things are put in our way for the sake of it. Does anyone else live in a shared house with two wheelchair users. if so how do you manage the fire regulations?
    · Share on FacebookShare on Twitter
  • Richard_Scope
    Richard_Scope Posts: 3,660 Scope online community team
    Options
    Hi @TracyHall
    When I first left home I rented a room from a friend she was a wheelchair user like myself. Fire regulations never really came up.

    There is an organisation called Habinteg that may be able to advise you on the fire regulations.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
    · Share on FacebookShare on Twitter
  • TracyHall
    TracyHall Community member Posts: 4 Listener
    Options
    Thank you. I will take a look. Was your friend able to transfer?
    · Share on FacebookShare on Twitter
  • Richard_Scope
    Richard_Scope Posts: 3,660 Scope online community team
    Options
    Hi @TracyHall
    She could transfer in very specific circumstances. 
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
    · Share on FacebookShare on Twitter

Brightness

Categories

Complete our feedback form and tell us how we can make the community better.