Dieplegia CP and Dizzy spells — Scope | Disability forum
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Dieplegia CP and Dizzy spells

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Tommyc38
Tommyc38 Community member Posts: 9 Connected
in Cerebral palsy
Hello everyone My name is Tommy, I am 41 years old and have Dieplegic CP which affects my mobility greatly more so now that I am ageing, I am finding I am becoming much more tired more easily, but what is most concerning is, is that I have begun to experience dizzy spells which affects my balance and leaves me disoriented, I have read that there may be a link between dizziness/vertigo, and CP, is there any truth in this ?.or could it be exhaustion, its kind of scary, thanks guys 
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
    edited February 2023
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    Hello @Tommyc38. Thank you for reaching out to us. I always appreciate the courage it takes to reach out, especially when you are new and finding things tough.

    In all honesty, we don't provide medical advice here. Symptoms can mean a number of different things but I can hear how scary this is for you. 

    You would be best placed to speak to your GP and/or medical team. I will, however, tag @Richard_Scope in this just in case Richard can add anything from a CP perspective.

    In the meantime, is there anything, in particular, that usually helps you when you are feeling scared?

    Please don't hesitate to let us know if we can do anything else to support you  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • Richard_Scope
    Richard_Scope Posts: 3,660 Scope online community team
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    Hi @Tommyc38
    Thanks for your post. Dizziness is not generally considered a part of CP. Have you had your blood pressure tested recently or your blood sugar levels?

    As we age with CP our mobility can change but it is really important to rule other potential health issues out as well.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

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  • Tommyc38
    Tommyc38 Community member Posts: 9 Connected
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    Hi Guys Thomas here,thanks for coming back to.me with the Advice, the Dizzy spells have eased off, I'm working full time as well and I have been sick and exhausted too, so perhaps that's what was causing it, @Richard_Scope I have Botox injections as well regularly, had them last week now I have flu, it just seems that lately I've been brought down with one thing and another, even now if I go for a swim I can be wrecked the day after, trying to manage it all and work with CP is exhausting, I can never seem to get the balance right, thank you as always for the advice Richard 
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  • Richard_Scope
    Richard_Scope Posts: 3,660 Scope online community team
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    Hi @Tommyc38, I'm really glad to read that the dizziness has eased off for you. It might still be a good idea to ask your G.P. for a blood test to check your iron levels. Low iron/anaemia can add to the fatigue we can get with CP
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
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  • Tommyc38
    Tommyc38 Community member Posts: 9 Connected
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    @Richard_Scope I am going to make an appointment thank.you sir
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    Have you managed to make an appointment yet @Tommyc38? Please feel free to let us know how this goes and if we can do anything else to support you  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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