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Long covid

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ghannah01
ghannah01 Community member Posts: 5 Listener
in PIP, DLA, and AA
Hi @itspersonal

I’m so sorry to hear how much the long covid symptoms are affecting you.
I pretty much have all the symptoms you are experiencing. It is really tough getting support with it all and for people to understand what we’re going through. Instead of gaslighting.

I really do hope things get better for you and that get the support you need. 
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  • poppy123456
    poppy123456 Community member Posts: 55,057 Disability Gamechanger
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    The member you've tagged hasn't been active for over 2 years so you may not get a reply.
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,983 Disability Gamechanger
    edited March 2023
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    Hey @ghannah01. A warm welcome to Scope’s forum from me. It is great to see you have joined us.

    Thanks for already finding the courage to reach out to us. I appreciate the courage it can take to reach out, especially when you are new and finding things difficult.

    It sounds like you are experiencing a lot of ‘long covid symptoms’ and not feeling supported or understood. In an ideal world, what would support look like for you at the moment?

    You absolutely deserve to feel supported, understood and validated. Unfortunately, I often find this rare with any ‘invisible’ chronic health conditions.

    However, I find this is a supportive and understanding space. I hope you will find the same over time. 

    Please don’t hesitate to let us know if we can do anything, in particular, to support you. We are all here for you, believe you, care about you and are listening to you  :)

    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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